Community Engagement Core

社区参与核心

• 批准号: 10335259
• 负责人: Philip M Brown
• 金额: $ 12.14万
• 依托单位: NORTHEASTERN UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-04-12 至 2025-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10335259
• 关键词: Advisory Committees; Advocacy; Advocate; Affect; Area; Back; Birth Rate; Caring; Cellular Phone; Child Health; Clinic; Clinical; Cohort Studies; Communication; Communities; Community Health; Data Aggregation; Data Analyses; Development; Disasters; Early Intervention; Education; Educational Materials; Emergency Situation; Emergency response; Ensure; Environmental Exposure; Environmental Health; Environmental Pollution; Epidemic; Ethics; Event; Exposure to; Family health status; Feedback; Floods; Focus Groups; Foundations; Goals; Government; Health; Health Educators; Health Personnel; Health Professional; Health Promotion; Health education; Hurricane; Individual; Infant Mortality; Knowledge; Learning; Maternal and Child Health; Methods; Mission; Neighborhood Health Center; Nursing Staff; Pamphlets; Participant; Patient Recruitments; Pregnancy; Pregnant Women; Premature Birth; Premature Infant; Prevention; Prevention Research; Privatization; Process; Public Health; Puerto Rican; Puerto Rico; Readiness; Recovery; Reporting; Reproductive Health; Research; Research Personnel; Research Project Grants; Research Proposals; Research Training; Resources; Risk Reduction; Role; STEM research; Safety; Sampling; Site; Social Work; Superfund; Testing; Training; Training Support; Translational Research; Trust; Water; Woman; Work; ZIKA; adverse outcome; adverse pregnancy outcome; base; citizen science; community based participatory research; community engagement; community organizations; contaminated drinking water; data management; disparity reduction; experience; ground water; health literacy; human subject; improved; innovation; interest; meetings; participant retention; prevent; recruit; remediation; service intervention; service providers; smartphone Application; social; stem; superfund chemical; superfund site; systems research; usability

PROJECT SUMMARY Established in 2010, the Puerto Rico Testsite for Exploring Contamination Threats (PROTECT) Superfund Research Center (SRC) uses a holistic system of research, training and stakeholder engagement to study the fate, transport, exposure, health impact and remediation of contaminant mixtures, aimed at reducing preterm birth (PTB) and other adverse pregnancy outcomes (APOs). Rates of PTB and infant mortality in Puerto Rico (PR) are among the highest among all U.S. states and territories. After reaching 20% in 2008, the PTB rate in PR has decreased to 11.4% in 2017, yet continues to be among the highest globally Evidence exists that exposure to Superfund chemicals contributes to APOs. Contamination is extensive in PR: there are 18 Superfund sites, and evidence of contamination of the drinking water is extensive. There are also extreme events (hurricanes, flooding) that may result in elevated exposures to environmental pollution. The Community Engagement Core (CEC), working closely with the Human Subjects and Sampling Core (HSSC), the Research Translation Coordinator, and the research projects, is the main vehicle for interaction with community stakeholders in PR. PROTECT’s approach emphasizes bidirectional engagement with two groups of stakeholders: 1) women participating in the PROTECT study cohort (1,457 participants with 1280 completed pregnancies as of October 2018 with the goal of adding another 1000); and 2) the broader group of residents in the areas where PROTECT’s groundwater study is being conducted, including collaborators at the Community Health Centers (CHCs) and clinics that serve as study sites. The CEC’s continual connection with the HSSC has produced strong relationships with study participants, staff and clinicians at CHCs and private clinics, health educators, social work and nursing staff, and community groups. Building on this foundation, the CEC will continue its strong bidirectional communication strategy, which includes meetings and focus groups with participants and clinical staff, distribution of extensive educational materials on reproductive and child health, and report-back of research findings to stakeholders, informed by stakeholder priorities, needs, and concerns. Inspired by participant feedback, we will continue to implement a new interactive cell phone-based app that allows individualized report-back to participants. This innovation will: more fully include participants in the research process, improve study recruitment/retention, provide individual exposure reduction information, and lay the groundwork for community-based participatory research projects. We will work extensively on exposure reduction by providing detailed suggested actions in the app, and by working with Project 4 (Remediation) to test project-developed water filters. The CEC’s central role in providing water filters and emergency supplies post-hurricane has made PROTECT even more trusted, and we will continue to provide emergency preparedness training/support. We will continue work on capacity-building for participants, health care providers, and their organizations, as well as develop resources for maternal and child health.

项目摘要 Puerto Rico Testsite成立于2010年，用于探索污染威胁（保护）超级基金 研究中心（SRC）使用整体研究，培训和利益相关者参与系统来研究 命运，运输，暴露，健康影响和污染物混合物的修复，旨在减少早产 出生（PTB）和其他不良妊娠结局（APO）。波多黎各的PTB和婴儿死亡率的发生率 （PR）是美国所有州和地区中最高的。在2008年达到20％之后，PTB率在 PR在2017年下降至11.4％，但仍有全球最高的证据之一 接触超级基金化学物质会导致APO。污染在PR中广泛：有18个 超级基金地点和饮用水污染的证据是广泛的。也有极端 事件（飓风，洪水）可能导致对环境污染的暴露量增加。社区 参与核心（CEC），与人类受试者和采样核心（HSSC）紧密合作，研究 翻译协调员和研究项目是与社区互动的主要工具 PR的利益相关者。保护方法强调与两个小组的双向交战 利益相关者：1）参加保护研究队列的妇女（1,457名参与者完成了1280 截至2018年10月，怀孕的目标是增加1000）； 2）更广泛的居民群体 在正在进行保护地下水研究的领域中，包括 社区卫生中心（CHC）和诊所作为研究地点。 CEC与 HSSC与CHC和私人的研究参与者，员工和临床医生建立了牢固的关系 诊所，健康教育者，社会工作和护士人员以及社区团体。建立在这个基础的基础上 CEC将继续其强大的双向交流策略，其中包括会议和焦点小组 与参与者和临床人员一起，分发有关生殖和儿童的广泛教育材料 卫生和报告结果向利益相关者的研究结果，并由利益相关者的优先事项，需求和 关注。受参与者反馈的启发，我们将继续实施新的互动手机 允许参与者的个性化报告背包的应用程序。这项创新将：更充分地包括参与者 研究过程，改善研究招聘/保留率，提供个人降低信息， 并为基于社区的参与研究项目奠定了基础。我们将广泛地工作 通过在应用程序中提供详细建议的行动以及与项目4合作，减少暴露 （修复）测试项目开发的水过滤器。 CEC在提供水过滤器和 赫鲁尼安后的紧急用品使保护更加信任，我们将继续提供 紧急准备培训/支持。我们将继续为参与者，健康的能力建设工作 护理提供者及其组织，以及为母校和儿童健康开发资源。