Community-based participatory research: ethics and outcomes

基于社区的参与性研究：伦理和结果

• 批准号: AH/J501057/1
• 负责人: Sarah Banks
• 金额: $ 4.14万
• 依托单位: Durham University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2011
• 资助国家: 英国
• 起止时间: 2011 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FJ501057%2F1
• 关键词: Community; based; participatory; research; ethics

This paper outlines the findings of a scoping study examining ethical issues in community-based participatory research (CBPR), based on a literature search and the deliberations of a co-inquiry action research group. The search indicated a range of research approaches claiming to be participatory and community-based, showing significant variation in degrees of participation and community control. Ethical challenges in CBPR include matters relating to: partnership, collaboration and power; community rights, conflict and representation; ownership and dissemination of data, findings and publications; anonymity, privacy and confidentiality; institutional ethical review processes; and blurred boundaries between researcher and researched, academic and activist. While many of these issues are common in qualitative social research, what is distinctive about CBPR is the openness, fluidity and unpredictability of the research process. It is often complicated by multi-layered partnerships based on the negotiation of power relations between diverse groups (with specific histories, politics, cultures and personalities), whilst also being constrained by rigid structures of research governance. Recommendations include: the adoption of specific ethical guidelines for CBPR by UK researchers, funders and sponsors; ethnographic research on the CBPR process; a search of grey literature for accounts of CBPR from community perspectives; and further longitudinal research on outcomes of CBPR.

本文概述了一个范围研究的研究结果，探讨以社区为基础的参与式研究（CBPR）的伦理问题，基于文献检索和共同调查行动研究小组的审议。搜索结果表明，一系列的研究方法声称是参与性和社区为基础的，显示参与程度和社区控制的显着差异。CBPR中的伦理挑战包括与以下方面有关的问题：伙伴关系、协作和权力;社区权利、冲突和代表;数据、调查结果和出版物的所有权和传播;匿名、隐私和保密;机构伦理审查程序;以及研究人员与被研究人员、学术界和活动家之间的模糊界限。虽然其中许多问题在定性社会研究中很常见，但CBPR的独特之处在于研究过程的开放性，流动性和不可预测性。它往往是复杂的多层次的伙伴关系的基础上谈判的权力关系的不同群体（具有特定的历史，政治，文化和个性），同时也受到严格的研究治理结构的限制。建议包括：英国研究人员、资助者和赞助者通过了CBPR的具体伦理准则;对CBPR过程进行了人种学研究;从社区角度对CBPR的灰色文献进行了搜索;并对CBPR的结果进行了进一步的纵向研究。

项目成果

Performing Ethics: Using participatory theatre to explore ethical issues in community-based participatory research

表演伦理：利用参与式戏剧探讨社区参与性研究中的伦理问题

• 发表时间: 2014
• 作者: Banks, S.

Tackling Ethical Challenges in Community-based Participatory Research

应对基于社区的参与性研究中的道德挑战

• 发表时间: 2013
• 作者: Centre For Social Justice;Community Action
• 通讯作者: Community Action

Community-based participatory research. A guide to ethical principles and practice

基于社区的参与性研究。

• 发表时间: 2012
• 作者: Centre For Social Justice;Community Action, Durham University
• 通讯作者: Community Action, Durham University

Ethics in community - based participatory research: case studies, case examples and commentaries

社区参与性研究中的伦理：案例研究、案例和评论

• 发表时间: 2012
• 作者: Banks, S.

What is doing research together?

一起做研究做什么？

• 发表时间: 2013
• 作者: Centre For Social Justice;Community Action, Durham University
• 通讯作者: Community Action, Durham University