Programa de ARBOLES Familiares: Assessing Risk of Breast Cancer through Outreach to Latinas with Education and Support

Programa de ARBOLES Familiares：通过向拉丁裔提供教育和支持来评估乳腺癌风险

• 批准号: 9750014
• 负责人: KRISTI D. GRAVES
• 金额: $ 32.4万
• 依托单位: GEORGETOWN UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-08-01 至 2022-11-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9750014
• 关键词: Address; Adult; Awareness; Behavior; Breast Cancer Prevention; Breast Cancer Risk Factor; Case Study; Centers for Disease Control and Prevention (U.S.); Clinics and Hospitals; Collaborations; Communication; Communities; Community Health; Community Health Education; Community Networks; Community Outreach; Competence; Counseling; Disease; E-learning; Education; Education and Outreach; Educational Curriculum; Educational workshop; Ensure; Faculty; Feedback; Foundations; Genealogical Tree; Genetic; Genetic Counseling; Genetic Services; Genetic screening method; Goals; Health; Health Educators; Health Personnel; Health Professional; Health Services Accessibility; Hereditary Breast and Ovarian Cancer Syndrome; High Risk Woman; Hispanics; Incidence; Individual; Knowledge; Language; Latina; Latino; Learning; Malignant neoplasm of ovary; Minority Groups; Modeling; Not Hispanic or Latino; Outcome; Participant; Patient Education; Patients; Persons; Play; Population; Prevention education; Process; Professional Education; Public Health; Reporting; Research; Risk; Risk Assessment; Risk Management; Role; Screening for cancer; Self Efficacy; Source; Techniques; Testing; Training; Training Programs; Underserved Population; base; bilingualism; cancer education; cancer genetics; cancer health disparity; cancer prevention; cancer risk; demographics; disparity reduction; genetic resource; hands-on learning; high risk; improved; innovation; learning strategy; lifetime risk; minority communities; mortality; mortality risk; multidisciplinary; outreach; programs; recruit; screening; skills; socioeconomics; theories; uptake

ARBOLES Project Abstract/Summary Disparities in counseling and testing (genetic services) among Latinas and Hispanics at increased risk of hereditary breast and ovarian cancer (HBOC) result in less awareness of high lifetime cancer risks and thus increased risk of mortality due to a lack of appropriate risk management. Disparate uptake of genetic services in Latinas and Hispanics (hereafter ‘Latinas’) includes limited awareness of referral to and access to services, as well as socioeconomic, language, and cultural barriers. Alternate models to facilitate risk appropriate referrals to and navigation through genetic services are urgently needed. In other cancer education contexts, community outreach and education professionals (hereafter, CORE-P), such as community health educators, promotoras, lay health advisors and patient navigators, have been effective in improving cancer screening behaviors in underserved populations. Increased screening and risk assessments can help reduce disparities in cancer incidence and mortality. Guided by core competencies from the Centers for Disease Control and Prevention and other national coalitions, we seek to educate bilingual Spanish-English speaking CORE-P to increase basic knowledge about: the role of genetics in disease, the limitations of their own genetic expertise, and how to make appropriate referrals for at-risk individuals to health care professionals with more genetic expertise, called ‘referral-level competence.’ Limited research has used CORE-P to increase Latinas’ awareness and uptake of genetics services through education and support. Guided by principles of Adult Learning Theory and popular education techniques, we propose the Family Tree Program [Programa de ARBOLES Familiares: Assessing Risk of Breast Cancer through Outreach to Latinas with Education and Support] for bilingual CORE-P. The goal of the training program is to address the unmet referral-level competence needs by developing a trained network of CORE-P to ensure risk appropriate uptake of genetic services among Latinas at risk for HBOC. Specifically, we aim to: (1) refine and finalize an education curriculum for bilingual community outreach and education professionals (CORE-P), (2) implement the ARBOLES Familiares program among 250 bilingual CORE-P using an in-person workshop followed by online modules, and (3) identify the impact of the ARBOLES Familiares program on participants’ knowledge, self-efficacy, skills, and the resulting community impact among high- risk Latinas.

ARBOLES项目摘要/摘要