Video intervention to improve dementia literacy and goal of care conversations for Black Americans

视频干预可提高美国黑人的痴呆症认知度和护理对话目标

• 批准号: 10672180
• 负责人: Danetta Elizabeth Hendricks Sloan
• 金额: $ 12.3万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-08-01 至 2027-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10672180
• 关键词: Acceleration; Address; Advance Care Planning; Advocate; African American; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Attitude; Award; Awareness; Behavior; Benefits and Risks; Black American; Black Populations; Black church; Black race; Caring; Church; Cognitive; Communication; Communities; Complex; Comprehension; Conflict (Psychology); Decision Making; Dementia; Diagnosis; Disease; Distress; Early Diagnosis; Education; Educational Curriculum; Educational workshop; Ensure; Experimental Designs; Faith; Family; Focus Groups; Future; Goals; Growth; Health; Healthcare; High Prevalence; Home; Hospice Care; Image; Individual; Inequity; Institution; Intervention; Interview; Knowledge; Legal; Life; Literacy Programs; Manuscripts; Medical; Mentors; Mentorship; Modeling; Morbidity - disease rate; Outcome; Patients; Persons; Phase; Population; Preparation; Quality of Care; Quality of life; Readiness; Research; Research Methodology; Research Personnel; Resources; Scientist; Self Efficacy; Services; Signs and Symptoms; Social Workers; Societies; Source; Testing; Training; Translating; Treatment Efficacy; Trust; United States National Institutes of Health; Woman; Work; acceptability and feasibility; care providers; career; career development; caucasian American; communication behavior; community based research; decision-making capacity; dementia care; design; evidence base; experience; health literacy; implementation science; improved; intervention refinement; literacy; loved ones; mortality; patient home care; pre-clinical; preference; satisfaction; skills; skills training; surrogate decision maker; surrogate decision making; therapy design; uptake

PROJECT SUMMARY Danetta Sloan is an Assistant Scientist, in the Department of Health, Behavior and Society with education and professional experience as a homecare hospice Social Worker, addressing the needs of patients and families experiencing end stage Alzheimer’s disease. Her long-term goal is to become a leader in community-based research to develop, translate, and implement evidenced-based, real world interventions to reduce inequities in dementia care and access for Aging Black Americans. This award will ensure Dr. Sloan has the knowledge, skills, and experience to develop, implement and test interventions that build individual and community capacity to improve early diagnosis, access and quality of care to Black Americans. Dr. Sloan has convened an outstanding mentorship team with expertise to help develop her career development and provide training in the relevant research methods to adapt, design cultural appropriate, communication skill building intervention, to implement and test in the Black Faith community. Despite the growth in dementia information and dissemination, Black American communities still experience late diagnosis, and suboptimal care, engaging with dementia care providers later in the disease without adequate knowledge to participate in goal of care conversations. With no cure for Alzheimer’s Disease Related Dementias (ADRD), morbidity and mortality remain high and Black Americans are disproportionately impacted and more likely to have ADRD and be unaware. This proposal addresses goals of the National Plan to Address Alzheimer’s Disease to 1) optimize care quality and efficiency and 2) enhance public awareness and engagement. This proposal will equip individuals with skills to identify signs and symptoms, (increase health literacy in dementia) and goal of care communication training pre-clinical diagnosis. The outcome of the intervention in Aim 3, will afford those who experience dementia the opportunity to self-advocate, participate in research, and engage in quality of life decision-making and advance care planning. Feasibility, acceptability, comprehension and satisfaction, with the intervention and self-efficacy to engage in a goal of care conversation will be assessed.

项目总结 丹妮塔·斯隆是健康、行为和社会部的助理科学家 作为一名家庭护理临终关怀社会工作者的教育和专业经验，满足 患有终末期阿尔茨海默病的患者和家庭。她的长期目标是成为 以社区为基础的研究，以开发、转换和实施基于证据的真实世界干预措施 减少老年美国黑人在痴呆症护理和获取方面的不平等。这个奖项将确保斯隆博士 拥有开发、实施和测试干预措施的知识、技能和经验，从而建立个人和 社区能力，以改善对美国黑人的早期诊断、获得机会和护理质量。斯隆医生已经 召集了一支具有专业知识的优秀导师团队，帮助她发展职业发展并提供 培训适应相关研究方法，设计文化得体，沟通能力养成 干预，在黑人信仰社区实施和测试。尽管痴呆症信息的增长 和传播，美国黑人社区仍然经历着较晚的诊断，以及次优的护理， 随着痴呆症护理提供者在疾病后期没有足够的知识来参与护理目标 交谈。 由于无法治愈阿尔茨海默病相关痴呆(ADRD)，发病率和死亡率仍然居高不下 而美国黑人受到的影响更大，更有可能患有ADRD，而且没有意识到。这 该提案涉及应对阿尔茨海默氏症的国家计划的目标：1)优化医疗质量和 效率；2)提高公众意识和参与度。这项提议将使个人具备以下技能 识别体征和症状(提高痴呆症患者的健康素养)和护理沟通培训的目标 临床前诊断。AIM 3的干预结果将为那些患有痴呆症的人提供 自我倡导、参与研究、参与生活质量决策和推进的机会 护理计划。干预的可行性、可接受性、理解性和满意度与自我效能感 参与关怀对话的目标将被评估。