GamePlan4Care: Web-based Delivery System for REACH II

摘要 对痴呆症患者(PWD)的日常护理和监督被定义为“密集护理”和 与沉重的日常负担和对照顾者生活质量的总体威胁有关。尽管有证据 这表明，负面后果可以通过基于社区的支持、这些服务来补救 由于将干预措施转变为服务的系统性挑战，仍然对照顾者有暗示作用。本R01 应用程序提供GamePlan4Care(GP4C)的概念验证，这是基于Web的技术增强 用于增强阿尔茨海默氏症照顾者健康II(REACH II)的资源的传统交付格式。GP4C 自动化REACH II的关键组件，同时保持照顾者在技能培养方面的积极参与 根据家庭照顾者的独特需求提供灵活的服务。目标1 将把目前的概念验证GP4C推进到REACH II干预的可行交付系统中。 开发活动将以用户界面/用户体验(UI/UX)测试和LIVE集成为指导 来自痴呆症护理专家(即，干预者)的支持。开发活动将由以下人员进行 贝勒·斯科特和怀特健康(BSWH)数字健康办公室与社区合作 组织、32名家庭照顾者和5名外部顾问，在GP4C研究小组的监督下 第一年.目标2将比较GP4C和一个基于教育的在线网站GP4C-Education的相对影响 关于一系列家庭照顾者的结果。家庭照顾者将被随机分为两种情况之一 并将在基线和6个月的随访时完成一组评估。主要结果衡量标准 将包括REACH II生活质量结果的5个领域测量。次要结果将包括 照顾者的自我效能、修正的照顾者压力指数(MCSI)和照顾者的积极方面。三 以社区为基础的合作伙伴将指定一名“GP4C冠军”来促进240名家庭照顾者的招募 能够使用计算机并报告经常使用互联网的人。GP4C和GP4C的使用-教育和联系 与集散控制系统配合使用时，系统将记录为执行数据。GP4C将填补护理者支持方面的关键空白 服务作为一种基于证据、支持互联网的系统，能够提供即时、量身定制的教育和 为护理人员提供技能培训，他们可以通过电话或基于网络的视频从分布式控制系统获得实时支持。

Abstract Daily care and supervision of a person living with dementia (PWD) has been defined as “intense caregiving” and is associated with significant daily burdens and an overall threat to the caregiver’s quality of life. Despite evidence suggesting that negative consequence can be remediated with community-based supports, those services remain allusive to caregivers due to the systemic challenges of turning interventions into services. This R01 application provides proof-of-concept of GamePlan4Care (GP4C), a web-based technology enhancement of the traditional delivery format used for Resources for Enhancing Alzheimer’s Caregiver Health II (REACH II). GP4C automates key components of REACH II while preserving active engagement of caregivers in skill-building exercises and provides flexible tailoring of services based on the unique needs of the family caregiver. AIM 1 will advance the current proof-of-concept GP4C into a viable delivery system for the REACH II intervention. Development activities will be guided by user interface/user experience (UI/UX) testing and integration of live support from a Dementia Care Specialist (DCS; i.e., interventionist). Development activities will be conducted by the Baylor Scott & White Health (BSWH) Office of Digital Health with engagement of community-based organizations, 32 family caregivers, and 5 external advisors, with oversight by the GP4C research team during year 1. AIM 2 will compare the relative impact of GP4C to an education-based online site called GP4C-Education on a wide range of family caregiver outcomes. Family caregivers will be randomized to one of the two conditions and will complete an assessment battery at baseline and at the 6-month follow-up. Primary outcome measures will include the 5 domain measures of the REACH II quality of life outcome. Secondary outcomes will include caregiver’s self-efficacy, modified caregiver strain index (MCSI) and positive aspects of caregiving. Three community-based partners will designate a “GP4C Champion” to promote the enrollment of 240 family caregiver who have computer access and report regular use of the internet. Use of GP4C and GP4C-Education and contact with DCS will be recorded by the system as implementation data. GP4C will fill a critical gap in caregiver support services as an evidence-based, internet-enabled system capable of providing immediate, tailored education and skills training to caregivers who can access live support from a DCS via phone or web-based video.