Integrating the Visualization and Use of Stigma Data to Maximize the Impact of the Ending the HIV Epidemic Initiative

整合污名数据的可视化和使用，最大限度地发挥结束艾滋病毒流行倡议的影响

• 批准号: 10459729
• 负责人: Stefan David Baral
• 金额: $ 100.9万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-08 至 2027-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10459729
• 关键词: AIDS prevention; Address; Affect; American; Americas; Area; Behavioral; Caring; Centers for Disease Control and Prevention (U.S.); Collaborations; Communities; Competence; Complement; Consolidated Framework for Implementation Research; Data; Data Scientist; Diagnosis; Diagnostic; Ensure; Epidemic; Epidemiologist; Epidemiology; Evaluation; Future; Goals; Government Agencies; Guidelines; HIV; Health; Health Status; Human immunodeficiency virus test; Incidence; Internet; Intervention; Knowledge; Letters; Measurement; Mental Health; Modeling; Municipalities; Output; Persons; Policy Developments; Policy Maker; Population Heterogeneity; Prevention; Process; Qualitative Methods; Quality of life; Research; Risk; Solid; Strategic Planning; Surveys; System; Testing; Translating; Treatment outcome; United States; United States National Institutes of Health; Update; Viral; Visualization; Visualization software; Work; base; cisgender; dashboard; data visualization; design; experience; health disparity; human centered design; implementation research; improved; indexing; mathematical model; meetings; men; men who have sex with men; network models; personalized approach; pre-exposure prophylaxis; programs; response; social stigma; success; systematic review; tool; transgender women; treatment response; usability

The 2021-2025 HIV National Strategic Plan (HIV Plan) recognizes stigma as a barrier to the success of the Ending the HIV Epidemic (EHE) initiative given consistent data highlighting the relationship between stigma and suboptimal HIV testing, prevention, and treatment outcomes. The prioritization of stigma by government agencies has yet to translate to scaled stigma mitigation strategies as a means of improving mental health, quality of life, and optimizing the HIV response. In response, our goal is to address the disconnect between practice and priorities in HIV epidemic control by systematically collecting stigma data in partnership with seven health departments and community partners in priority EHE areas, systematically visualizing key stigma indicators and the potential impact of stigma mitigation on EHE pillars and local HIV incidence, and using implementation research to optimize the usability of these tools and inform stigma mitigation interventions. These goals will be achieved via the following specific aims: Specific Aim 1 – Use historical and future iterations of data from AMIS, TWIST, PLHIV Stigma Index 2.0, NHBS, combined with systematic reviews to create stigma dashboards integrated into AIDSVu. Specific Aim 2 Using stigma data to model and visualize the effects of stigma and stigma mitigation interventions on proximal EHE indicators including incidence, knowledge of status, diagnoses, linkage to HIV care, viral suppression, and PrEP coverage. Specific Aim 3 – Use qualitative methods with health departments and CBO partners to inform the optimization of the Stigma Dashboard including usability, presentation, and information included to inform stigma-related policies and the development of local stigma mitigation strategies. These aims are highly responsive to “Respond: Epidemiology to End the HIV Epidemic” in using data to support effective and tailored approaches to respond to local epidemics and include balanced collaborations between epidemiologists, data scientists, statisticians, and local health departments and community partners. The key outputs of the proposed research will include refined, user-centered stigma dashboards integrated into AIDSVu that allow for data visualization and tools to plan and assess downstream impacts of intervention, as well as guidelines to support implementation of use of stigma dashboards and support connection to evidence for stigma mitigation intervention planning to achieve HIV epidemic control goals in additional health departments. While an ambitious research agenda, the diverse experience and competencies of this investigative team focused on stigma and existing partnerships makes us well placed to be successful in contributing to the Ending HIV Epidemic plan through improved measurement, use of, and response to HIV-related and intersectional stigmas.

《2021-2025年艾滋病毒国家战略计划》(艾滋病毒计划)承认耻辱是艾滋病成功的障碍 结束艾滋病毒流行(EHE)倡议，因为一致的数据突出了污名与 以及次优的艾滋病毒检测、预防和治疗结果。政府对污名的优先处理 各机构尚未转化为规模化的耻辱缓解战略，以此作为改善心理健康的一种手段， 提高生活质量，优化艾滋病毒应对措施。作为回应，我们的目标是解决 在艾滋病毒流行控制方面的做法和优先事项，系统地收集污名数据，与 七个卫生部门和优先EHE领域的社区合作伙伴，系统地将主要污名可视化 指标和减轻污名对EHE支柱和当地艾滋病毒发病率的潜在影响，以及使用 开展实施研究，以优化这些工具的可用性，并为减轻耻辱的干预措施提供信息。 这些目标将通过以下具体目标实现： 具体目标1--使用非盟驻苏特派团、TWIST、PLHIV污名指数2.0、 NHBS与系统审查相结合，创建了纳入AIDSVu的耻辱仪表板。 具体目标2使用污名数据对污名和减轻污名的影响进行建模和可视化 对近端EHE指标的干预，包括发病率、状况知识、诊断、与艾滋病毒的联系 护理、病毒抑制和PrEP覆盖。 具体目标3--与卫生部门和国会预算办公室合作伙伴一起使用定性方法 优化ISTAMA仪表板，包括可用性、演示文稿和信息 与污名相关的政策和制定地方污名减轻战略。 这些目标高度响应了使用数据支持《应对：用流行病学结束艾滋病毒流行》 有效和量身定做的应对当地流行病的方法，并包括 流行病学家、数据科学家、统计学家以及当地卫生部门和社区合作伙伴。钥匙 拟议研究的成果将包括整合到AIDSVu中的以用户为中心的精细化污名仪表板 允许数据可视化和工具来规划和评估干预的下游影响，以及 支持使用污名化仪表板并支持与污名化证据相联系的准则 在更多的卫生部门制定缓解干预计划，以实现艾滋病毒流行控制目标。而当 雄心勃勃的研究议程，这个调查团队的不同经验和能力专注于 耻辱和现有的伙伴关系使我们处于有利地位，能够成功地为结束艾滋病毒做出贡献 通过改进艾滋病毒相关和跨部门污名的测量、使用和应对，制定流行病计划。