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Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease

建立医疗之家，为患有镰状细胞病的青少年和成人提供循证护理

基本信息

批准号：
10436589
负责人：
Robert William Gibson
金额：
$ 17.66万
依托单位：
AUGUSTA UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-08-05 至 2024-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10436589
关键词：
Acute Acute pain management Address Adherence Adolescent Adoption Adult Age Benefits and Risks Caring Child Childhood Chronic Clinical Management Communities Consent Consolidated Framework for Implementation Research Country Data Development Diagnosis Disease Dissemination and Implementation Education Emergency Department Physician FDA approved Faculty Focus Groups Funding Future Goals Guidelines Health Care Costs Healthcare Systems Hematology Home Individual Infant Care Intervention Interview Letters Life Expectancy Location Medical Medical center Modeling Modernization National Heart, Lung, and Blood Institute Needs Assessment Neighborhoods Neonatal Screening Oncology Organ Outcome Pain Participant Patients Penicillins Phase Population Positioning Attribute Practice Guidelines Primary Health Care Process Provider Recording of previous events Registries Research Research Project Grants Rural Sickle Cell Sickle Cell Anemia Site Stigmatization Surveys Teenagers Underinsured Underserved Population Uninsured Universities base burden of illness care providers chronic pain clinical care cohort community involvement design disease natural history disease registry education planning effective therapy eligible participant evidence base experience health care settings hydroxyurea implementation intervention implementation science improved interest member outreach clinics participant enrollment patient oriented patient population patient registry practice setting prophylactic recruit response treatment guidelines

项目摘要

PROJECT SUMMARY Life expectancy for patients with sickle cell disease (SCD) has increased from teens to late forties over the last 30 years. The increase in the number of adults with the disease has created new unmet needs, due to the heavy disease burden and organ damage which increase with age. This is confounded by the inability of the health care system to adequately meet the needs of this population, and thus has resulted in disparities and increase in health care costs. This project attempts to address these problems by creating medical homes and medical neighborhoods in four different settings throughout rural Georgia, which has the fourth largest population of patients with SCD in the country. This will be achieved by building on the GRU Sickle Cell Center's experience in taking care of SCD patients through its outreach clinics, and more recently through its partnership with primary care practices and Hematology/Oncology practices at different locations in the state. In the first two years of the project (Phase I) a needs assessment of patients, communities, and providers will be carried out and a Community Advisory Council will be established. The results of this needs assessment will be used to develop and implement interventions to establish medical homes and neighborhoods to improve evidence-based care for SCD patients in Phase II.

项目总结