Community Engagement/Outreach Core

这一核心包括四个项目，每个项目都涉及与镰刀细胞社区的外联和互动。这一核心中描述的项目让SC社区参与制定和评估有效的治疗/干预措施，以减少SCD治疗中的健康差距。与SC社区的互动对每个项目的成功都是不可或缺的。这些项目是：1)为急诊室的疼痛危机提供适当的治疗；2)为患有SCD的年轻人从儿科转向成人护理做好医疗过渡准备；3)建立和评估SCD患者的高级医疗之家；以及4)为SCD的高中年龄年轻人提供科学营/大学体验，以了解SCD的科学知识，并让科学家开发SCD的治疗方法。

This core contains four projects, each of which involves outreach and interaction with the Sickle Cell community. The projects described in this core involve the SC community in both the development and evaluation of effective treatments/interventions that reduce health disparities in the treatment of SCD. The interaction with the SC community is integral to the success of each of these projects. The projects are:1) The provision of adequate treatment for pain crisis in the ER, 2) Health care transition preparation for young people with SCD moving from pediatric to adult oriented care, 3) The establishment and evaluation of an Advance Medical Home for patients with SCD and 4) A science camp/university experience for high school age young people with SCD to learn about the science and scientists developing treatments for SCD.