Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease

建立医疗之家，为患有镰状细胞病的青少年和成人提供循证护理

• 批准号: 10005725
• 负责人: Robert William Gibson
• 金额: $ 2.85万
• 依托单位: AUGUSTA UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-08-05 至 2022-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10005725
• 关键词: Academic Medical Centers; Address; Adolescent; Adult; Advisory Committees; Authorship; Award; Behavior; Caring; Client satisfaction; Clinical; Clinical Research; Communication; Community Health Aides; Development; Development Plans; Family; Gambling; Health Personnel; Home environment; Intervention; Interview; Journals; Manuscripts; Medical; Mentors; Minority; Modeling; National Heart, Lung, and Blood Institute; Outcome; Parents; Patient Care Team; Preparation; Protocols documentation; Publications; Reporting; Research Project Grants; Research Proposals; Self Care; Sickle Cell; Sickle Cell Anemia; Structure; Training; Universities; Work; care coordination; career development; community based participatory research; evidence base; member; patient oriented; symposium

Scope of Work: Tilicia L. Mayo-Gamble Proposal Title: Minority Supplement Sponsor: National Heart, Lung, and Blood Institute Task: Dr. Mayo-Gamble (Georgia Southern University), will conduct supplemental aims to Dr. Abdullah Kutlar’s (Augusta University Medical Center) parent award 5U01HL134004-03, Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease. Dr. Mayo-Gamble will: 1) assess the feasibility of integrating a community health worker (CHW) into a PCCC team for SCD; 2) evaluate the efficacy of enhanced care coordination using an integrated PCCC-CHW model, on patient satisfaction with medical care, self-care behaviors, and clinical outcomes; and 3) determine the acceptability of the intervention and protocol among patients and care team members through semi-structured interviews. Dr. Mayo-Gamble will work closely with her mentors (Dr. Kutlar and Dr. Telfair) to implement her career development plan and execute the research project. She will also engage in didactic and experiential training in sickle cell community-based and clinical research, participate in professional development activities, and conduct the aims of the supplemental research proposal through the guidance of her mentoring team and scientific advisory committee. Dr. Mayo-Gamble will be responsible for maintaining communication with mentors and all stakeholders. Deliverables: Dr. Mayo-Gamble will contribute authorship in the preparation of journal manuscripts for publication in interdisciplinary journals and presentation at a professional conference. She will also contribute to reports to be submitted to NHLBI including the mid- project report and the final project report.

工作范围：Tilicia L.马约甘布尔 标题：少数民族补助金 主办单位：National Heart，Lung，and Blood Institute 任务：梅奥甘布尔博士（格鲁吉亚南方大学），将进行补充目标博士。 阿卜杜拉·库特拉尔（奥古斯塔大学医学中心）的父母奖5 U 01 HL 134004 -03， 为青少年和成年人提供循证护理的医疗之家 镰状细胞病梅奥甘布尔博士将：1）评估整合社区的可行性 2）评估加强护理的有效性 协调使用综合PCCC-CHW模型，对患者的医疗服务满意度， 自我护理行为和临床结果; 3）确定干预的可接受性 和协议之间的病人和护理团队成员通过半结构化的采访。博士 Mayo Gamble将与她的导师（Kutlar博士和Telfair博士）密切合作， 职业发展计划和执行研究项目。她还将从事教学和 镰状细胞社区和临床研究的体验式培训，参加 专业发展活动，并进行补充研究的目的 在她的指导小组和科学咨询委员会的指导下，博士 Mayo Gamble将负责与导师保持沟通， 持份者 候选人：梅奥-甘布尔博士将在期刊的编写中担任作者 在跨学科期刊上发表的手稿和在专业会议上的演讲 会议她还将为提交给NHLBI的报告做出贡献，包括中期报告。 项目报告和最终项目报告。