Tackling ethical issues and dilemmas in community-based participatory research: a practical resource

解决社区参与性研究中的伦理问题和困境：实用资源

• 批准号: AH/J006645/1
• 负责人: Sarah Banks
• 金额: $ 3.92万
• 依托单位: Durham University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2012
• 资助国家: 英国
• 起止时间: 2012 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FJ006645%2F1
• 关键词: Tackling; ethical; issues; dilemmas; community

This project will bring together community partners and academics from 4 existing Connected Communities (CC) projects in a workshop and small working groups to share ideas and experiences and develop guidance and learning materials on ethics in community-based participatory research (CBPR). The project will be supported by international advisors from 5 countries and the National Coordinating Centre for Public Engagement (NCCPE) as a partner.Recently interest has grown in CBPR - that is, research tackling issues relevant to communities of place, interest and identity and involving affected people in planning, undertaking, disseminating and using research. This approach is often adopted to give people who are usually the objects of research greater control over the process, to embed research skills in communities and to increase research impact. CBPR approaches are regarded as particularly useful in the context of 'hard to reach' communities, and in research on sensitive issues. Many ethical challenges arise in CBPR - particularly in relation to the power of professional researchers, the blurring of boundaries between community members and researchers and the inflexibility of institutional structures (including university research ethics committees) to cope with unpredictability and complex partnership arrangements. Aims: To deepen understanding of the complex ethical issues and challenges in CBPR and develop ethical guidance, case studies and practical exercises from the UK in a range of settings and disciplinary areas for use in future CC and other research projects.Objectives1)undertake a rapid review of ethical issues in published findings of all CC projects and a detailed synthesis of 4 existing CC projects. 2)Engage in dialogue with a range of stakeholders, including community partners from the projects, international advisors and NCCPE to identify further ethical issues, share and analyse ethical problems and ways of tackling these.3)Produce a document and web-based materials offering ethical guidance, case studies, case examples with commentaries and learning materials relevant to CBPR.4)Encourage improvement in institutional research ethics review, policies, procedures, training and support to take account of the challenges and complexities of CBPR.5)Develop greater awareness/improved practice among university and community researchers and other stakeholders in relation to ethical issues in CBPR.The project will 1) Finalise 'guidelines on ethical conduct' to be drafted by the current Durham CC project.2) Produce 4 case studies, each featuring a different CBPR project, written to show how ethical principles are applied in practice and to highlight ethical issues in the project (e.g. how a partnership agreement was put in place).3) Produce 4 case examples of specific ethical problems/dilemmas, written from the perspective of a research participant, outlining details of particular ethical difficulties (e.g. discriminatory attitudes in the research group). Each case example will be followed by 2 or 3 commentaries - at least one written by a community researcher and another by an academic or research student (including international advisors).4) Practical exercises for use by CBPR teams and in training for academic staff, students and community partners.The materials will be published on the NCCPE website as a downloadable pdf file and also in sections, to which further cases, commentaries and exercises can be added over time as an on-going resource in partnership with Durham University's Centre for Social Justice and Community Action.The project has potential to benefit academics, research ethics committees, third and public sector bodies, funders/sponsors and communities where research takes place. Dissemination by NCCPE and other bodies will result in raised awareness of ethical issues in CBPR amongst researchers, funders and participants; and improved policies and processes.

该项目将把来自 4 个现有互联社区 (CC) 项目的社区合作伙伴和学者聚集在一起，召开研讨会和小型工作组，分享想法和经验，并制定有关社区参与性研究 (CBPR) 道德规范的指导和学习材料。该项目将得到来自 5 个国家的国际顾问以及作为合作伙伴的国家公众参与协调中心 (NCCPE) 的支持。最近人们对 CBPR 的兴趣有所增长，即研究解决与地方、利益和身份社区相关的问题，并让受影响的人们参与规划、开展、传播和使用研究。通常采用这种方法是为了让通常是研究对象的人对过程有更大的控制权，将研究技能融入社区并增加研究影响。 CBPR 方法被认为在“难以接触”的社区和敏感问题的研究中特别有用。 CBPR 中出现了许多伦理挑战，特别是与专业研究人员的权力、社区成员和研究人员之间界限的模糊以及机构结构（包括大学研究伦理委员会）在应对不可预测性和复杂的伙伴关系安排方面缺乏灵活性有关。目标：加深对 CBPR 中复杂伦理问题和挑战的理解，并在一系列环境和学科领域中制定来自英国的伦理指导、案例研究和实践练习，以供未来 CC 和其他研究项目使用。目标 1) 对所有 CC 项目已发表的研究结果中的伦理问题进行快速审查，并对 4 个现有 CC 项目进行详细综合。 2) 与一系列利益相关者进行对话，包括来自项目的社区合作伙伴、国际顾问和 NCCPE，以确定进一步的伦理问题，分享和分析伦理问题以及解决这些问题的方法。3) 制作一份文件和网络材料，提供伦理指导、案例研究、带有评论的案例示例以及与 CBPR 相关的学习材料。4) 鼓励改进机构研究伦理审查、政策、程序、培训和支持，以考虑到 CBPR 的挑战和复杂性。5) 提高大学和社区研究人员以及其他利益相关者对 CBPR 中道德问题的认识/改进实践。该项目将 1) 最终确定由当前 Durham CC 项目起草的“道德行为指南”。2) 制作 4 个案例研究，每个案例研究都有一个不同的 CBPR 项目，旨在展示道德原则如何在实践中应用，并强调项目中的道德问题（例如， 合伙协议是如何制定的）。3）从研究参与者的角度撰写 4 个特定道德问题/困境的案例，概述特定道德困难的细节（例如研究小组中的歧视态度）。每个案例示例后将附有 2 或 3 篇评论 - 至少一篇由社区研究人员撰写，另一篇由学术或研究生（包括国际顾问）撰写。4) 供 CBPR 团队使用以及对学术人员、学生和社区合作伙伴进行培训的实践练习。这些材料将以可下载的 pdf 文件和章节的形式在 NCCPE 网站上发布，随着时间的推移，可以在其中添加更多案例、评论和练习，作为持续资源 与杜伦大学社会正义和社区行动中心合作。该项目有可能使学术界、研究伦理委员会、第三和公共部门机构、资助者/赞助者以及进行研究的社区受益。 NCCPE 和其他机构的传播将提高研究人员、资助者和参与者对 CBPR 道德问题的认识；并改进政策和流程。

项目成果

Issues of Disclosure and Intrusion: Ethical Challenges for a Community Researcher

• DOI: 10.1080/17496535.2013.769344
• 发表时间: 2013-01-01
• 期刊: ETHICS & SOCIAL WELFARE
• 影响因子: 1
• 作者: Carter, Kathleen;Banks, Sarah;Burkett, Ingrid
• 通讯作者: Burkett, Ingrid

Performing Ethics: Using participatory theatre to explore ethical issues in community-based participatory research

表演伦理：利用参与式戏剧探讨社区参与性研究中的伦理问题

• 发表时间: 2014
• 作者: Banks, S.

Tackling Ethical Challenges in Community-based Participatory Research

应对基于社区的参与性研究中的道德挑战

• 发表时间: 2013
• 作者: Centre For Social Justice;Community Action
• 通讯作者: Community Action

Community-based participatory research. A guide to ethical principles and practice

基于社区的参与性研究。

• 发表时间: 2012
• 作者: Centre For Social Justice;Community Action, Durham University
• 通讯作者: Community Action, Durham University

Ethics in community - based participatory research: case studies, case examples and commentaries

社区参与性研究中的伦理：案例研究、案例和评论

• 发表时间: 2012
• 作者: Banks, S.