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HEALTH PROMOTION AND QUALITY OF LIFE IN CHRONIC ILLNESS

慢性病患者的健康促进和生活质量

基本信息

批准号：
2519823
负责人：
Alexa Stuifbergen
金额：
$ 11.01万
依托单位：
UNIVERSITY OF TEXAS AT AUSTIN
依托单位国家：
美国
项目类别：
财政年份：
1993
资助国家：
美国
起止时间：
1993-09-30 至 1998-12-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/2519823
关键词：
behavioral /social science research tag chronic disease /disorder disabling disease health behavior human population study human subject multiple sclerosis nursing intervention nursing models patient care management quality of life social support network

项目摘要

Persons with chronic and disabling conditions have health promotion needs even though they are experiencing a disease with long-term consequences (USDHHS, 1991). In fact, the need for health promotion interventions may be accentuated for this group of individuals whose quality of life and ability to continue living independently are often heavily dependent on maintaining their "narrow margin of health" (DeJong & Batavia, 1991). Data specific to the health promotion needs of the chronically ill and disabled are minimal, despite recognition of health promotion activities as a form of symptom management for chronic diseases, including Multiple Sclerosis (MS). Assessment of health promotion needs and design of interventions to foster health promotion behaviors must address how limitations in time, energy, and mobility force chronically ill persons to make choices they perceive as having maximum payoff, given their sense of quality of life. Findings from the few studies of health promotion for adults with chronic illnesses and disabilities suggest that this population has positive, multidimensional perceptions of health (Stuifbergen et al, 1990, Williams, 1983), is interested in health promotion activities (Becker et al, 1989; Stuifbergen, 1991; Warms,1987), and that health knowledge and participation in health-promoting behaviors are positively related to physiological and psychological measures of health (Nosek, 1984). The purpose of this five year nursing study is to refine and confirm an explanatory model that can guide development of health-related interventions for promoting quality of life in individuals with one type of chronic illness, MS, The specific aims will be accomplished in two phases. The focus in Phase I will be to refine and validate, through qualitative methods, the model concepts identified in previous quantitative studies. The focus of this first phase is to extend understanding of the key model concepts of quality of life, health- promoting behaviors, search for possible additional concepts, and to determine that the measurement instruments to be used in the subsequent phases are valid representations of the concepts as viewed from the frame of reference of the person with MS. In Phase II, data collected from a large sample of individuals with MS (N=500) will be used to statistically test variable relationships and overall fit to the theoretical model refined in Phase I. Antecedents and modifying factors identified in Phase II will provide the basis for future tests of the utility of the statistically confirmed model in proposing specific nursing interventions for individuals with MS.

慢性病和残疾患者有健康促进需求即使他们正在经历一种具有长期后果的疾病（美国卫生与公众服务部，1991 年）。事实上，健康促进干预措施的需要可能对于这群人来说，他们的生活质量和继续独立生活的能力往往严重依赖于维持他们的“微弱的健康边际”（DeJong & Batavia，1991）。数据针对慢性病患者和残疾人的健康促进需求尽管人们认识到健康促进活动是一种形式，但影响很小包括多发性硬化症在内的慢性疾病的症状管理（多发性硬化症）。评估健康促进需求并设计干预措施促进健康促进行为必须解决时间限制、能量和流动性迫使慢性病患者做出他们想要的选择考虑到他们对生活质量的感觉，他们认为自己获得了最大的回报。少数关于成人慢性病患者健康促进的研究结果疾病和残疾表明该人群具有积极的、对健康的多维认知（Stuifbergen 等，1990，Williams， 1983），对健康促进活动感兴趣（Becker 等，1989；斯图伊夫贝根，1991； Warms，1987），以及健康知识和参与健康促进行为与健康的生理和心理测量（Nosek，1984）。这项为期五年的护理研究的目的是完善和确认可以指导健康相关发展的解释模型提高某一类型个体生活质量的干预措施慢性病、多发性硬化症的具体目标将分两期实现阶段。第一阶段的重点将是完善和验证，通过定性方法，之前确定的模型概念定量研究。第一阶段的重点是扩展了解生活质量、健康等关键模型概念促进行为，寻找可能的附加概念，并确定后续使用的测量仪器从框架来看，阶段是概念的有效表示多发性硬化症患者的参考资料。在第二阶段，从将使用 MS 患者的大样本 (N=500) 进行统计测试变量关系以及与理论模型的整体拟合在第一阶段进行细化。在第一阶段确定的前因和修改因素 II 将为以后的实用性测试提供基础提出具体护理干预措施的统计证实模型对于多发性硬化症患者。