Leveraging Social Media to Improve Health Outcomes in Adolescents with Diabetes

利用社交媒体改善青少年糖尿病患者的健康状况

• 批准号: 10242648
• 负责人: Faisal Saleem Malik
• 金额: $ 18.9万
• 依托单位: SEATTLE CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-07 至 2023-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10242648
• 关键词: Acute; Address; Adherence; Adolescent; Age; Alaska; Attitude; Blindness; Caregivers; Caring; Characteristics; Child; Childhood; Childhood diabetes; Chronic; Chronic Disease; Clinic; Clinical; Collaborations; Communication; Data; Development; Diabetes Mellitus; Diabetic Ketoacidosis; Disease Management; Educational workshop; Effectiveness; Elements; Endocrinologist; Enrollment; Environment; Faculty; Feedback; Focus Groups; Glycosylated hemoglobin A; Goals; Health; Health Services; Hospitals; Idaho; Insulin-Dependent Diabetes Mellitus; Intervention; Kidney Failure; Media Intervention; Medical; Medical Care Team; Mentors; Methodology; Montana; Outcome; Patient Outcomes Assessments; Patients; Pediatric Hospitals; Perception; Personnel Management; Process; Quality of life; Randomized; Randomized Controlled Trials; Reporting; Research; Research Activity; Research Design; Research Institute; Research Personnel; Research Training; Risk; Risk Management; Sampling; Scientist; Self Care; Self Efficacy; Stress; Surveys; System; Techniques; Teenagers; Testing; Thinking; Time; Training; Training Activity; Training Programs; United States; Vulnerable Populations; Washington; Work; Wyoming; Youth; acceptability and feasibility; adolescent health outcomes; advanced disease; base; behavioral health intervention; care costs; comparative effectiveness; conventional therapy; cost; design; diabetes education; diabetes management; diabetes self-management; digital; feasibility testing; glycemic control; health care quality; health care service utilization; health care settings; improved; innovation; meetings; member; patient oriented; peer support; preference; primary outcome; programs; recruit; response; secondary outcome; skills; social media; social networking website; therapy development; tool; treatment as usual; user centered design

PROJECT SUMMARY/ABSTRACT This proposal describes a five-year research training program that will allow me to achieve my long-term goal of becoming an independent faculty-scientist dedicated to improving healthcare quality and patient health for youth with diabetes. The majority of adolescents with type 1 diabetes (T1D) in the United States are not meeting the goals of therapy. I propose to develop tools to provide innovative diabetes management support to adolescents outside of the clinic setting through the use of social media (SM) and evaluate its feasibility and acceptability to adolescents with T1D. SM has become an integral part of adolescents’ lives and at this time, there is an absence of high quality empirical studies investigating the use of SM in the healthcare setting. Given the need for impactful interventions to support adolescent T1D management, this work has the potential to result in a major advance for disease management in this vulnerable population. The goal of this proposal is to develop a patient-centered SM intervention that will enhance patient self-efficacy and improve health outcomes for adolescents with T1D. I will achieve this goal by first identifying several different SM intervention strategies for distinct segments of adolescents with diabetes. In Aim 1, I plan to conduct a survey of a large sample of adolescents with T1D to examine perceptions on how SM can be utilized in diabetes management and then using latent class analysis techniques, I will segment adolescents based on patient characteristics and preferences around the use of SM. In Aim 2, I will incorporate additional stakeholder input, including caregivers and healthcare team members, through the use of user-centered design workshops to develop a pilot SM intervention based on previous formative work. By engaging adolescents, caregivers, and healthcare team members in an iterative process of user-centered design workshops I hope to develop a SM intervention that is consistent with key stakeholder values, preferences and goals. In Aim 3, I will pilot the SM intervention in a randomized controlled trial and examine its feasibility and acceptability. In addition, I plan to explore the impact on patient-reported outcomes (e.g. self-efficacy) and glycemic control. My research will be supported by an outstanding group of mentors with expertise in social media research, pediatric diabetes, survey research, and the design of clinical interventions. By accomplishing the aims in this proposal, I will address current gaps in our understanding of how to leverage SM to support adolescents with chronic disease. In addition, this proposal will allow me to take the next critical steps on my research training trajectory by providing me the opportunity to acquire additional research skills required to design, evaluate and implement behavioral health interventions using social media. Ultimately, this proposal will allow me to build a research program to investigate system-oriented, patient-centered solutions to improve the delivery and quality of medical care to youth with diabetes.!

项目概要/摘要 该提案描述了一个为期五年的研究培训计划，该计划将使我能够实现我的长期目标 成为一名独立的教师科学家，致力于提高医疗质量和患者健康 患有糖尿病的青年。在美国，大多数患有 1 型糖尿病 (T1D) 的青少年并未患有糖尿病。 达到治疗目标。我建议开发工具来提供创新的糖尿病管理支持 通过使用社交媒体（SM）在诊所外的青少年中进行评估，并评估其可行性和 患有 T1D 的青少年的接受度。 SM已经成为青少年生活中不可或缺的一部分，此时， 目前缺乏高质量的实证研究来调查 SM 在医疗保健环境中的使用。 鉴于需要采取有效的干预措施来支持青少年 T1D 管理，这项工作具有潜力 从而在这一弱势群体的疾病管理方面取得重大进展。 该提案的目标是开发一种以患者为中心的 SM 干预措施，以提高患者的自我效能 并改善患有 T1D 的青少年的健康状况。我将通过首先确定几个来实现这个目标 针对不同年龄段的糖尿病青少年采取不同的 SM 干预策略。在目标 1 中，我计划 对大量患有 T1D 的青少年进行调查，以了解对如何利用 SM 的看法 在糖尿病管理中，然后使用潜在类别分析技术，我将根据 围绕 SM 使用的患者特征和偏好。在目标 2 中，我将纳入更多利益相关者 通过使用以用户为中心的设计研讨会，包括护理人员和医疗保健团队成员的意见 在之前的形成性工作的基础上制定试点 SM 干预措施。通过让青少年、护理人员参与， 和医疗保健团队成员在以用户为中心的设计研讨会的迭代过程中我希望开发一个 SM 干预与主要利益相关者的价值观、偏好和目标一致。在目标 3 中，我将试行 SM干预随机对照试验并检验其可行性和可接受性。另外，我计划 探讨对患者报告的结果（例如自我效能）和血糖控制的影响。 我的研究将得到一群在社交媒体研究方面具有专业知识的杰出导师的支持， 儿科糖尿病、调查研究和临床干预措施的设计。通过实现本次目标 提案中，我将解决目前我们对如何利用 SM 支持青少年的理解差距 慢性疾病。此外，该提案将使我能够在研究培训中采取接下来的关键步骤 为我提供了获得设计、评估和评估所需的额外研究技能的机会 使用社交媒体实施行为健康干预措施。最终，这个提案将使我能够建立一个 研究计划旨在研究以系统为导向、以患者为中心的解决方案，以提高交付和质量 为患有糖尿病的青少年提供医疗护理！