Leveraging Social Media to Improve Health Outcomes in Adolescents with Diabetes

利用社交媒体改善青少年糖尿病患者的健康状况

• 批准号: 10470183
• 负责人: Faisal Saleem Malik
• 金额: $ 18.9万
• 依托单位: SEATTLE CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-07 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10470183
• 关键词: Acute; Address; Adherence; Adolescent; Age; Alaska; Attitude; Blindness; Caregivers; Caring; Characteristics; Child; Childhood; Childhood diabetes; Chronic; Chronic Disease; Clinic; Clinical; Collaborations; Communication; Data; Development; Diabetes Mellitus; Diabetic Ketoacidosis; Disease Management; Educational workshop; Effectiveness; Elements; Endocrinologist; Enrollment; Environment; Faculty; Feedback; Focus Groups; Glycosylated hemoglobin A; Goals; Health; Health Services; Hospitals; Idaho; Insulin-Dependent Diabetes Mellitus; Intervention; Kidney Failure; Media Intervention; Medical; Medical Care Team; Mentors; Methodology; Montana; Outcome; Patient Outcomes Assessments; Patients; Pediatric Hospitals; Perception; Personnel Management; Process; Quality of life; Randomized; Randomized Controlled Trials; Reporting; Research; Research Activity; Research Design; Research Institute; Research Personnel; Research Training; Risk; Risk Management; Sampling; Scientist; Self Care; Self Efficacy; Stress; Surveys; System; Techniques; Teenagers; Testing; Thinking; Time; Training; Training Activity; Training Programs; United States; Vulnerable Populations; Washington; Work; Wyoming; Youth; acceptability and feasibility; adolescent health outcomes; advanced disease; base; behavioral health intervention; care costs; comparative effectiveness; conventional therapy; cost; design; diabetes education; diabetes management; diabetes self-management; digital; feasibility testing; glycemic control; health care quality; health care service utilization; health care settings; improved; innovation; meetings; member; patient oriented; peer support; pilot test; preference; primary outcome; programs; recruit; response; secondary outcome; skills; social media; social networking website; therapy development; tool; treatment as usual; user centered design

PROJECT SUMMARY/ABSTRACT This proposal describes a five-year research training program that will allow me to achieve my long-term goal of becoming an independent faculty-scientist dedicated to improving healthcare quality and patient health for youth with diabetes. The majority of adolescents with type 1 diabetes (T1D) in the United States are not meeting the goals of therapy. I propose to develop tools to provide innovative diabetes management support to adolescents outside of the clinic setting through the use of social media (SM) and evaluate its feasibility and acceptability to adolescents with T1D. SM has become an integral part of adolescents’ lives and at this time, there is an absence of high quality empirical studies investigating the use of SM in the healthcare setting. Given the need for impactful interventions to support adolescent T1D management, this work has the potential to result in a major advance for disease management in this vulnerable population. The goal of this proposal is to develop a patient-centered SM intervention that will enhance patient self-efficacy and improve health outcomes for adolescents with T1D. I will achieve this goal by first identifying several different SM intervention strategies for distinct segments of adolescents with diabetes. In Aim 1, I plan to conduct a survey of a large sample of adolescents with T1D to examine perceptions on how SM can be utilized in diabetes management and then using latent class analysis techniques, I will segment adolescents based on patient characteristics and preferences around the use of SM. In Aim 2, I will incorporate additional stakeholder input, including caregivers and healthcare team members, through the use of user-centered design workshops to develop a pilot SM intervention based on previous formative work. By engaging adolescents, caregivers, and healthcare team members in an iterative process of user-centered design workshops I hope to develop a SM intervention that is consistent with key stakeholder values, preferences and goals. In Aim 3, I will pilot the SM intervention in a randomized controlled trial and examine its feasibility and acceptability. In addition, I plan to explore the impact on patient-reported outcomes (e.g. self-efficacy) and glycemic control. My research will be supported by an outstanding group of mentors with expertise in social media research, pediatric diabetes, survey research, and the design of clinical interventions. By accomplishing the aims in this proposal, I will address current gaps in our understanding of how to leverage SM to support adolescents with chronic disease. In addition, this proposal will allow me to take the next critical steps on my research training trajectory by providing me the opportunity to acquire additional research skills required to design, evaluate and implement behavioral health interventions using social media. Ultimately, this proposal will allow me to build a research program to investigate system-oriented, patient-centered solutions to improve the delivery and quality of medical care to youth with diabetes.!

项目总结/文摘

项目成果

Screening for Mental Health Comorbidities in a Pediatric Diabetes Clinic Setting.

• DOI: 10.2337/cd20-0037
• 发表时间: 2021-01
• 期刊: Clinical diabetes : a publication of the American Diabetes Association
• 作者: Roberts AJ;Barry D;Yi-Frazier J;Rutman L;Pihoker C;Malik FS
• 通讯作者: Malik FS

Mental health comorbidities in adolescents and young adults with type 2 diabetes.

• DOI: 10.1016/j.pedn.2021.07.028
• 发表时间: 2021-11
• 期刊: Journal of pediatric nursing
• 作者: Roberts AJ;Bao H;Qu P;Moss A;Kim G;Yi-Frazier JP;Pihoker C;Malik F
• 通讯作者: Malik F

Identifying Suicide Risk in Adolescents and Young Adults With Type 1 Diabetes: Are Depression Screeners Sufficient?

识别患有 1 型糖尿病的青少年和年轻人的自杀风险：抑郁症筛查是否足够？

• DOI: 10.2337/dc21-1553
• 发表时间: 2022
• 期刊: Diabetes care
• 影响因子: 16.2
• 作者: Moss,AshleyC;Roberts,AlissaJ;Yi-Frazier,JoyceP;Read,KendraL;Taplin,CraigE;Weaver,KathrynW;Pihoker,Catherine;Hirsch,IrlB;Malik,FaisalS
• 通讯作者: Malik,FaisalS

Adapting to telemedicine in the COVID-19 era: Feasibility of dried blood spot testing for hemoglobin A1c.

• DOI: 10.1016/j.dsx.2021.02.010
• 发表时间: 2021-01
• 期刊: Diabetes & metabolic syndrome
• 作者: Roberts AJ;Malik F;Pihoker C;Dickerson JA
• 通讯作者: Dickerson JA

Driving Safety in Adolescents and Young Adults With Type 1 Diabetes.

患有 1 型糖尿病的青少年和年轻人的驾驶安全。

• DOI: 10.2337/ds20-0021
• 发表时间: 2020
• 期刊: Diabetes spectrum : a publication of the American Diabetes Association
• 作者: Roberts,AlissaJ;Moss,Ashley;Malik,FaisalS;Taplin,Craig;Pihoker,Catherine;Hirsch,IrlB;Read,Kendra;Yi-Frazier,JoyceP
• 通讯作者: Yi-Frazier,JoyceP