Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10475185
• 负责人: Sophia Wang
• 金额: $ 26.46万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10475185
• 关键词: Address; African American; African American population; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Awareness; Biological Markers; Brain; COVID-19 pandemic; Caregivers; Clinical Research; Collaborations; Collection; Communities; Community Outreach; Data; Databases; Development; Disease; Dissemination and Implementation; Early Diagnosis; Effectiveness; Elderly; Enrollment; Event; Family; Family member; Foundations; Future; Goals; Health Fairs; Health Professional; Impaired cognition; Indiana; Internet; Investments; Mission; Monitor; Newsletter; Participant; Patients; Persons; Play; Privatization; Public Health; Radio; Recruitment Activity; Research; Research Infrastructure; Role; Social Work; Strategic Planning; Time; Translations; Trust; Underrepresented Populations; Veterans; Work; base; brain health; cohort; community organizations; community partnership; dashboard; education resources; ethnic minority; experience; health care service; high risk; member; mild cognitive impairment; neuroimaging marker; outreach; outreach program; prevent; programs; racial minority; recruit; research study; retention rate; rural dwellers; service providers; social media; success; virtual

Project Summary – Outreach, Recruitment and Engagement Core (OREC) The OREC of the Indiana Alzheimer’s Disease Research Center (IADRC) plays a key role in achieving the goals of the IADRC through its community outreach and recruitment activities. It also serves as an educational resource on AD and related dementias for healthcare professionals, patients, caregivers, and family members living in Indiana, neighboring regions, and beyond. As increasing numbers of older adults experience late life cognitive impairment and associated challenges, outreach in our local and statewide community is crucial to inform them and their families about the importance of early diagnosis, available treatment and management options, and the critically important role of participating in research at the IADRC. The OREC has developed numerous important relationships with health professionals and aging-related organizations throughout the state, which increase the visibility and reach of our programs. The IADRC and the OREC have had great success in increasing research participation in the African American community and other underrepresented participant groups who are or may be at higher risk for AD and related dementias. The IADRC understands the importance of building rapport and trusting relationships with community members, health care and social service providers. The OREC will build on its successfully developed foundation of community-based collaboration over the past 30 years. The OREC has three overall goals: Outreach--to promote the understanding of brain health and neurodegenerating diseases in Indiana, neighboring regions and beyond; Recruitment--to facilitate recruitment of research participants to the IADRC and related research studies; and Retention—to retain research participants in the IADRC and related research studies. Our outreach programs greatly impact the increasing awareness of dementing disorders, which in turn, increase the likelihood of participation in the IADRC, providing support to the National Alzheimer’s Plan Act (NAPA) goal of preventing and effectively treating AD by 2025.

项目摘要-外联、招聘和参与核心（OREC） 印第安纳州阿尔茨海默病研究中心（IADRC）的OREC在以下方面发挥着关键作用： 通过社区外联和招募活动实现机构间发展与和解委员会的目标。它 也是AD和相关痴呆症的医疗保健教育资源 居住在印第安纳州、邻近地区的专业人员、患者、护理人员和家庭成员， 以及更远的地方随着越来越多的老年人经历晚年认知障碍， 相关的挑战，在我们的地方和全州社区的宣传是至关重要的，以告知他们 以及他们的家人了解早期诊断、有效治疗和管理的重要性 选择，以及参与IADRC研究的至关重要的作用。OREC 与卫生专业人员和与老龄化有关的 在整个国家的组织，这增加了我们的计划的知名度和影响力。的 IADRC和OREC在增加研究参与方面取得了巨大成功， 非裔美国人社区和其他代表性不足的参与者群体，他们是或可能是 AD和相关痴呆症的风险更高。IADRC了解建立 与社区成员、医疗保健和社会服务建立融洽和信任的关系 提供商OREC将在其成功发展的社区基础上， 过去30年的合作。该办公室有三个总体目标： 对印第安纳州大脑健康和神经退行性疾病的理解， 招募-促进招募研究参与者加入机构间发展研究中心 及相关的研究;及挽留-挽留研究参与者加入IADRC， 相关研究。我们的推广计划极大地影响了人们对 痴呆症，这反过来又增加了参与IADRC的可能性， 支持国家阿尔茨海默氏症计划法案（NAPA）的目标， 到2025年治疗AD。