Programa de ARBOLES Familiares: Assessing Risk of Breast Cancer through Outreach to Latinas with Education and Support

Programa de ARBOLES Familiares：通过向拉丁裔提供教育和支持来评估乳腺癌风险

• 批准号: 10318077
• 负责人: KRISTI D. GRAVES
• 金额: $ 25.8万
• 依托单位: GEORGETOWN UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-08-01 至 2023-11-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10318077
• 关键词: Address; Adult; Awareness; Behavior; Breast Cancer Prevention; Breast Cancer Risk Factor; Case Study; Centers for Disease Control and Prevention (U.S.); Clinics and Hospitals; Collaborations; Communication; Communities; Community Health; Community Health Education; Community Networks; Community Outreach; Competence; Counseling; Disease; E-learning; Education; Education and Outreach; Educational Curriculum; Educational workshop; Ensure; Faculty; Feedback; Foundations; Genealogical Tree; Genetic; Genetic Counseling; Genetic Services; Goals; Health; Health Educators; Health Personnel; Health Professional; Health Services Accessibility; Hereditary Breast and Ovarian Cancer Syndrome; High Risk Woman; Hispanic Populations; Incidence; Individual; Knowledge; Language; Latina Population; Latino; Latino Population; Learning; Malignant neoplasm of ovary; Minority Groups; Modeling; Not Hispanic or Latino; Outcome; Participant; Patient Education; Patients; Persons; Play; Population; Prevention education; Process; Professional Education; Public Health; Reporting; Research; Risk; Risk Assessment; Risk Management; Role; Screening for cancer; Self Efficacy; Source; Techniques; Testing; Training; Training Programs; Underserved Population; base; bilingualism; cancer education; cancer genetics; cancer health disparity; cancer prevention; cancer risk; demographics; disparity reduction; genetic resource; genetic testing; hands-on learning; hereditary risk; high risk; improved; innovation; learning strategy; lifetime risk; minority communities; mortality; mortality risk; multidisciplinary; outreach; programs; recruit; screening; skills; socioeconomics; theories; uptake

ARBOLES Project Abstract/Summary Disparities in counseling and testing (genetic services) among Latinas and Hispanics at increased risk of hereditary breast and ovarian cancer (HBOC) result in less awareness of high lifetime cancer risks and thus increased risk of mortality due to a lack of appropriate risk management. Disparate uptake of genetic services in Latinas and Hispanics (hereafter ‘Latinas’) includes limited awareness of referral to and access to services, as well as socioeconomic, language, and cultural barriers. Alternate models to facilitate risk appropriate referrals to and navigation through genetic services are urgently needed. In other cancer education contexts, community outreach and education professionals (hereafter, CORE-P), such as community health educators, promotoras, lay health advisors and patient navigators, have been effective in improving cancer screening behaviors in underserved populations. Increased screening and risk assessments can help reduce disparities in cancer incidence and mortality. Guided by core competencies from the Centers for Disease Control and Prevention and other national coalitions, we seek to educate bilingual Spanish-English speaking CORE-P to increase basic knowledge about: the role of genetics in disease, the limitations of their own genetic expertise, and how to make appropriate referrals for at-risk individuals to health care professionals with more genetic expertise, called ‘referral-level competence.’ Limited research has used CORE-P to increase Latinas’ awareness and uptake of genetics services through education and support. Guided by principles of Adult Learning Theory and popular education techniques, we propose the Family Tree Program [Programa de ARBOLES Familiares: Assessing Risk of Breast Cancer through Outreach to Latinas with Education and Support] for bilingual CORE-P. The goal of the training program is to address the unmet referral-level competence needs by developing a trained network of CORE-P to ensure risk appropriate uptake of genetic services among Latinas at risk for HBOC. Specifically, we aim to: (1) refine and finalize an education curriculum for bilingual community outreach and education professionals (CORE-P), (2) implement the ARBOLES Familiares program among 250 bilingual CORE-P using an in-person workshop followed by online modules, and (3) identify the impact of the ARBOLES Familiares program on participants’ knowledge, self-efficacy, skills, and the resulting community impact among high- risk Latinas.

项目摘要/摘要 拉丁裔和西班牙裔在咨询和检测（遗传服务）方面的差异 遗传性乳腺癌和卵巢癌（HBOC）的风险增加导致人们对高 终身癌症风险，因此由于缺乏适当的风险而增加死亡风险 管理拉丁美洲人和西班牙裔人（以下简称“拉丁美洲人”）对遗传服务的接受程度不同 包括对转诊和获得服务的认识有限，以及社会经济， 语言和文化障碍。替代模式，以促进风险适当的转介， 迫切需要通过遗传服务进行导航。在其他癌症教育背景下， 社区外展和教育专业人员（以下简称CORE-P），如社区 健康教育工作者、宣传员、非专业健康顾问和病人导航员， 改善服务不足人群的癌症筛查行为。增加筛查和风险 评估有助于减少癌症发病率和死亡率的差异。核心导向 疾病控制和预防中心以及其他国家 联盟，我们寻求教育双语西班牙语，英语口语核心-P，以增加基本的 知识：遗传学在疾病中的作用，他们自己的遗传专业知识的局限性， 以及如何为有风险的个人向卫生保健专业人员进行适当的转介， 更多的遗传学知识，称为“高级能力”。有限的研究使用了CORE-P 通过教育和支持，提高拉丁美洲人对遗传学服务的认识和吸收。 在成人学习理论和大众化教育技术的指导下，我们提出 家谱计划：评估乳腺癌的风险 通过向拉丁美洲人提供教育和支持的外联活动]， 培训计划是通过开发一个 经过培训的CORE-P网络，以确保拉丁美洲人接受风险适当的遗传服务 HBOC的风险。具体而言，我们的目标是：（1）完善和确定教育课程， 双语社区外展和教育专业人员（CORE-P），（2）实施 250名双语CORE-P中的ARBOLES Familiares计划使用面对面研讨会 其次是在线模块，（3）确定ARBOLES Familiares计划对以下方面的影响： 参与者的知识，自我效能，技能，以及由此产生的社区影响， 冒险拉丁裔