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Accelerating Health Information Resource Equity for Multiracial Populations

加速多种族人群的健康信息资源公平

基本信息

批准号：
10291646
负责人：
Karen H Wang
金额：
$ 14.25万
依托单位：
YALE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-08-01 至 2024-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10291646
关键词：
Address African Algorithms Architecture Cardiovascular Diseases Caribbean region Chronic Disease Clinical Communities Community Healthcare Data Databases Diabetes Mellitus Disease Disease Outcome Ensure European Face Future Goals Growth Guidelines Harvest Health Health Personnel Hypertension Improve Access Indigenous Individual Informatics Information Dissemination Information Resources Information Sciences Ingestion Librarians Libraries Library Science Literature Medical Methods Minority Groups Network Infrastructure New Jersey New York Population Prevention strategy Primary Care Physician Process Publishing Puerto Rican Puerto Rico Race Research Research Methodology Research Personnel Resources Risk Factors Risk Reduction Science Scientific Advances and Accomplishments Smoking Terminology Treatment outcome United States Virgin Islands Work cardiovascular disorder prevention cardiovascular disorder risk community engaged research community involvement community organizations data resource disorder prevention exhaustion experience flexibility health disparity improved indexing multi-racial multidisciplinary precision medicine screening standard of care syntax treatment strategy user centered design

项目摘要

ABSTRACT The goal of this proposal “Accelerating Health Information Resource Equity for Multiracial Populations” is to harness the methods of library and information science, health disparities, and informatics research to improve access to and increase dissemination of information resources on CVD risk for Puerto Ricans, a multiracial disparity population. Puerto Ricans face unique risk factors as a result of their African, indigenous, and European ancestry; have high rates of CVD risk factors, such as smoking, hypertension, and diabetes; and experience poor treatment outcomes. We plan to: 1) synthesize and curate information resources for Puerto Ricans on CVD prevention and treatment strategies and outcomes; 2) develop information resources for improved information sharing to this population and their healthcare providers; and 3) ensure meaningful use and dissemination of these information resources through a multisector collaborative research network grounded in the principles of community-engaged research. First, we will develop multi-user health information resources tailored to Puerto Rican communities, their healthcare providers, and librarians. Second, we will adapt the Health Information Resource Equity architecture (HIRE), which leverages the existing SciCrunch®- Disco® informatics platform, a cooperative and collaborative data and resource discovery platform for scientific communities organized around diseases. The goal of the proposed HIRE architecture is to create an informatics framework for a population-centered, not disease-centered, information resource for disparity populations.

摘要该提案的目标是“加速多种族人口的健康信息资源公平”，利用图书馆和信息科学、健康差距和信息学研究的方法，获得和增加传播关于波多黎各人心血管疾病风险的信息资源，人口差距。波多黎各人面临着独特的风险因素，因为他们的非洲，土著，欧洲血统;心血管疾病风险因素的发病率高，如吸烟、高血压和糖尿病;以及治疗效果不佳。我们计划：1）为波多黎各综合和策划信息资源关于心血管疾病预防和治疗策略和结果的信息资源; 2）开发信息资源，改善与该人群及其医疗保健提供者的信息共享;以及3）确保有意义的使用通过多部门合作研究网络传播这些信息资源基于社区参与研究的原则。首先，我们将开发多用户健康信息为波多黎各社区，他们的医疗保健提供者和图书馆员量身定制的资源。二是调整健康信息资源公平架构（HIRE），该架构利用现有的SciCrunch®- Disco®信息学平台，一个合作和协作的科学数据和资源发现平台，围绕疾病组织起来的社区。建议的HIRE架构的目标是创建一个以人口为中心，而不是以疾病为中心的差距信息资源的信息学框架人口。