GamePlan4Care: Web-based Delivery System for REACH II

GamePlan4Care：基于 Web 的 REACH II 交付系统

• 批准号: 9978552
• 负责人: ALAN B STEVENS
• 金额: $ 50.69万
• 依托单位: BAYLOR RESEARCH INSTITUTE
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-30 至 2023-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9978552
• 关键词: Achievement; Address; Advisory Committees; Alzheimer' s disease caregiver; Alzheimer' s disease related dementia; American; Anxiety; Caregiver support; Caregivers; Caring; Communities; Computers; Conflict (Psychology); Consensus; Data; Dementia; Dementia caregivers; Development; Digit structure; Education; Elderly; Elements; Enhancement Technology; Enrollment; Evidence based intervention; Exercise; Face; Family; Family Caregiver; Family member; Feedback; Financial Hardship; Goals; Health; Healthcare Systems; Individual; Internet; Intervention; Lead; Long-Term Care; Measures; Mental Depression; Meta-Analysis; Modernization; Older Population; Online Systems; Outcome; Outcome Measure; Participant; Personal Satisfaction; Persons; Phase; Positioning Attribute; Quality of Care; Quality of life; Randomized; Randomized Clinical Trials; Reporting; Research; Resources; Risk; Self Efficacy; Services; Site; Social isolation; Societies; Specialist; Supervision; Support System; System; Technology; Telephone; Testing; Training and Education; Translations; Update; base; building materials; care costs; care delivery; caregiver strain; caregiving; community based service; community living; dementia care; digital; efficacy testing; evidence base; expectation; experience; family caregiving; flexibility; follow-up; improved; indexing; preservation; primary outcome; psychosocial; secondary outcome; skills; skills training; systematic review; tool; usability

Abstract Daily care and supervision of a person living with dementia (PWD) has been defined as “intense caregiving” and is associated with significant daily burdens and an overall threat to the caregiver’s quality of life. Despite evidence suggesting that negative consequence can be remediated with community-based supports, those services remain allusive to caregivers due to the systemic challenges of turning interventions into services. This R01 application provides proof-of-concept of GamePlan4Care (GP4C), a web-based technology enhancement of the traditional delivery format used for Resources for Enhancing Alzheimer’s Caregiver Health II (REACH II). GP4C automates key components of REACH II while preserving active engagement of caregivers in skill-building exercises and provides flexible tailoring of services based on the unique needs of the family caregiver. AIM 1 will advance the current proof-of-concept GP4C into a viable delivery system for the REACH II intervention. Development activities will be guided by user interface/user experience (UI/UX) testing and integration of live support from a Dementia Care Specialist (DCS; i.e., interventionist). Development activities will be conducted by the Baylor Scott & White Health (BSWH) Office of Digital Health with engagement of community-based organizations, 32 family caregivers, and 5 external advisors, with oversight by the GP4C research team during year 1. AIM 2 will compare the relative impact of GP4C to an education-based online site called GP4C-Education on a wide range of family caregiver outcomes. Family caregivers will be randomized to one of the two conditions and will complete an assessment battery at baseline and at the 6-month follow-up. Primary outcome measures will include the 5 domain measures of the REACH II quality of life outcome. Secondary outcomes will include caregiver’s self-efficacy, modified caregiver strain index (MCSI) and positive aspects of caregiving. Three community-based partners will designate a “GP4C Champion” to promote the enrollment of 240 family caregiver who have computer access and report regular use of the internet. Use of GP4C and GP4C-Education and contact with DCS will be recorded by the system as implementation data. GP4C will fill a critical gap in caregiver support services as an evidence-based, internet-enabled system capable of providing immediate, tailored education and skills training to caregivers who can access live support from a DCS via phone or web-based video.

摘要 对痴呆症患者（PWD）的日常护理和监督被定义为“强烈的焦虑”， 与重大的日常负担和对照顾者生活质量的总体威胁有关。尽管有证据 这表明负面后果可以通过社区支持来补救，这些服务 由于将干预措施转化为服务的系统性挑战，这一概念仍然暗指照顾者。R01 应用程序提供了GamePlan 4Care（GP 4C）的概念验证，这是一种基于Web的技术增强， 用于增强阿尔茨海默氏症护理者健康资源II（REACH II）的传统交付格式。GP4C 自动化REACH II的关键组件，同时保持护理人员积极参与技能建设 根据家庭照顾者的特殊需要，灵活提供量身定制的服务。要求1 将推动目前的概念验证GP 4C成为REACH II干预的可行输送系统。 开发活动将由用户界面/用户体验（UI/UX）测试和实时集成指导 痴呆症护理专家（DCS;即，干涉主义者）。开发活动将由 Baylor Scott &白色健康（BSWH）数字健康办公室， 组织，32名家庭护理人员和5名外部顾问，由GP 4C研究团队监督， 第一年。AIM 2将比较GP 4C与一个名为GP 4C-Education的教育网站的相对影响 家庭照顾者的结果。家庭照顾者将被随机分为两种情况之一 并将在基线和6个月随访时完成评估组合。主要结局指标 将包括REACH II生活质量结局的5个领域指标。次要结局将包括 照顾者的自我效能感，改良照顾者压力指数（MCSI）和积极方面的照顾。三 以社区为基础的合作伙伴将指定一名“GP 4C冠军”，以促进240名家庭照顾者的登记 他们可以使用电脑并报告经常使用互联网。GP 4C和GP 4C的使用-教育和联系 系统将记录与DCS连接的数据作为实施数据。GP 4C将填补护理人员支持的关键空白 服务作为一个基于证据的，互联网支持的系统，能够提供即时的，量身定制的教育， 向可以通过电话或网络视频从DCS获得实时支持的护理人员提供技能培训。