Enhancing shared decision-making to prompt and guide individualized care for people with Alzheimer's Disease and Diabetes

加强共同决策，以促进和指导对阿尔茨海默病和糖尿病患者的个性化护理

• 批准号: 10429517
• 负责人: April Savoy
• 金额: $ 13.27万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-15 至 2027-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10429517
• 关键词: Active Learning; Adverse event; Age-Years; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Awareness; Behavior Therapy; Behavioral Model; Caregivers; Caring; Cellular Phone; Cessation of life; Clinical; Clinical Research; Clinical Trials; Cognitive; Coma; Communities; Community Services; Comprehension; Computers; Cultural Backgrounds; Data; Decision Making; Detection; Development; Diabetes Mellitus; Diagnostic; Effectiveness; Elderly; Engineering; Event; Foundations; Funding; Future; Glucose; Goals; Guidelines; Health; Health system; Healthcare; Hospitalization; Human; Hypoglycemia; Ideal 1; Impaired cognition; Incidence; Indiana; Information Technology; Institutes; Interview; K-Series Research Career Programs; Knowledge; Mentored Research Scientist Development Award; Mentors; Mentorship; Methods; Modeling; National Institute on Aging; Observational Study; Outcome; Participant; Patient Selection; Patients; Perception; Persons; Pharmaceutical Preparations; Population; Positioning Attribute; Pragmatic clinical trial; Primary Health Care; Process; Prognosis; Quality of life; Reporting; Research; Research Infrastructure; Research Personnel; Research Project Grants; Research Training; Resources; Risk; Scientist; Serious Adverse Event; Specialist; Technology; Training; Underrepresented Minority; United States National Institutes of Health; Universities; Work; adverse event risk; base; care delivery; care outcomes; caregiver education; collaborative care; collaboratory; comorbidity; design; detector; experience; glucose monitor; high risk; implementation science; improved; information display; innovative technologies; insight; interdisciplinary approach; iterative design; knowledge base; learning strategy; member; monitoring device; multidisciplinary; novel; personalized care; pilot trial; prevent; prototype; psychosocial; recruit; risk sharing; satisfaction; shared decision making; skills; socioeconomics; theories; therapy design; usability; user centered design; wearable device; wireless transmission; women faculty

PROJECT ABSTRACT This Mentored Research Scientist Career Development Award (K01) will support my pursuit of becoming an independently funded investigator in Alzheimer’s and aging research. My proposal features a systematic approach to a comprehensive training plan including mentorship, didactic and experiential learning activities, and professional development opportunities, as well as a complementary research project establishing foundational evidence for my research agenda centered on improving care of people with Alzheimer’s disease, related dementias, and diabetes mellitus (ADRD-DM). My training goals are designed to attain essential advanced knowledge and skills pertaining to 1) ADRD collaborative care and research, 2) DM collaborative care and research, and 3) health systems and clinical trials. My research and training will take advantage of the immense resources and expertise at supporting centers across Indiana University, the Regenstrief Institute, and Eskenazi Health, including the National Institute on Aging-funded Institute of Alzheimer’s Disease Research Center and the IMPACT Collaboratory, and will be conducted under the mentorship of a multidisciplinary team of ADRD, DM, and implementation science experts, who have clinical and research experience in creating innovative technologies to improve care delivery in ADRD-DM populations. Building on my expertise in human factors engineering, the research project will examine how use of information technology can increase awareness of hypoglycemia and shared decisions about treatment options among people with ADRD-DM and their caregivers and primary care clinicians. I will use a participatory design process to develop assistive information technology that leverages continuous glucose monitoring devices. In this experiential learning opportunity, I will gain insights into patients’ and caregivers’ perceptions and experiences, clinicians’ information gaps and other barriers to individualizing ADRD-DM treatment, and the design of technology to facilitate shared decision-making, while expanding the knowledge base on these aspects of health care. Furthermore, I intend to increase representation of diverse socioeconomical and cultural backgrounds among ADRD research participants and scientists. This K01 award will uniquely position me to bring together human factors and ADRD-DM research to design and implement technology to assess and improve the health of people with ADRD.

项目摘要