Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease

项目摘要 镰状细胞病（SCD）患者的预期寿命已从十几岁增加到晚期。 在过去的30年里，患有这种疾病的成年人数量的增加造成了 新的未满足的需求，由于沉重的疾病负担和器官损伤， 年龄这是混淆的医疗保健系统无法充分满足需求， 这一人口的贫困，从而导致了不平等和医疗保健费用的增加。这 该项目试图通过建立医疗之家和医疗设施来解决这些问题。 格鲁吉亚农村的四个不同的社区，其中有第四大 全国SCD患者人群。这将通过在GRU的基础上实现 镰状细胞中心通过其外展诊所照顾SCD患者的经验，以及 最近，通过与初级保健实践和血液学/肿瘤学的合作， 在全国不同的地方进行实践。在项目的头两年（第一阶段）， 将对患者、社区和提供者进行评估， 将设立咨询理事会。需求评估的结果将用于 制定和实施干预措施，建立医疗之家和社区，以改善 第二阶段SCD患者的循证护理。

PROJECT SUMMARY Life expectancy for patients with sickle cell disease (SCD) has increased from teens to late forties over the last 30 years. The increase in the number of adults with the disease has created new unmet needs, due to the heavy disease burden and organ damage which increase with age. This is confounded by the inability of the health care system to adequately meet the needs of this population, and thus has resulted in disparities and increase in health care costs. This project attempts to address these problems by creating medical homes and medical neighborhoods in four different settings throughout rural Georgia, which has the fourth largest population of patients with SCD in the country. This will be achieved by building on the GRU Sickle Cell Center's experience in taking care of SCD patients through its outreach clinics, and more recently through its partnership with primary care practices and Hematology/Oncology practices at different locations in the state. In the first two years of the project (Phase I) a needs assessment of patients, communities, and providers will be carried out and a Community Advisory Council will be established. The results of this needs assessment will be used to develop and implement interventions to establish medical homes and neighborhoods to improve evidence-based care for SCD patients in Phase II.