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Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics

宾夕法尼亚大学遗传学和基因组学的伦理、法律和社会影响博士后培训项目

基本信息

批准号：
10622560
负责人：
Steven Joffe
金额：
$ 26.63万
依托单位：
UNIVERSITY OF PENNSYLVANIA
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-06-07 至 2027-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10622560
关键词：
Ethics Genetic Genomics Training Programs legal implication post-doctoral training social implication

项目摘要

Rapid advances in genomic technologies are transforming our understandings of both human health and human history. These technologies also promise unprecedented power to intervene on the bodies of individuals with or at risk of disease and even to alter the identities or futures of individuals not yet born. Such knowledge and power imply immense responsibility to use them in ways that promote core ethical values, including individual and collective welfare, social justice, protection of the vulnerable, and respect for both the autonomy of persons and the interests of communities. Fulfilling these responsibilities requires a diverse, highly trained cadre of interdisciplinary scholars prepared to engage critically and respectfully with the profound ethical, legal and social challenges raised by genomic technologies. Responding to this need, the fundamental goal of the Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications (ELSI) of Genetics and Genomics is to prepare trainees for success as creative, independent investigators in the field of ELSI research. The program, housed within the Department of Medical Ethics and Health Policy at the Perelman School of Medicine, will achieve this goal through three core components: 1) mentored original research leading to high- impact empirical and conceptual scholarly publications; 2) individualized didactic training including, when appropriate, a Master of Science in Medical Ethics degree; and 3) intensive career development preparation. Trainees will participate as fellows for three years. An outstanding program faculty, consisting of 13 experienced ELSI scholars and mentors with appointments in departments at the Perelman School of Medicine, the School of Arts and Sciences, and the Penn Carey Law School, will serve as preceptors to program trainees. Trainees will present at and participate in the Department of Medical Ethics and Health Policy’s monthly works-in-progress and seminar series, attend a wide range of seminars and conferences across the University focused on genetic medicine and science as well as on ethics, law, economics and health policy, and present at national meetings. Trainees will also gain exposure to genetic medicine through shadowing expert geneticists and counselors drawn from the full spectrum of adult, pediatric and reproductive genetics practice. Finally, trainees will serve as members of one of the UPenn institutional review boards (IRBs) that review ELSI- related research. The program will ensure the fullest possible range of discipline and background among enrolled trainees by extensive targeted outreach to diverse and underrepresented academic communities.

基因组技术的快速发展正在改变我们对人类和人类健康和人类历史。这些技术还承诺提供前所未有的力量进行干预。对有疾病或有疾病风险的个人的身体，甚至改变其身份或未来尚未出生的个体。这样的知识和权力意味着要负起巨大的责任去使用它们以促进核心道德价值观的方式，包括个人和集体福利、社会伸张正义，保护弱势群体，尊重个人的自主权和社区的利益。履行这些责任需要一支多样化的、训练有素的干部队伍跨学科学者准备批判性地和尊重地与深刻的基因组技术带来的伦理、法律和社会挑战。响应这一需求，宾夕法尼亚大学伦理、法律和社会领域博士后培训计划的基本目标遗传学和基因组学的含义(ELSI)是让受训者为成功做好准备， ELSI研究领域的独立调查人员。该计划位于佩雷尔曼医学院医学伦理和卫生政策系，威尔通过三个核心组成部分实现这一目标：1)指导原创研究，从而实现高影响经验性和概念性学术出版物；2)个性化教学培训在适当的情况下，包括医学伦理学硕士学位；以及3)强化为职业发展做好准备。学员将以研究员身份参加，为期三年。一个杰出的项目教员，由13名经验丰富的ELSI学者和导师组成，佩雷尔曼医学院、艺术学院和科学学院和宾夕法尼亚大学凯里法学院将担任培训学员的导师。受训人员将出席并参加医德与卫生政策系的每月进行中的工作和研讨会系列，参加广泛的研讨会和整个大学的会议集中在基因医学和科学以及伦理、法律、经济和卫生政策，并出席国家会议。受训人员还将通过跟踪专家遗传学家和顾问获得遗传医学的机会来自成人、儿科和生殖遗传学实践的全光谱。最后，受训人员将担任宾夕法尼亚大学机构审查委员会(IRBs)的成员之一，负责审查ELSI- 相关研究。该计划将确保尽可能全面的纪律和通过广泛、有针对性地向不同和学术团体的代表性不足。