INVESTIGATION OF SELECTED PATIENT GROUPS FROM THE CSSCD

承包商应作为临床中心进行调查 从镰状细胞病合作研究中选定的患者组 （CSSCD）。 承包商应与其他 CSSCD 调查员合作 和 NHLBI 工作人员参与制定和实施协议 继续追踪新生儿队列和存活超过年龄的患者 三十五。 本合同的主要目标是继续 追踪 CSSCD 目前正在追踪的新生儿队列 更好地了解早期器官损伤的严重程度、发生情况和风险 导致某些并发症和结果的因素。 这项研究是 还打算追踪另一组重要的幸存患者 三十五岁以上，以更好地了解长寿和死亡原因。

The Contractor shall serve as a clinical center for the investigation of selected patient groups from the Cooperative Study of Sickle Cell Disease (CSSCD). The Contractor shall collaborate with other CSSCD investigators and NHLBI staff in the development and implementation of a protocol to continue to follow the newborn cohort and patients surviving beyond age thirty-five. The principal objective of this contract is to continue to follow the newborn cohort of patients presently being followed in the CSSCD to better understand severity, onset of early organ damage, and risk factors contributing to certain complications and outcome. This study is also intended to follow another important cohort of patients surviving beyond age thirty-five to better understand longevity and causes of death.