HEALTH PROMOTION AND QUALITY OF LIFE IN CHRONIC ILLNESS

慢性病患者的健康促进和生活质量

• 批准号: 2257212
• 负责人: Alexa Stuifbergen
• 金额: $ 11.21万
• 依托单位: UNIVERSITY OF TEXAS AT AUSTIN
• 依托单位国家: 美国
• 财政年份: 1993
• 资助国家: 美国
• 起止时间: 1993-09-30 至 1998-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/2257212
• 关键词: chronic disease /disorder; disabling disease; health behavior; human population study; human subject; multiple sclerosis; nursing intervention; nursing models; patient care management; quality of life; social support network

Persons with chronic and disabling conditions have health promotion needs even though they are experiencing a disease with long-term consequences (USDHHS, 1991). In fact, the need for health promotion interventions may be accentuated for this group of individuals whose quality of life and ability to continue living independently are often heavily dependent on maintaining their "narrow margin of health" (DeJong & Batavia, 1991). Data specific to the health promotion needs of the chronically ill and disabled are minimal, despite recognition of health promotion activities as a form of symptom management for chronic diseases, including Multiple Sclerosis (MS). Assessment of health promotion needs and design of interventions to foster health promotion behaviors must address how limitations in time, energy, and mobility force chronically ill persons to make choices they perceive as having maximum payoff, given their sense of quality of life. Findings from the few studies of health promotion for adults with chronic illnesses and disabilities suggest that this population has positive, multidimensional perceptions of health (Stuifbergen et al, 1990, Williams, 1983), is interested in health promotion activities (Becker et al, 1989; Stuifbergen, 1991; Warms,1987), and that health knowledge and participation in health-promoting behaviors are positively related to physiological and psychological measures of health (Nosek, 1984). The purpose of this five year nursing study is to refine and confirm an explanatory model that can guide development of health-related interventions for promoting quality of life in individuals with one type of chronic illness, MS, The specific aims will be accomplished in two phases. The focus in Phase I will be to refine and validate, through qualitative methods, the model concepts identified in previous quantitative studies. The focus of this first phase is to extend understanding of the key model concepts of quality of life, health- promoting behaviors, search for possible additional concepts, and to determine that the measurement instruments to be used in the subsequent phases are valid representations of the concepts as viewed from the frame of reference of the person with MS. In Phase II, data collected from a large sample of individuals with MS (N=500) will be used to statistically test variable relationships and overall fit to the theoretical model refined in Phase I. Antecedents and modifying factors identified in Phase II will provide the basis for future tests of the utility of the statistically confirmed model in proposing specific nursing interventions for individuals with MS.

患有慢性病和残疾的人有促进健康的需要 即使他们正在经历一种具有长期后果的疾病， （USDHHS，1991年）。事实上，健康促进干预的必要性可能 这群人的生活质量和 继续独立生活的能力往往严重依赖于 维持其“健康的狭窄边缘”（DeJong & Batavia，1991）。数据 针对长期病患者和残疾人士的健康促进需要， 尽管认识到健康促进活动是一种形式， 包括多发性硬化症在内的慢性疾病的症状管理 （MS）。评估健康促进需求和设计干预措施， 促进健康的行为必须解决如何在时间上的限制， 能源和流动性迫使慢性病患者做出选择， 他们认为自己拥有最大的回报，因为他们对生活质量的感觉。 少数关于成人慢性病患者健康促进的研究结果 疾病和残疾表明，这一人群有积极的， 健康的多维感知（Stuifbergen等，1990，威廉姆斯， 1983），对健康促进活动感兴趣（Becker等，1989; Stuifbergen，1991年; Warms，1987年），健康知识和 参与促进健康的行为与 健康的生理和心理措施（Nosek，1984年）。 这项为期五年的护理研究的目的是提炼和确认一个 解释性模型，可以指导发展与健康有关的 干预措施，以提高生活质量的个人与一种类型的 慢性病，MS，具体目标将在两个 阶段。第一阶段的重点将是通过以下方式进行完善和验证： 定性的方法，模型的概念，确定在以前 定量研究。第一阶段的重点是扩大 了解生活质量、健康、 促进行为，搜索可能的额外概念，并 确定在随后的测量中使用的测量仪器 从框架的角度来看，阶段是概念的有效表示 在第二阶段，从一个 将使用MS患者的大样本（N=500）进行统计学分析， 测试变量关系和理论模型的总体拟合 在第一阶段完善。阶段中确定的前因和修正因素 第二部分将为今后测试 提出具体护理干预措施的统计学确认模型 对于MS患者。