Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics

基因组技术的快速发展正在改变我们对人类基因组的理解。 健康和人类历史。这些技术也保证了前所未有的干预力量 在患有疾病或有患病风险的个人身上，甚至改变他们的身份或未来， 尚未出生的人。这种知识和力量意味着使用它们的巨大责任 以促进核心道德价值观的方式，包括个人和集体福利、社会 司法、保护弱势群体、尊重个人的自主权和 社区的利益。履行这些职责需要一个多样化、训练有素的干部队伍 跨学科的学者准备从事批判性和尊重与深刻的 基因组技术带来的伦理、法律的和社会挑战。为了满足这一需要， 宾夕法尼亚大学博士后培训计划在道德，法律的和社会的基本目标 遗传学和基因组学的影响（ELSI）是准备学员成功的创造性， ELSI研究领域的独立调查员。该计划，安置在 佩雷尔曼医学院的医学伦理和健康政策系，将 实现这一目标通过三个核心组成部分：1）指导原创性研究导致高， 影响经验和概念的学术出版物; 2）个性化的教学培训 包括，在适当的时候，医学伦理学硕士学位;和3）密集 职业发展准备。受训人员将作为研究员参加三年。一个 优秀的课程教师，由13名经验丰富的ELSI学者和导师组成， 任命部门在佩雷尔曼医学院，艺术学院和 科学，和宾夕法尼亚凯里法学院，将作为导师，以计划学员。 学员将出席并参加医学伦理和健康政策部的 每月的工作进展和研讨会系列，参加各种研讨会， 整个大学的会议集中在遗传医学和科学以及 伦理、法律、经济和卫生政策，并出席国家会议。学员还将 通过跟踪专家遗传学家和顾问获得遗传医学的接触 从成人，儿科和生殖遗传学实践的全方位。最后，学员将 担任审查ELSI的宾夕法尼亚大学机构审查委员会（IRB）的成员- 相关研究。该计划将确保尽可能广泛的纪律和 通过有针对性的广泛外联活动， 代表性不足的学术团体。

Rapid advances in genomic technologies are transforming our understandings of both human health and human history. These technologies also promise unprecedented power to intervene on the bodies of individuals with or at risk of disease and even to alter the identities or futures of individuals not yet born. Such knowledge and power imply immense responsibility to use them in ways that promote core ethical values, including individual and collective welfare, social justice, protection of the vulnerable, and respect for both the autonomy of persons and the interests of communities. Fulfilling these responsibilities requires a diverse, highly trained cadre of interdisciplinary scholars prepared to engage critically and respectfully with the profound ethical, legal and social challenges raised by genomic technologies. Responding to this need, the fundamental goal of the Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications (ELSI) of Genetics and Genomics is to prepare trainees for success as creative, independent investigators in the field of ELSI research. The program, housed within the Department of Medical Ethics and Health Policy at the Perelman School of Medicine, will achieve this goal through three core components: 1) mentored original research leading to high- impact empirical and conceptual scholarly publications; 2) individualized didactic training including, when appropriate, a Master of Science in Medical Ethics degree; and 3) intensive career development preparation. Trainees will participate as fellows for three years. An outstanding program faculty, consisting of 13 experienced ELSI scholars and mentors with appointments in departments at the Perelman School of Medicine, the School of Arts and Sciences, and the Penn Carey Law School, will serve as preceptors to program trainees. Trainees will present at and participate in the Department of Medical Ethics and Health Policy’s monthly works-in-progress and seminar series, attend a wide range of seminars and conferences across the University focused on genetic medicine and science as well as on ethics, law, economics and health policy, and present at national meetings. Trainees will also gain exposure to genetic medicine through shadowing expert geneticists and counselors drawn from the full spectrum of adult, pediatric and reproductive genetics practice. Finally, trainees will serve as members of one of the UPenn institutional review boards (IRBs) that review ELSI- related research. The program will ensure the fullest possible range of discipline and background among enrolled trainees by extensive targeted outreach to diverse and underrepresented academic communities.