All for data, data for all: Improving accessibility of healthcare data through a co-designed augmentation of an existing online rehabilitation application.

一切为了数据，数据为所有人：通过共同设计的现有在线康复应用程序的增强功能，提高医疗保健数据的可访问性。

• 批准号: 10054277
• 金额: $ 6.37万
• 依托单位: CLINICAL NEUROPSYCHOLOGY SERVICES LTD.
• 依托单位国家: 英国
• 项目类别: Grant for R&D
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=10054277
• 关键词: data; Improving; accessibility; healthcare; through

Rehabilitation describes a huge range of healthcare activities that take place after a serious injury or illness such as a stroke, traumatic injury, acquired brain injury, combat trauma, cardiac, pulmonary, mental health, or addictions. Globally, an estimated 2.4 billion people are currently living with a health condition that benefits from rehabilitation, and the need for rehabilitation worldwide is predicted to increase due to changes in the health and characteristics of the population. People are living longer, but with more chronic disease and disability. Currently the need for rehabilitation is largely unmet (World Health Organisation, WHO, _Rehabilitation_, November 2021).Goal Manager is a cloud-based application designed to automate core processes in rehabilitation goal setting, facilitating collaborative working for multidisciplinary teams in remote locations, and streamlining gold-standard processes into one system. Goal Manager is a combined workflow management and reporting tool for rehabilitation and it is already helping services all over the UK provide more efficient services to their clients. This project will support the rapid development of the next stage of Goal Manager, a Data Dashboard, which will provide summary information on patient profiles and outcomes in rehabilitation, in order to provide information to guide how we best deliver their rehabilitation and design services that are as efficient and effective as possible.Failure to provide effective rehabilitation is costly. In the case of acquired brain injury (ABI), where Goal Manager was initially developed, the annual cost to society is estimated to be £15 billion, equivalent to approximately 10% of the total annual National Health Service (NHS) budget (All-Party Parliamentary Group on ABI, September 2018). The Data Dashboard will enable quick and easy analysis of routinely collected clinical data to enable us to answer many unanswered questions about what works best and for whom in rehabilitation. This data will in turn allow us to reconfigure and design services which are maximally effective for the individuals requiring them by enabling services to interrogate their data and compare these standardised datasets across different services quickly and easily. We will be able to improve access to healthcare for all, to maximise clinical outcomes and to reduce inefficiencies, thus saving money for the NHS and the public by supporting resources to be most effectively targeted.

康复描述了严重伤害或疾病后发生的大量医疗保健活动，如中风，创伤性损伤，获得性脑损伤，战斗创伤，心脏，肺，心理健康或成瘾。在全球范围内，估计有24亿人目前生活在受益于康复的健康状况中，由于人口健康和特征的变化，预计全世界对康复的需求将增加。人们的寿命更长，但慢性疾病和残疾更多。目前，康复需求在很大程度上未得到满足（世界卫生组织，WHO，_Rehabilitation_，2021年11月）。目标管理器是一个基于云的应用程序，旨在自动化康复目标设定的核心流程，促进偏远地区多学科团队的协作工作，并将黄金标准流程简化为一个系统。目标管理器是一个综合的工作流程管理和报告工具，用于康复，它已经帮助英国各地的服务提供更有效的服务，他们的客户。该项目将支持目标管理器下一阶段的快速开发，这是一个数据仪表板，它将提供有关患者概况和康复结果的摘要信息，以提供信息来指导我们如何最好地提供康复和设计尽可能高效和有效的服务。在获得性脑损伤（ABI）的情况下，目标管理器最初被开发出来，每年对社会的成本估计为150亿英镑，相当于国家卫生服务（NHS）年度预算总额的约10%（ABI的所有党派议会小组，2018年9月）。数据仪表板将能够快速轻松地分析常规收集的临床数据，使我们能够回答许多未回答的问题，即什么最有效，谁在康复中。这些数据将使我们能够重新配置和设计服务，这些服务对需要它们的个人来说是最有效的，使服务能够快速轻松地询问他们的数据并在不同服务之间比较这些标准化数据集。我们将能够改善所有人获得医疗保健的机会，最大限度地提高临床效果，减少效率低下，从而通过支持资源最有效地针对性，为NHS和公众节省资金。