Enhancing shared decision-making to prompt and guide individualized care for people with Alzheimer's Disease and Diabetes

加强共同决策，以促进和指导对阿尔茨海默病和糖尿病患者的个性化护理

• 批准号: 10429517
• 负责人: April Savoy
• 金额: $ 13.27万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-15 至 2027-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10429517
• 关键词: Active Learning; Adverse event; Age-Years; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Awareness; Behavior Therapy; Behavioral Model; Caregivers; Caring; Cellular Phone; Cessation of life; Clinical; Clinical Research; Clinical Trials; Cognitive; Coma; Communities; Community Services; Comprehension; Computers; Cultural Backgrounds; Data; Decision Making; Detection; Development; Diabetes Mellitus; Diagnostic; Effectiveness; Elderly; Engineering; Event; Foundations; Funding; Future; Glucose; Goals; Guidelines; Health; Health system; Healthcare; Hospitalization; Human; Hypoglycemia; Ideal 1; Impaired cognition; Incidence; Indiana; Information Technology; Institutes; Interview; K-Series Research Career Programs; Knowledge; Mentored Research Scientist Development Award; Mentors; Mentorship; Methods; Modeling; National Institute on Aging; Observational Study; Outcome; Participant; Patient Selection; Patients; Perception; Persons; Pharmaceutical Preparations; Population; Positioning Attribute; Pragmatic clinical trial; Primary Health Care; Process; Prognosis; Quality of life; Reporting; Research; Research Infrastructure; Research Personnel; Research Project Grants; Research Training; Resources; Risk; Scientist; Serious Adverse Event; Specialist; Technology; Training; Underrepresented Minority; United States National Institutes of Health; Universities; Work; adverse event risk; base; care delivery; care outcomes; caregiver education; collaborative care; collaboratory; comorbidity; design; detector; experience; glucose monitor; high risk; implementation science; improved; information display; innovative technologies; insight; interdisciplinary approach; iterative design; knowledge base; learning strategy; member; monitoring device; multidisciplinary; novel; personalized care; pilot trial; prevent; prototype; psychosocial; recruit; risk sharing; satisfaction; shared decision making; skills; socioeconomics; theories; therapy design; usability; user centered design; wearable device; wireless transmission; women faculty

PROJECT ABSTRACT This Mentored Research Scientist Career Development Award (K01) will support my pursuit of becoming an independently funded investigator in Alzheimer’s and aging research. My proposal features a systematic approach to a comprehensive training plan including mentorship, didactic and experiential learning activities, and professional development opportunities, as well as a complementary research project establishing foundational evidence for my research agenda centered on improving care of people with Alzheimer’s disease, related dementias, and diabetes mellitus (ADRD-DM). My training goals are designed to attain essential advanced knowledge and skills pertaining to 1) ADRD collaborative care and research, 2) DM collaborative care and research, and 3) health systems and clinical trials. My research and training will take advantage of the immense resources and expertise at supporting centers across Indiana University, the Regenstrief Institute, and Eskenazi Health, including the National Institute on Aging-funded Institute of Alzheimer’s Disease Research Center and the IMPACT Collaboratory, and will be conducted under the mentorship of a multidisciplinary team of ADRD, DM, and implementation science experts, who have clinical and research experience in creating innovative technologies to improve care delivery in ADRD-DM populations. Building on my expertise in human factors engineering, the research project will examine how use of information technology can increase awareness of hypoglycemia and shared decisions about treatment options among people with ADRD-DM and their caregivers and primary care clinicians. I will use a participatory design process to develop assistive information technology that leverages continuous glucose monitoring devices. In this experiential learning opportunity, I will gain insights into patients’ and caregivers’ perceptions and experiences, clinicians’ information gaps and other barriers to individualizing ADRD-DM treatment, and the design of technology to facilitate shared decision-making, while expanding the knowledge base on these aspects of health care. Furthermore, I intend to increase representation of diverse socioeconomical and cultural backgrounds among ADRD research participants and scientists. This K01 award will uniquely position me to bring together human factors and ADRD-DM research to design and implement technology to assess and improve the health of people with ADRD.

项目摘要 这个指导研究科学家职业发展奖（K01）将支持我成为一个 独立资助的阿尔茨海默氏症和衰老研究调查员。我的建议包括一个系统的 全面培训计划的方法，包括指导、教学和体验式学习活动， 和专业发展机会，以及一个补充研究项目，建立 我的研究议程的基础证据集中在改善阿尔茨海默病患者的护理上， 相关痴呆和糖尿病（ADRD-DM）。我的训练目标是达到 先进的知识和技能有关1）ADRD合作护理和研究，2）DM合作 护理和研究，以及3）卫生系统和临床试验。我的研究和训练将利用 在整个印第安纳州大学，Regenstrief支持中心的巨大资源和专业知识 研究所和Eskenazi健康，包括国家老龄化研究所资助的阿尔茨海默病研究所 研究中心和IMPACT合作实验室，并将在一个指导下进行 由ADRD、DM和实施科学专家组成的多学科团队， 在创造创新技术以改善ADRD-DM人群的护理服务方面的经验。基础上 我在人因工程方面的专业知识，研究项目将研究如何使用信息 技术可以提高对低血糖的认识， ADRD-DM患者及其护理人员和初级保健医生。我将采用参与式设计 开发利用持续葡萄糖监测设备的辅助信息技术的过程。在 通过这次体验式学习机会，我将深入了解患者和护理人员的看法， 经验，临床医生的信息差距和其他个体化ADRD-DM治疗的障碍，以及 设计技术，以促进共同决策，同时扩大知识基础， 保健方面。此外，我打算增加不同社会经济和 ADRD研究参与者和科学家的文化背景。这个K01奖项将独特地定位于 我把人为因素和ADRD-DM研究结合起来，设计和实施技术，以评估 并改善ADRD患者的健康状况。