Enhancing shared decision-making to prompt and guide individualized care for people with Alzheimer's Disease and Diabetes

加强共同决策，以促进和指导对阿尔茨海默病和糖尿病患者的个性化护理

• 批准号: 10429517
• 负责人: April Savoy
• 金额: $ 13.27万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-15 至 2027-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10429517
• 关键词: Active Learning; Adverse event; Age-Years; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Awareness; Behavior Therapy; Behavioral Model; Caregivers; Caring; Cellular Phone; Cessation of life; Clinical; Clinical Research; Clinical Trials; Cognitive; Coma; Communities; Community Services; Comprehension; Computers; Cultural Backgrounds; Data; Decision Making; Detection; Development; Diabetes Mellitus; Diagnostic; Effectiveness; Elderly; Engineering; Event; Foundations; Funding; Future; Glucose; Goals; Guidelines; Health; Health system; Healthcare; Hospitalization; Human; Hypoglycemia; Ideal 1; Impaired cognition; Incidence; Indiana; Information Technology; Institutes; Interview; K-Series Research Career Programs; Knowledge; Mentored Research Scientist Development Award; Mentors; Mentorship; Methods; Modeling; National Institute on Aging; Observational Study; Outcome; Participant; Patient Selection; Patients; Perception; Persons; Pharmaceutical Preparations; Population; Positioning Attribute; Pragmatic clinical trial; Primary Health Care; Process; Prognosis; Quality of life; Reporting; Research; Research Infrastructure; Research Personnel; Research Project Grants; Research Training; Resources; Risk; Scientist; Serious Adverse Event; Specialist; Technology; Training; Underrepresented Minority; United States National Institutes of Health; Universities; Work; adverse event risk; base; care delivery; care outcomes; caregiver education; collaborative care; collaboratory; comorbidity; design; detector; experience; glucose monitor; high risk; implementation science; improved; information display; innovative technologies; insight; interdisciplinary approach; iterative design; knowledge base; learning strategy; member; monitoring device; multidisciplinary; novel; personalized care; pilot trial; prevent; prototype; psychosocial; recruit; risk sharing; satisfaction; shared decision making; skills; socioeconomics; theories; therapy design; usability; user centered design; wearable device; wireless transmission; women faculty

PROJECT ABSTRACT This Mentored Research Scientist Career Development Award (K01) will support my pursuit of becoming an independently funded investigator in Alzheimer’s and aging research. My proposal features a systematic approach to a comprehensive training plan including mentorship, didactic and experiential learning activities, and professional development opportunities, as well as a complementary research project establishing foundational evidence for my research agenda centered on improving care of people with Alzheimer’s disease, related dementias, and diabetes mellitus (ADRD-DM). My training goals are designed to attain essential advanced knowledge and skills pertaining to 1) ADRD collaborative care and research, 2) DM collaborative care and research, and 3) health systems and clinical trials. My research and training will take advantage of the immense resources and expertise at supporting centers across Indiana University, the Regenstrief Institute, and Eskenazi Health, including the National Institute on Aging-funded Institute of Alzheimer’s Disease Research Center and the IMPACT Collaboratory, and will be conducted under the mentorship of a multidisciplinary team of ADRD, DM, and implementation science experts, who have clinical and research experience in creating innovative technologies to improve care delivery in ADRD-DM populations. Building on my expertise in human factors engineering, the research project will examine how use of information technology can increase awareness of hypoglycemia and shared decisions about treatment options among people with ADRD-DM and their caregivers and primary care clinicians. I will use a participatory design process to develop assistive information technology that leverages continuous glucose monitoring devices. In this experiential learning opportunity, I will gain insights into patients’ and caregivers’ perceptions and experiences, clinicians’ information gaps and other barriers to individualizing ADRD-DM treatment, and the design of technology to facilitate shared decision-making, while expanding the knowledge base on these aspects of health care. Furthermore, I intend to increase representation of diverse socioeconomical and cultural backgrounds among ADRD research participants and scientists. This K01 award will uniquely position me to bring together human factors and ADRD-DM research to design and implement technology to assess and improve the health of people with ADRD.

项目摘要 这个导师研究科学家职业发展奖(K01)将支持我成为一名 独立资助的阿尔茨海默氏症和衰老研究的调查员。我的提案以系统化的 全面培训计划的方法，包括指导、授课和体验式学习活动， 和职业发展机会，以及建立一个补充性研究项目 我的研究议程的基础证据集中在改善阿尔茨海默病患者的护理上， 相关痴呆和糖尿病(ADRD-DM)。我的培训目标是为了达到基本 1)ADRD协作式护理和研究、2)DM协作式护理和研究方面的高级知识和技能 护理和研究，以及3)卫生系统和临床试验。我的研究和培训将利用 印第安纳大学、雷根斯特里夫大学支持中心的大量资源和专业知识 和Eskenazi Health，包括国家老龄研究所资助的阿尔茨海默病研究所 研究中心和Impact合作实验室，并将在 由ADRD、DM和实施科学专家组成的多学科团队，他们拥有临床和研究 在创造创新技术以改善ADRD-DM人群的护理服务方面的经验。在基础上建设 我在人因工程方面的专长，这个研究项目将考察如何利用信息 技术可以提高人们对低血糖的认识，并分享关于治疗方案的决定 ADRD-DM患者及其照顾者和初级保健临床医生。我将使用参与式设计 开发利用连续血糖监测设备的辅助信息技术的过程。在……里面 这次体验式学习机会，我将深入了解患者和照顾者的看法和 ADRD-DM个体化治疗的经验、临床医生的信息差距和其他障碍，以及 设计技术以促进共享决策，同时在此基础上扩展知识库 医疗保健的各个方面。此外，我打算增加不同的社会经济和 ADRD研究参与者和科学家的文化背景。这一K01奖项将独一无二地 我要把人的因素和ADRD-DM研究结合起来，设计并实施技术评估 并改善ADRD患者的健康状况。