COPECare: A mobile tool for cancer care coordination in Native American communities

COPECare：美国原住民社区癌症护理协调的移动工具

• 批准号: 9905188
• 负责人: Y. Xian Ho
• 金额: $ 22.64万
• 依托单位: DIMAGI, INC.
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-24 至 2021-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9905188
• 关键词: Address; Alaska Native; American Indians; Awareness; Breast Cancer Patient; Cancer Center; Cancer Family; Cancer Patient; Cancer Survivor; Caregivers; Caring; Cause of Death; Cessation of life; Clinic; Clinical; Colorectal; Colorectal Cancer; Communication; Communities; Community Health; Continuity of Patient Care; Coordination and Collaboration; Data Collection; Development; Diagnosis; Educational Curriculum; Ensure; Family member; Feasibility Studies; Feedback; Future; Goals; Guidelines; Health; Health Personnel; Health Promotion; Health system; High-Risk Cancer; Hospitals; Incidence; Interview; Life; Linguistics; Link; Logistics; Malignant Neoplasms; Methods; Modeling; Native Americans; Navajo; Oncologist; Online Systems; Participant; Patient Care; Patients; Perception; Performance; Pharmacists; Phase; Population; Primary Health Care; Process; Public Health; Public Health Nursing; Race; Recommendation; Secure; Series; Small Business Innovation Research Grant; Specialist; Structure; Survivors; System; Systems Integration; Technology; Testing; Time; United States; United States Dept. of Health and Human Services; Woman; Work; base; cancer care; cancer prevention; cancer risk; cancer therapy; care coordination; care providers; cohort; colon cancer patients; commercialization; community based care; data sharing; design; early screening; expectation; follow-up; health care availability; health care delivery; health literacy; informant; innovation; malignant breast neoplasm; member; men; mobile application; mortality; novel; premature; prototype; recruit; screening; survivorship; technology development; tool; usability; user centered design; web app

PROJECT SUMMARY American Indians and Alaska Natives (AI/AN) have the highest cancer mortality rates of any racial group in the United States. Cancer is the second leading cause of death for the AI/AN population and one of the leading causes of premature death in this population. The overall objective of this Phase I SBIR project is to study the feasibility and acceptability of a mobile- and web-based system to support cancer coordination in Native American communities. Following a user-centered design approach, we will develop a novel tool expressly designed for community health representatives (CHRs) who are primarily tasked with delivering educational information and guidance to members of the Navajo Nation who have or are at high risk of cancer. While CHRs have been found to be critical to raising cancer health awareness and promoting health literacy, a gap remains in care coordination. Culturally appropriate care coordination support will be designed and built on existing mobile tools currently used by this workforce to connect the care team directly with patients and to allow for streamlined, safe and secure communication. Work in this Phase I will be used to determine how to develop the interfacing between the care team and patients. In Aim 1, we will conduct 20 formative interviews with key informants, stakeholders and potential end users, such as oncologists, primary care providers (PCPs), and Navajo Nation patients to understand how the proposed technology can be designed to directly support existing cancer care coordination processes. We will develop user stories and personas to capture the process. In Aim 2, we will build off of Aim 1 and design a prototype of the system that will be reviewed by a panel of Navajo cancer survivors and families using a walkthrough method. In Aim 3, we will conduct usability testing with another cohort of target end users (5 CHRs, 5 breast cancer patients, 5 colorectal patients) to assess feasibility and usability of the prototype. The system will be built on a community-based health framework focusing on follow-up care for breast and colorectal cancer survivors after the point of diagnosis. Results from this project will go towards the future development of novel, culturally-appropriate technologies designed to promote collaboration and coordination between cancer patients and at-risk cancer patients, CHRs, oncologists, PCPs, and other cancer care team members in Navajo Nation. This innovation has high public health significance with the potential to serve other Native American communities across the US.

项目摘要 美国印第安人和阿拉斯加原住民（AI/AN）是美国所有种族中癌症死亡率最高的。 美国的癌症是AI/AN人群的第二大死亡原因，也是AI/AN人群的主要死亡原因之一。 导致这一人群过早死亡的原因。第一阶段SBIR项目的总体目标是研究 一个基于移动的和网络的系统支持土著社区癌症协调的可行性和可接受性 美国社区。遵循以用户为中心的设计方法，我们将开发一个新颖的工具， 专为社区卫生代表（CHR）设计，他们的主要任务是提供教育 为纳瓦霍族的成员提供信息和指导，他们患有癌症或处于癌症的高风险中。而人权中心 对于提高癌症健康意识和促进健康素养至关重要，但仍存在差距 照顾协调。将在现有的移动的基础上设计和建立文化上适当的护理协调支持 该团队目前使用的工具将护理团队与患者直接联系起来， 安全可靠的通信。第一阶段的工作将用于确定如何开发接口 在护理团队和病人之间。在目标1中，我们将与关键线人进行20次形成性访谈， 利益相关者和潜在的最终用户，如肿瘤学家、初级保健提供者（PCP）和纳瓦霍族 患者了解如何设计拟议的技术来直接支持现有的癌症护理 协调进程。我们将开发用户故事和人物角色来捕捉这个过程。在目标2中，我们将 并设计一个系统原型，由纳瓦霍癌症幸存者小组进行审查 和家庭使用一个演练方法。在目标3中，我们将使用另一组目标进行可用性测试。 最终用户（5名CHR、5名乳腺癌患者、5名结直肠患者）评估 样机该系统将建立在一个以社区为基础的健康框架之上，重点是乳腺癌的后续护理。 和结直肠癌幸存者在诊断后的时间点。该项目的成果将走向未来 开发适合文化的新技术，以促进合作与协调 癌症患者和高危癌症患者、CHR、肿瘤学家、PCP和其他癌症护理团队之间的联系 纳瓦霍族的成员。这项创新具有很高的公共卫生意义，有可能为其他国家服务。 美国各地的印第安人社区。