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中文摘要
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具体目标 朝着改善慢性健康患者的自我管理过程和结果的目标 条件,这份P30提交的总体目标是加强跨学科,生物行为 在服务不足的人群中进行自我管理研究的科学家的研究能力 哥伦比亚大学护理学院提高自我管理的数量和质量 进行了研究。在P20探索中心六年的经验和生产力的基础上, 广泛的跨学科协作,出色的机构资源,包括临床和翻译 科学奖(CTSA),致力于为服务不足的人群进行研究的有力证据,而且是独一无二的 在信息学和经济分析领域的优势,这是循证中心的目标 在弱势群体中的实践(CEBP)是为了: 1.促进服务不足者自我管理的生物行为研究能力的发展 通过资助研究和实施四个跨学科 核心(行政、自我管理、生物行为和信息学;设计、方法、 生物统计和经济分析;传播和翻译),提供专业知识、服务、 和资源, 2.实施和维护以社交软件为基础的方法,以 CTSA“WorkWeb”门户,它将使自我管理领域的跨学科研究人员能够 通过访问各种信息和通信技术进行通信和协作 以及通过安全门户提供的服务, 3.加强CEBP调查员在以信息学为基础的方法方面的专门知识,以实现自我管理 以适合文化和水平的方式对服务不足的人群进行干预 健康素养, 4.发展CEBP调查员在应用适当经济方法方面的专门知识 对服务不足人群的自我管理研究的分析, 5.促进将研究成果传播到跨学科科学文献和翻译中 转化为实践和政策,以及 6.实施具有形成性和总结性的评估计划,其中包括可衡量的目标和正在进行的 评估每个核心和研究项目的进展情况、合作研究活动、 传播和影响从研究项目获得的知识,并努力促进 可持续发展。 这些目标与NINR战略计划中确定的三个自我管理机会领域相关:1) 开发技术以促进症状的早期自我识别和自我报告;2)从文化上设计 适当的自我管理决策战略,促进健康的生活方式选择,如饮食, 急性或慢性病患者的锻炼和初级保健做法;以及3)确定成本效益 疾病和疾病长期幸存者的自我管理和促进个人健康的战略 长期残障人士。我们的方法充分利用了出色的跨学科协作和 资源和创新信息技术的使用,包括社会/协作和知识 支持通信、协作和资源访问的管理软件。我们的资源 开发活动的重点是设计和实施将使信息成为可能的新资源 自我管理研究的共享和知识发展。
英文摘要
Specific Aims Toward the goal of improving self-management processes and outcomes for persons with chronic health conditions, the overall objectives of this P30 submission are to enhance interdisciplinary, biobehavioral research capacity for scientists conducting self-management research in underserved populations at the Columbia University School of Nursing and to increase the quantity and quality of the self-management research conducted. Building upon six years of experience and productivity as a P20 Exploratory Center, broad interdisciplinary collaboration, outstanding institutional resources including a Clinical and Translational Science Award (CTSA), strong evidence of commitment to research for underserved populations, and unique strengths in the areas of informatics and economic analysis, the aims of the Center for Evidence-based Practice in the Underserved (CEBP) are to: 1. Facilitate the development of biobehavioral research capacity in self-management for underserved populations through the funding of research studies and the implementation of four interdisciplinary cores (Administrative; Self-Management, Biobehavioral, and Informatics; Design, Methods, Biostatistics, and Economic Analysis; Dissemination and Translation) that provide expertise, services, and resources, 2. Implement and maintain a social software-based approach, building upon the infrastructure of the CTSA "WorkWeb" Portal, that will enable interdisciplinary researchers in self-management to communicate and collaborate by accessing a variety of information and communication technologies and services through a secure portal, 3. Enhance the expertise of CEBP investigators in informatics-based approaches that enable selfmanagement interventions for underserved populations in a manner appropriate to culture and level of health literacy, 4. Develop the expertise of CEBP investigators in application of appropriate economic methods and analyses for self-management studies in underserved populations, 5. Facilitate dissemination of research findings into the interdisciplinary scientific literature and translation into practice and policy, and 6. Implement a formative and summative evaluation plan that includes measurable goals and ongoing assessment of the progress of each Core and research project, collaborative research activities, dissemination and impact of knowledge gained from research projects, and efforts to facilitate sustainability. These aims are relevant to three self-management areas of opportunity identified in NINR's Strategic Plan: 1) develop technologies to facilitate early self-identification and self-reporting of symptoms; 2) design culturally appropriate self-management decision-making strategies that promote healthy lifestyle choices such as diet, exercise, and primary health care practices in acutely or chronically ill persons; and 3) identify cost-effective strategies for self-management and promotion of personal health among long-term survivors of disease and persons with chronic disabilities. Our approaches capitalize on outstanding interdisciplinary collaborations and resources and the use of innovative information technologies including social/collaborative and knowledge management software to support communication, collaboration, and resource access. Our resource development activities focus on the design and implementation of novel resources that will enable information sharing and knowledge development for self-management research.
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The Interdisciplinary Guided Network for Investigation, Translation and Equity (IGNITE) for All of Us Research Program
Precision in Symptom Self-Management (PriSSM) Center
Reaching Communities through the Design of Information Visualizations (ReDIVis) Toolbox for Return of COVID-19 Results
Reducing Health Disparities Through Informatics
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