Reaching Communities through the Design of Information Visualizations (ReDIVis) Toolbox for Return of COVID-19 Results
Reaching Communities through the Design of Information Visualizations (ReDIVis) Toolbox for Return of COVID-19 Results
批准号:
10528548
负责人:
SUZANNE BAKKEN
金额:
$61.3万
依托单位国家:
美国
项目类别:
财政年份:
2016
资助国家:
美国
项目状态:
已结题
起止时间:
2016-08-16 至 2023-11-15
关键词:
AddressAdmixtureAfricanAirAmericasAnxietyAreaBig DataBlood PressureCOVID-19CategoriesCenters for Disease Control and Prevention (U.S.)Clinical DataCommon Data ElementCommunitiesComplementComplexConsumptionDataData ScienceData SourcesEnvironmentEnvironmental Risk FactorEthnic groupEuropeanEvaluationFamily health statusFundingGenesGeneticGenomicsGenotypeGoalsGrantImmigrantIndividualInfrastructureInterventionKnowledgeLaboratoriesLatinoLatino PopulationLifeLife Cycle StagesLife StyleMeasurementMedicalMethodsModelingMonitorNational Institute of Diabetes and Digestive and Kidney DiseasesNational Institute of Mental HealthNational Institute of Nursing ResearchNational Institute on Minority Health and Health DisparitiesNative American AncestryNursesPerformancePersonsPharmaceutical PreparationsPhenotypePhysical activityPilot ProjectsPopulationProteomicsRecording of previous eventsReportingResearchResearch ActivityResearch PersonnelResource SharingResourcesSafetySchool NursingScientistSelf ManagementStandardizationSymptomsUnited StatesUnited States Agency for Healthcare Research and QualityUnited States Health Resources and Services AdministrationUnited States National Institutes of HealthUniversitiesVegetablesVisualizationbasebiobehaviorbiomarker discoveryclinical applicationcontextual factorsdata miningdata streamsdesigndisorder riskexperiencefeasibility researchhuman subject protectionindividual variationinnovationlensmental functionmetabolomicsmicrobiome researchprecision medicineprogramsrare conditionresponsesocialsymptom managementsymptom sciencesymptom self managementtreatment response
中文摘要
通过信息可视化设计(ReDIVis)工具箱达到社区的总体目标
为新冠肺炎结果返回(RCR)是为了减少与新冠肺炎相关的健康差距,通过启用
广泛使用具有文化一致性和健康知识的信息图表来返回SARS-CoV-2结果
以支持对结果的理解的方式进行诊断和抗体检测,为决策提供信息
制定,并激励适当的行为。与我们的社区合作伙伴合作,该协会将
为了使儿童受益,我们将使用混合方法研究设计,以实现以下具体目标:
1.增进对影响理解和使用SARS结果的因素的了解-
在服务不足和易受感染人群中进行CoV-2诊断和抗体检测。
2.与服务不足和弱势群体合作,设计返回结果的信息图表
SARS-CoV-2诊断和抗体检测的最大限度地理解的格式,通知
决策,并激励行动。
3.开发、实施、评估和传播用于返回SARS结果的ReDIVis工具箱-
CoV-2诊断和抗体检测。
ReDIVis工具箱-RCR建立在社区参与、非专业人员的大量前期工作基础上
科学、系统开发和评估、信息可视化以及现有基础设施:
(A)拉丁裔成年人的研究队列;(B)症状自我精确的可视化设计工作室
管理中心,以及(C)新的CoVIDWATCHER普通人科学平台。由七位公众提供信息
健康伦理原则,ReDIVis工具箱-RCR研究活动(焦点小组、访谈、调查、
参与式设计会议、可用性测试)将产生基于网络的ReDIVis工具箱,其中包括:(A)
英文和西班牙文信息图表,用于返回SARS-CoV-2检测结果;(B)支持设计的文件,
信息图表的实施和评价;以及(C)软件,以便能够在文化上量身定做
一致和健康知识的信息图。在NOT-OD-20-119中定义的研究兴趣区域内,
ReDIVis工具箱-RCR直接响应对SARS-CoV-2检测结果模板和工具包的需求
与社区、策略和资源合作设计,以提高测试的使用率和实用性
结果。此外,ReDIVis工具箱-RCR研究活动将促进对社会、伦理、
以及如何解释和使用测试结果的行为含义;具体地说,是如何影响测试结果
决策和新冠肺炎缓解行为(例如,社交疏远、自我孤立、戴口罩和
疫苗接种(如果可用)。此外,我们会与其他RADX-UP资助机构互动,以加强
ReDIVis工具箱的通用性。
英文摘要
The overall goal of Reaching Communities through the Design of Information Visualizations (ReDIVis) Toolbox
for Return of COVID-19 Results (RCR) is to decrease health disparities related to COVID-19 by enabling
widespread use of culturally congruent and health literate infographics to return the results of SARS-CoV-2
diagnostic and antibody testing in a manner that supports comprehension of the results, informs decision
making, and motivates appropriate behaviors. In collaboration with our community partner, the Association to
Benefit Children, we will use a mixed-methods research design to achieve the following specific aims:
1. Advance understanding of the factors that influence comprehension and use of the results of SARS-
CoV-2 diagnostic and antibody testing in underserved and vulnerable populations.
2. Collaborate with underserved and vulnerable populations to design infographics for returning the results
of SARS-CoV-2 diagnostic and antibody testing in a format that maximizes comprehension, informs
decision making, and motivates action.
3. Develop, implement, evaluate, and disseminate the ReDIVis Toolbox for returning the results of SARS-
CoV-2 diagnostic and antibody testing.
ReDIVis Toolbox-RCR builds upon substantial preliminary work in community engagement, lay-person
science, system development and evaluation, and information visualization as well as existing infrastructure:
(a) a research cohort of Latino adults, (b) the Visualization Design Studio of the Precision in Symptom Self-
Management Center, and (c) the novel COVIDWATCHER lay-person science platform. Informed by seven public
health ethics principles, ReDIVis Toolbox-RCR research activities (focus groups, interviews, surveys,
participatory design sessions, usability testing) will result in the web-based ReDIVis Toolbox that includes: (a)
infographics in English and Spanish for returning SARS-CoV-2 test results; (b) documents to support design,
implementation, and evaluation of infographics; and (c) software to enable the creation of tailored culturally
congruent and health literate infographics. Within the defined areas of research interests in NOT-OD-20-119,
ReDIVis Toolbox-RCR directly responds to the need for SARS-CoV-2 test results templates and toolkits
designed in collaboration with communities and strategies and resources to increase use and utility of test
results. In addition, ReDIVis Toolbox-RCR research activities will advance understanding of the social, ethical,
and behavioral implications of how test results are interpreted and used; specifically, how the results influence
decision making and COVID-19 mitigation behaviors (e.g., social distancing, self-isolation, mask wearing, and
vaccination, when available). Moreover, we will interact with other RADx-UP grantees to enhance the
generalizability of the ReDIVis Toolbox.
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DOI:
10.1016/j.nwh.2022.09.005
发表时间:
2022-12
期刊:
Nursing for women's health
影响因子:
--
作者:
[South, Katherine, Bakken, Suzanne, Koleck, Theresa, Barcelona, Veronica, Elhadad, Noemie, Dreisbach, Caitlin]
通讯作者:
Dreisbach, Caitlin
DOI:
10.1016/j.sleep.2021.07.023
发表时间:
2021-09
期刊:
Sleep medicine
影响因子:
4.8
作者:
[Ensari I, Caceres BA, Jackman KB, Suero-Tejeda N, Shechter A, Odlum ML, Bakken S]
通讯作者:
Bakken S
DOI:
10.1002/pbc.29877
发表时间:
2022-10
期刊:
Pediatric blood & cancer
影响因子:
3.2
作者:
[]
通讯作者:
Mining Twitter to Inform the Design of Online Interventions for Hispanic Alzheimer's Disease and Related Dementias Caregivers.
挖掘 Twitter 为西班牙裔阿尔茨海默病和相关痴呆症护理人员的在线干预设计提供信息。
DOI:
10.1177/1540415319882777
发表时间:
2020
期刊:
Hispanic health care international : the official journal of the National Association of Hispanic Nurses
影响因子:
--
作者:
[Yoon,Sunmoo, Lucero,Robert, Mittelman,MaryS, Luchsinger,JoséA, Bakken,Suzanne]
通讯作者:
Bakken,Suzanne
Cardiovascular Nursing Science Priorities: A Statement From the American Heart Association Council on Cardiovascular and Stroke Nursing.
心血管护理科学优先事项:美国心脏协会心血管和中风护理委员会的声明。
DOI:
10.1097/jcn.0000000000000489
发表时间:
2018
期刊:
The Journal of cardiovascular nursing
影响因子:
--
作者:
[Piano,MariannR, Artinian,NancyT, DeVon,HolliA, Pressler,SusanT, Hickey,KathleenT, Chyun,DeborahA]
通讯作者:
Chyun,DeborahA
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