Video intervention to improve dementia literacy and goal of care conversations for Black Americans

视频干预可提高美国黑人的痴呆症认知度和护理对话目标

• 批准号: 10427479
• 负责人: Danetta Elizabeth Hendricks Sloan
• 金额: $ 12.78万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-08-01 至 2027-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10427479
• 关键词: Address; Advance Care Planning; Advocate; African American; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Attitude; Award; Awareness; Benefits and Risks; Black American; Black Populations; Black race; Caring; Church; Cognitive; Communication; Communities; Complex; Comprehension; Conflict (Psychology); Decision Making; Dementia; Diagnosis; Disease; Distress; Early Diagnosis; Education; Educational Curriculum; Educational workshop; Ensure; Experimental Designs; Family; Focus Groups; Future; Goals; Growth; Health; Health Services Accessibility; Health behavior; Healthcare; High Prevalence; Home; Image; Individual; Information Dissemination; Intervention; Interview; Knowledge; Legal; Life; Literacy Programs; Manuscripts; Medical; Mentors; Mentorship; Modeling; Morbidity - disease rate; Network-based; Outcome; Patients; Persons; Phase; Population; Preparation; Quality of Care; Quality of life; Readiness; Research; Research Methodology; Research Personnel; Resources; Scientist; Self Efficacy; Services; Signs and Symptoms; Social Workers; Societies; Source; Testing; Time; Training; Translating; Treatment Efficacy; Trust; United States National Institutes of Health; Woman; Work; base; care providers; career; career development; caucasian American; clinical diagnosis; communication behavior; community barrier; community based research; decision-making capacity; dementia care; design; evidence base; experience; health literacy; hospice environment; implementation science; improved; literacy; loved ones; mortality; pre-clinical; preference; satisfaction; skills; skills training; surrogate decision maker; surrogate decision making; therapy design; uptake

PROJECT SUMMARY Danetta Sloan is an Assistant Scientist, in the Department of Health, Behavior and Society with education and professional experience as a homecare hospice Social Worker, addressing the needs of patients and families experiencing end stage Alzheimer’s disease. Her long-term goal is to become a leader in community-based research to develop, translate, and implement evidenced-based, real world interventions to reduce inequities in dementia care and access for Aging Black Americans. This award will ensure Dr. Sloan has the knowledge, skills, and experience to develop, implement and test interventions that build individual and community capacity to improve early diagnosis, access and quality of care to Black Americans. Dr. Sloan has convened an outstanding mentorship team with expertise to help develop her career development and provide training in the relevant research methods to adapt, design cultural appropriate, communication skill building intervention, to implement and test in the Black Faith community. Despite the growth in dementia information and dissemination, Black American communities still experience late diagnosis, and suboptimal care, engaging with dementia care providers later in the disease without adequate knowledge to participate in goal of care conversations. With no cure for Alzheimer’s Disease Related Dementias (ADRD), morbidity and mortality remain high and Black Americans are disproportionately impacted and more likely to have ADRD and be unaware. This proposal addresses goals of the National Plan to Address Alzheimer’s Disease to 1) optimize care quality and efficiency and 2) enhance public awareness and engagement. This proposal will equip individuals with skills to identify signs and symptoms, (increase health literacy in dementia) and goal of care communication training pre-clinical diagnosis. The outcome of the intervention in Aim 3, will afford those who experience dementia the opportunity to self-advocate, participate in research, and engage in quality of life decision-making and advance care planning. Feasibility, acceptability, comprehension and satisfaction, with the intervention and self-efficacy to engage in a goal of care conversation will be assessed.

项目概要 Danetta Sloan 是健康、行为和社会部的助理科学家 作为家庭护理临终关怀社会工作者的教育和专业经验，满足 患有晚期阿尔茨海默病的患者和家庭。她的长期目标是成为行业的领导者 基于社区的研究，以开发、翻译和实施基于证据的现实世界干预措施 减少老年黑人美国在痴呆症护理和获得服务方面的不平等。该奖项将确保斯隆博士 拥有开发、实施和测试干预措施的知识、技能和经验，以建立个人和 社区能力，以改善美国黑人的早期诊断、获取和护理质量。斯隆博士有 召集了一支具有专业知识的优秀导师团队，帮助她发展职业生涯并提供 相关研究方法适应、设计文化适当、沟通技能建设的培训 干预，在黑人信仰社区中实施和测试。尽管痴呆症信息不断增长 和传播，美国黑人社区仍然经历着晚期诊断和次优护理， 痴呆症护理提供者在疾病后期没有足够的知识参与护理目标 对话。 由于阿尔茨海默病相关痴呆症 (ADRD) 无法治愈，发病率和死亡率仍然很高 美国黑人受到的影响尤为严重，他们更有可能患有 ADRD 但却没有意识到。这 该提案提出了解决阿尔茨海默病国家计划的目标：1) 优化护理质量和 效率；2) 提高公众意识和参与度。该提案将使个人具备以下技能： 识别体征和症状（提高痴呆症的健康素养）和护理沟通培训的目标 临床前诊断。目标 3 的干预结果将为患有痴呆症的人提供帮助 自我倡导、参与研究、参与生活质量决策和进步的机会 护理计划。可行性、可接受性、理解性和满意度，以及干预和自我效能 将评估参与护理对话的目标。