Personal Health Libraries for Formerly Incarcerated Individuals

曾被监禁人员的个人健康图书馆

• 批准号: 10720256
• 负责人: Karen H Wang
• 金额: $ 3.97万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-10 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10720256
• 关键词: Access to Information; Address; Back; Cessation of life; Chronic; Clinic; Clinical; Communities; Connecticut; Constitution; Constitutional; Controlled Environment; Criminal Justice; Data; Development; Disease Management; Electronic Health Record; Employment; Environment; Food Access; Foundations; Funding; Future; General Population; Goals; Health; Health Personnel; Health Technology; Health system; Healthcare; Hospitalization; Housing; Imprisonment; Individual; Infrastructure; Insurance; Interview; Jail; Learning; Libraries; Medical; Medication Management; Modeling; Nurses; Outcome; Paper; Patients; Personal Health Records; Persons; Pharmaceutical Preparations; Population; Prisons; Process; Provider; Public Health Informatics; Randomized; Recording of previous events; Research; Resources; Risk; Self Efficacy; Social Work; Source; System; Technology; Testing; United States National Institutes of Health; Vulnerable Populations; Work; barrier to care; computerized data processing; correctional system; design; ethnic minority population; health care availability; health care service; health information technology; high risk; high risk population; hospitalization rates; improved; informant; informatics tool; low socioeconomic status; medication compliance; mobile application; multidisciplinary; multiple data sources; patient portal; poor health outcome; preference; primary care clinic; primary care services; racial minority population; randomized trial; recruit; service organization; service providers; social; social vulnerability; standard of care

PROJECT SUMMARY Individuals released from correctional facilities have high rates of hospitalization and death, especially in the weeks following release. Disproportionately poor and of racial and ethnic minority groups, they are already a high-risk group for poor health outcomes. The transition back to the community is marked with additional difficulties navigating the healthcare, community correctional, and social service systems and structural barriers to obtaining healthcare, housing, and employment. Individuals released from correctional facilities must engage with many providers, which presents challenges organizing and acting on information received from various organizations. Personal health information technologies are untapped resources which could improve the transition from corrections to the community and mitigate health risks. There is an urgent need to develop personal health information technologies in partnership with formerly incarcerated individuals and test their efficacy in improving health outcomes. Using these technologies, formerly incarcerated individuals could organize, understand and act on various sources of information, leading to improved self-efficacy and improved health outcomes. Yet, there has not been a personal health information technology designed to meet the needs and preferences of this population, which is critical for its acceptance and use. The long-term goal is to improve the health of formerly incarcerated people, facilitated by their use of personal health information technologies. The overall objective of this proposal is to develop and test strategies, in partnership with formerly incarcerated people, to increase acceptance and use of a personal health library (PerHL) mobile app. Preliminary data indicate that using a participatory health informatics approach to engage people with histories of incarceration can lead to acceptance and use of a health technology. The central hypothesis of our study is that developing and refining PerHL in partnership with formerly incarcerated people will increase its acceptance and use. To test this hypothesis, we propose three aims: (1) Assess the facilitators and barriers of the development and use of personal health information technology for formerly incarcerated individuals, (2) Develop and refine PerHL for formerly incarcerated individuals, and (3) Conduct a pilot randomized trial to test the acceptance and use of PerHL among formerly incarcerated individuals. We will leverage the expertise and infrastructure of Transitions Clinic Network, a national network of primary care clinics for formerly incarcerated people, and a multidisciplinary team of informaticists, clinical providers, formerly incarcerated individuals, and criminal justice leaders, creating a best-case scenario for developing PerHL. This study represents a new and substantial departure from the status quo by incorporating a participatory health informatics approach and state of the art informatics tools into the development and refinement of a personal health information technology for people recently released from correctional facilities.

项目摘要 从教养所释放的人住院和死亡率很高，特别是在 释放后的几周。他们是不成比例的穷人，是种族和少数民族群体， 健康状况不佳的高危人群。回归社区的过渡标志着更多的 在医疗保健、社区矫正和社会服务系统以及结构性 获得医疗保健、住房和就业的障碍。从教养所释放的人 我必须与许多提供商合作，这对组织和处理收到的信息提出了挑战 来自不同的组织。个人健康信息技术是尚未开发的资源， 改善从惩教机构向社区的过渡，并减轻健康风险。迫切需要 与以前被监禁的个人合作开发个人健康信息技术， 在改善健康结果方面的功效。利用这些技术，以前被监禁的人可以 组织，理解和采取行动的各种信息来源，从而提高自我效能， 改善健康成果。然而，还没有一种个人健康信息技术被设计成满足 这一人群的需求和偏好，这对接受和使用至关重要。长期目标是 通过使用个人健康信息，改善以前被监禁者的健康状况 技术.本提案的总体目标是与下列机构合作，制定和测试战略： 以前被监禁的人，以提高个人健康图书馆（PerHL）移动的应用程序的接受和使用。 初步数据表明，使用参与性健康信息学方法， 可以导致对健康技术的接受和使用。我们研究的中心假设是 与以前被监禁的人合作开发和完善PerHL将增加其 接受和使用。为了验证这一假设，我们提出了三个目标：（1）评估促进者和障碍， 为以前被监禁的个人开发和使用个人健康信息技术，（2） 为以前被监禁的个人开发和完善PerHL，以及（3）进行试点随机试验，以测试 在以前被监禁的个人中接受和使用PerHL。我们将利用专业知识， 过渡诊所网络的基础设施，这是一个为前被监禁者提供初级保健诊所的国家网络。 人，和一个多学科的团队，信息学家，临床提供者，以前被监禁的个人， 刑事司法领导人，创造一个最好的情况下，发展PerHL。这项研究代表了一种新的， 通过纳入参与性卫生信息学方法和国家， 将最先进的信息学工具应用于个人健康信息技术的开发和完善， 刚从监狱释放的人

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• DOI: 10.2196/48498
• 发表时间: 2023-08-04
• 期刊: JOURNAL OF MEDICAL INTERNET RESEARCH
• 影响因子: 7.4
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• 通讯作者: McCall, Terika

A Socio-Ecological Approach to Addressing Digital Redlining in the United States: A Call to Action for Health Equity.

• DOI: 10.3389/fdgth.2022.897250
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• 期刊: FRONTIERS IN DIGITAL HEALTH
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• 通讯作者: Wang, Karen H.

Seeking and Providing Social Support on Twitter for Trauma and Distress During the COVID-19 Pandemic: Content and Sentiment Analysis.

• DOI: 10.2196/46343
• 发表时间: 2023-08-31
• 期刊: JOURNAL OF MEDICAL INTERNET RESEARCH
• 影响因子: 7.4
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• DOI: 10.2196/44748
• 发表时间: 2023-05-03
• 期刊: JMIR research protocols
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