Community Engagement/Outreach Core

这一核心包括四个项目，每个项目都涉及与镰状细胞社区的外联和互动。本核心中所述的项目涉及在册种姓社区参与制定和评估有效的治疗/干预措施，以减少在治疗SCD方面的健康差距。与SC社区的互动对于每个项目的成功都是不可或缺的。这些项目是：1）在急诊室为疼痛危象提供充分的治疗，2）为患有SCD的年轻人从儿科转向成人护理的医疗过渡做准备，3）为患有SCD的患者建立和评估高级医疗之家，以及4）为患有SCD的高中年龄的年轻人提供科学营/大学体验，以了解科学和科学家开发SCD治疗方法。

This core contains four projects, each of which involves outreach and interaction with the Sickle Cell community. The projects described in this core involve the SC community in both the development and evaluation of effective treatments/interventions that reduce health disparities in the treatment of SCD. The interaction with the SC community is integral to the success of each of these projects. The projects are:1) The provision of adequate treatment for pain crisis in the ER, 2) Health care transition preparation for young people with SCD moving from pediatric to adult oriented care, 3) The establishment and evaluation of an Advance Medical Home for patients with SCD and 4) A science camp/university experience for high school age young people with SCD to learn about the science and scientists developing treatments for SCD.