Programa de ARBOLES Familiares: Assessing Risk of Breast Cancer through Outreach to Latinas with Education and Support

ARBOLES项目摘要/总结 拉丁裔和西班牙裔在咨询和测试（遗传服务）方面的差异 遗传性乳腺癌和卵巢癌 (HBOC) 风险增加导致人们对高风险的认识减少 终生癌症风险，因缺乏适当的风险而导致死亡风险增加 管理。拉丁裔和西班牙裔（以下简称“拉丁裔”）对遗传服务的接受程度不同 包括对转介和获得服务以及社会经济的认识有限， 语言、文化障碍。促进风险适当转介的替代模型 迫切需要通过遗传服务进行导航。在其他癌症教育背景下， 社区外展和教育专业人员（以下简称 CORE-P），例如社区 健康教育者、宣传员、非专业健康顾问和患者导航员在 改善服务不足人群的癌症筛查行为。增加筛查和风险 评估有助于减少癌症发病率和死亡率的差异。以核心为指导 疾病控制与预防中心和其他国家机构的能力 联盟，我们寻求教育西班牙语-英语双语 CORE-P，以提高基本能力 有关知识：遗传学在疾病中的作用、自身遗传专业知识的局限性、 以及如何将高危人群适当转介给医疗保健专业人员 更多的遗传专业知识，称为“推荐级能力”。有限的研究使用了 CORE-P 通过教育和支持提高拉丁裔美国人对遗传学服务的认识和接受。 在成人学习理论和流行教育技术原则的指导下，我们建议 家谱计划 [Programa de ARBOLES Familiares：评估乳腺癌风险 通过对拉丁裔的教育和支持进行外展]双语 CORE-P。的目标 培训计划旨在通过制定一个 经过培训的 CORE-P 网络，确保拉丁裔人群适当接受遗传服务的风险 HBOC 面临风险。具体来说，我们的目标是：（1）完善并最终确定教育课程 双语社区外展和教育专业人员 (CORE-P)，(2) 实施 通过面对面研讨会，ARBOLES Familiares 计划在 250 名双语 CORE-P 中开展 其次是在线模块，(3) 确定 ARBOLES Familiares 计划对 参与者的知识、自我效能、技能以及由此产生的社区影响 风险拉丁裔。

ARBOLES Project Abstract/Summary Disparities in counseling and testing (genetic services) among Latinas and Hispanics at increased risk of hereditary breast and ovarian cancer (HBOC) result in less awareness of high lifetime cancer risks and thus increased risk of mortality due to a lack of appropriate risk management. Disparate uptake of genetic services in Latinas and Hispanics (hereafter ‘Latinas’) includes limited awareness of referral to and access to services, as well as socioeconomic, language, and cultural barriers. Alternate models to facilitate risk appropriate referrals to and navigation through genetic services are urgently needed. In other cancer education contexts, community outreach and education professionals (hereafter, CORE-P), such as community health educators, promotoras, lay health advisors and patient navigators, have been effective in improving cancer screening behaviors in underserved populations. Increased screening and risk assessments can help reduce disparities in cancer incidence and mortality. Guided by core competencies from the Centers for Disease Control and Prevention and other national coalitions, we seek to educate bilingual Spanish-English speaking CORE-P to increase basic knowledge about: the role of genetics in disease, the limitations of their own genetic expertise, and how to make appropriate referrals for at-risk individuals to health care professionals with more genetic expertise, called ‘referral-level competence.’ Limited research has used CORE-P to increase Latinas’ awareness and uptake of genetics services through education and support. Guided by principles of Adult Learning Theory and popular education techniques, we propose the Family Tree Program [Programa de ARBOLES Familiares: Assessing Risk of Breast Cancer through Outreach to Latinas with Education and Support] for bilingual CORE-P. The goal of the training program is to address the unmet referral-level competence needs by developing a trained network of CORE-P to ensure risk appropriate uptake of genetic services among Latinas at risk for HBOC. Specifically, we aim to: (1) refine and finalize an education curriculum for bilingual community outreach and education professionals (CORE-P), (2) implement the ARBOLES Familiares program among 250 bilingual CORE-P using an in-person workshop followed by online modules, and (3) identify the impact of the ARBOLES Familiares program on participants’ knowledge, self-efficacy, skills, and the resulting community impact among high- risk Latinas.