Video intervention to improve dementia literacy and goal of care conversations for Black Americans

项目摘要 Danetta Sloan是健康，行为和社会部的助理科学家， 教育和专业经验，作为一个家庭护理临终关怀社会工作者，解决的需求， 患有晚期阿尔茨海默病的患者和家庭。她的长期目标是成为 以社区为基础的研究，以开发，翻译和实施基于证据的，真实的世界干预措施， 减少老年痴呆症护理和老年黑人美国人获得服务的不平等。这个奖项将确保斯隆医生 具有开发、实施和测试干预措施的知识、技能和经验， 社区能力，以改善早期诊断，获得和护理质量的美国黑人。斯隆博士 召集了一个具有专业知识的优秀导师团队，帮助她发展职业发展，并提供 培养在相关研究方法上的适应性、设计文化上的适切性、沟通能力的培养 干预，在黑人信仰社区实施和测试。尽管痴呆症信息的增长 和传播，美国黑人社区仍然经历晚期诊断和次优护理， 痴呆症护理提供者在疾病后期没有足够的知识参与护理目标 对话。 由于阿尔茨海默病相关性痴呆（ADRD）无法治愈，发病率和死亡率仍然很高 而美国黑人受到的影响不成比例，更有可能患有ADRD而不自知。这 该提案提出了解决阿尔茨海默病的国家计划的目标，以1）优化护理质量， 2）提高公众意识和参与度。这项建议将使个人掌握技能， 确定体征和症状，（提高痴呆症的健康知识）和护理沟通培训的目标 临床前诊断。目标3中的干预结果将为那些经历痴呆症的人提供 有机会自我倡导，参与研究，参与生活质量决策和推进 护理规划可行性、可接受性、理解性、满意度、干预与自我效能 参与护理目标对话的能力将得到评估。

PROJECT SUMMARY Danetta Sloan is an Assistant Scientist, in the Department of Health, Behavior and Society with education and professional experience as a homecare hospice Social Worker, addressing the needs of patients and families experiencing end stage Alzheimer’s disease. Her long-term goal is to become a leader in community-based research to develop, translate, and implement evidenced-based, real world interventions to reduce inequities in dementia care and access for Aging Black Americans. This award will ensure Dr. Sloan has the knowledge, skills, and experience to develop, implement and test interventions that build individual and community capacity to improve early diagnosis, access and quality of care to Black Americans. Dr. Sloan has convened an outstanding mentorship team with expertise to help develop her career development and provide training in the relevant research methods to adapt, design cultural appropriate, communication skill building intervention, to implement and test in the Black Faith community. Despite the growth in dementia information and dissemination, Black American communities still experience late diagnosis, and suboptimal care, engaging with dementia care providers later in the disease without adequate knowledge to participate in goal of care conversations. With no cure for Alzheimer’s Disease Related Dementias (ADRD), morbidity and mortality remain high and Black Americans are disproportionately impacted and more likely to have ADRD and be unaware. This proposal addresses goals of the National Plan to Address Alzheimer’s Disease to 1) optimize care quality and efficiency and 2) enhance public awareness and engagement. This proposal will equip individuals with skills to identify signs and symptoms, (increase health literacy in dementia) and goal of care communication training pre-clinical diagnosis. The outcome of the intervention in Aim 3, will afford those who experience dementia the opportunity to self-advocate, participate in research, and engage in quality of life decision-making and advance care planning. Feasibility, acceptability, comprehension and satisfaction, with the intervention and self-efficacy to engage in a goal of care conversation will be assessed.