Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics
Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics
批准号:
10622560
负责人:
Steven Joffe
金额:
$26.63万
依托单位国家:
美国
项目类别:
财政年份:
2017
资助国家:
美国
项目状态:
未结题
起止时间:
2017-06-07 至 2027-05-31
中文摘要
点击翻译按钮获取中文摘要
英文摘要
Rapid advances in genomic technologies are transforming our understandings of both human
health and human history. These technologies also promise unprecedented power to intervene
on the bodies of individuals with or at risk of disease and even to alter the identities or futures of
individuals not yet born. Such knowledge and power imply immense responsibility to use them
in ways that promote core ethical values, including individual and collective welfare, social
justice, protection of the vulnerable, and respect for both the autonomy of persons and the
interests of communities. Fulfilling these responsibilities requires a diverse, highly trained cadre
of interdisciplinary scholars prepared to engage critically and respectfully with the profound
ethical, legal and social challenges raised by genomic technologies. Responding to this need,
the fundamental goal of the Penn Postdoctoral Training Program in the Ethical, Legal and Social
Implications (ELSI) of Genetics and Genomics is to prepare trainees for success as creative,
independent investigators in the field of ELSI research. The program, housed within the
Department of Medical Ethics and Health Policy at the Perelman School of Medicine, will
achieve this goal through three core components: 1) mentored original research leading to high-
impact empirical and conceptual scholarly publications; 2) individualized didactic training
including, when appropriate, a Master of Science in Medical Ethics degree; and 3) intensive
career development preparation. Trainees will participate as fellows for three years. An
outstanding program faculty, consisting of 13 experienced ELSI scholars and mentors with
appointments in departments at the Perelman School of Medicine, the School of Arts and
Sciences, and the Penn Carey Law School, will serve as preceptors to program trainees.
Trainees will present at and participate in the Department of Medical Ethics and Health Policy’s
monthly works-in-progress and seminar series, attend a wide range of seminars and
conferences across the University focused on genetic medicine and science as well as on
ethics, law, economics and health policy, and present at national meetings. Trainees will also
gain exposure to genetic medicine through shadowing expert geneticists and counselors drawn
from the full spectrum of adult, pediatric and reproductive genetics practice. Finally, trainees will
serve as members of one of the UPenn institutional review boards (IRBs) that review ELSI-
related research. The program will ensure the fullest possible range of discipline and
background among enrolled trainees by extensive targeted outreach to diverse and
underrepresented academic communities.
期刊论文(41)
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DOI:
10.1080/15265161.2021.2013978
发表时间:
2022-03
期刊:
The American journal of bioethics : AJOB
影响因子:
--
作者:
[Callahan KP, Feudtner C]
通讯作者:
Feudtner C
DOI:
10.3390/children10040664
发表时间:
2023-03-31
期刊:
Children (Basel, Switzerland)
影响因子:
--
作者:
[]
通讯作者:
Public Engagement through Inclusive Deliberation: The Human Genome International Commission and Citizens' Juries.
通过包容性审议进行公众参与:人类基因组国际委员会和公民评审团。
DOI:
10.1080/15265161.2022.2146786
发表时间:
2023
期刊:
The American journal of bioethics : AJOB
影响因子:
--
作者:
[Scheinerman,Naomi]
通讯作者:
Scheinerman,Naomi
DOI:
10.1093/jlb/lsaa069
发表时间:
2020-01
期刊:
Journal of law and the biosciences
影响因子:
3.4
作者:
[Kalokairinou L, Zettler PJ, Nagappan A, Kyweluk MA, Wexler A]
通讯作者:
Wexler A
DOI:
10.1542/peds.2021-052130
发表时间:
2022-03-01
期刊:
Pediatrics
影响因子:
8
作者:
[Callahan KP, Flibotte J, Skraban C, Wild KT, Joffe S, Munson D, Feudtner C]
通讯作者:
Feudtner C
共 32 条
Randomized trial of universal vs. guideline-directed germline testing among young adults with cancer
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批准号:10596783
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项目类别:
-
资助金额:$14.36万
-
财政年份:2019
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负责人:Steven Joffe
-
依托单位:
Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics
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批准号:10411406
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项目类别:
-
资助金额:$46.03万
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财政年份:2017
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负责人:Steven Joffe
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依托单位:
The Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics
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批准号:9888383
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项目类别:
-
资助金额:$37.93万
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财政年份:2017
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负责人:Steven Joffe
-
依托单位:
Accountability and the Role of the Principal Investigator in Multicenter Trials
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批准号:8146028
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项目类别:
-
资助金额:$38.57万
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财政年份:2010
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负责人:Steven Joffe
-
依托单位:
Accountability and the Role of the Principal Investigator in Multicenter Trials
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批准号:8847051
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项目类别:
-
资助金额:$11.24万
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财政年份:2010
-
负责人:Steven Joffe
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依托单位:
Accountability and the Role of the Principal Investigator in Multicenter Trials
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批准号:8549989
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项目类别:
-
资助金额:$26.03万
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财政年份:2010
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负责人:Steven Joffe
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依托单位:
Returning Individual Genetic Results to Participants in Cohort Studies
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批准号:8819607
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项目类别:
-
资助金额:$5.8万
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财政年份:2009
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负责人:Steven Joffe
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依托单位:
Capacity of Children and Teens to Decide About Cancer Trials
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批准号:7798987
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项目类别:
-
资助金额:$18.5万
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财政年份:2009
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负责人:Steven Joffe
-
依托单位:
Returning Individual Genetic Results to Participants in Cohort Studies
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批准号:7696915
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项目类别:
-
资助金额:$46.78万
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财政年份:2009
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负责人:Steven Joffe
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依托单位:
Returning Individual Genetic Results to Participants in Cohort Studies
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批准号:8116582
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项目类别:
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资助金额:$41.38万
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财政年份:2009
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负责人:Steven Joffe
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依托单位:
Returning Individual Genetic Results to Participants in Cohort Studies
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批准号:7943131
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项目类别:
-
资助金额:$47.7万
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财政年份:2009
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负责人:Steven Joffe
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依托单位:
Capacity of Children and Teens to Decide About Cancer Trials
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批准号:7658484
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项目类别:
-
资助金额:$22.1万
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财政年份:2009
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负责人:Steven Joffe
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依托单位:
Compliance with adverse event reporting requirements in cancer clinical trials
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批准号:7284816
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项目类别:
-
资助金额:$24.78万
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财政年份:2006
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负责人:Steven Joffe
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依托单位:
Compliance with adverse event reporting requirements in cancer clinical trials
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批准号:7124548
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项目类别:
-
资助金额:$25.5万
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财政年份:2006
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负责人:Steven Joffe
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依托单位:
Ethical Challenges in Cancer Clinical Research
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批准号:6607225
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项目类别:
-
资助金额:$13.53万
-
财政年份:2002
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负责人:Steven Joffe
-
依托单位:
Ethical Challenges in Cancer Clinical Research
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批准号:6917193
-
项目类别:
-
资助金额:$15.74万
-
财政年份:2002
-
负责人:Steven Joffe
-
依托单位:
Ethical Challenges in Cancer Clinical Research
-
批准号:6435654
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项目类别:
-
资助金额:$13.53万
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财政年份:2002
-
负责人:Steven Joffe
-
依托单位:
Ethical Challenges in Cancer Clinical Research
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批准号:6779072
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项目类别:
-
资助金额:$13.54万
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财政年份:2002
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负责人:Steven Joffe
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依托单位:
Ethical Challenges in Cancer Clinical Research
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批准号:7102802
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项目类别:
-
资助金额:$15.74万
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财政年份:2002
-
负责人:Steven Joffe
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依托单位:
Survey and Data Management
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批准号:8790996
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项目类别:
-
资助金额:$19.27万
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财政年份:--
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负责人:Steven Joffe
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依托单位:
海外基金