Memory - Identity - Rights in Records - Access: Embedding Participatory Recordkeeping in Child Social Care

“记忆-身份-记录中的权利-访问：在儿童社会关怀中嵌入参与式记录保存”直接遵循我们早期的研究资助“导航公共信息权利生态”。后者探讨了英国儿童社会关怀背景下的信息权利，特别是从有过护理经验的人的角度出发，这些人在以后的生活中寻求获得关于童年的记录。该研究与我们的第三部门合作伙伴——护理离开者协会（The Care Leavers' Association）共同制作，通过访谈、焦点小组和与不同利益相关者的研讨会收集数据。这一数据有力地支持了在儿童社会照料环境中向参与式记录保存方法的根本转变。目前，记录和记录保存系统以服务提供者的需求为导向，重点是风险管理、向中央政府强制性报告和社会工作者的需求。因此，被照顾的儿童、照料者和家庭的声音和感受往往被忽略或模糊。系统也是专有的，从商业提供商处采购，很少与相邻服务（如卫生、教育或青年司法）中使用的竞争供应商的软件互操作，这使得它们包含的信息难以共享。只有少数人可以访问这些记录，这加剧了一种将记录视为内部、行政和官僚的工作文化。相反，我们的研究表明，记录是其他利益相关者的重要资源，尤其是有护理经验的人自己，在了解某人的生活环境方面。被照顾的孩子和离开照顾的孩子对记录有深刻的个人和情感需求，以帮助他们构建生活叙事和自我意识。因此，记录保存的透明度和公平性具有极大的潜力，可以增加他们的福祉和归属感。使用参与式记录保存系统将使受照料的儿童能够更积极地参与记录其生活的记录的创建和管理。这将有助于减轻她们所面临的与外界脱节、孤立和丧失权力的情况。他们的声音将被捕捉，他们的经历和感受将被集中。与此同时，参与式记录保存程序将是对最近政府议程的适当回应，这些议程提倡在社会照料环境中采取以儿童为中心的做法。它们将平衡不同记录利益相关者的访问需求，同时也满足关键的立法要求（如2018年数据保护法）。可以以透明和有效的方式处理隐私、保密、准确性和冲突问题。然而，参与性实践的实施目前因市场上缺乏适当的启用软件而受到阻碍。在这个后续项目中，我们将与社会护理系统市场的主要供应商OLM合作，使用我们原始研究的发现和产出作为开发所需规范的基础，以支持商业可用参与式系统的开发。通过将UCL团队与OLM的产品设计师和用户体验专家聚集在一起，我们将能够测试与我们的建议一致的系统概念，并且可以将我们的参与性，公平和公正的社会护理记录框架嵌入到儿童社会护理环境中使用的数字工具中。随后，我们将在英格兰、威尔士和苏格兰为儿童服务提供者举办的两次高调发布活动中展示和传播最终的规范，以及我们的原始研究结果，涉及多达150个组织。通过这种方式，该项目将为英国关于社会护理记录保存的辩论做出重要贡献，利用长期变化。

'Memory - Identity - Rights in Records - Access: Embedding Participatory Recordkeeping in Child Social Care' follows directly from our earlier research grant 'Navigating the Public Information Rights Ecology'. The latter explored information rights in the context of child social care in England, particularly from the perspective of care-experienced people who sought access to records about their childhoods later in life. Co-produced with our third sector partners, The Care Leavers' Association, the research collected data through interviews, focus groups and workshops with diverse stakeholders. This data evidenced strong support for a fundamental shift towards participatory recordkeeping approaches in child social care settings. At present recording and recordkeeping systems are oriented towards the needs of service providers, with a focus on risk management, mandatory reporting to central government and the needs of social workers. As a result the voices and feelings of looked after children, carers and families are often missing or obscured. Systems are also proprietary, procured from commercial providers, and are rarely interoperable with the software from competing vendors used in adjacent services (such as health, education or youth justice), making the information they contain difficult to share. They can only be accessed by a limited number of individuals, exacerbating a work culture which sees the record as internal, administrative and bureaucratic. On the contrary our research demonstrated that records are a vital resource for other stakeholders, most especially the care experienced person themselves, in understanding the circumstances of someone's life. Children in care and care leavers have a deep personal and emotional need for records to help construct life narratives and a sense of self. Transparency and equity in recordkeeping therefore has significant potential to increase their wellbeing and sense of belonging. Using participatory recordkeeping systems would enable the child in care to be more actively involved in the creation and management of the records that document their lives. This would help to alleviate the disconnection, isolation and disempowerment they face. Their voices would be captured and their experiences and feelings centralised. At the same time participatory recordkeeping processes would represent a proper response to recent government agendas that advocate for child-centred practices in social care settings. They would balance the access needs of different record stakeholders whilst also meeting key legislative requirements (such as the Data Protection Act 2018). Issues of privacy, confidentiality, accuracy and conflict could be addressed in transparent and efficient ways. However, implementation of participatory practices is currently hindered by the lack of appropriate enabling software on the market. During this follow-on project we will engage with OLM, a major vendor in the social care systems market, to use the findings and outputs of our original research as the basis for the development of the specification required to support the development of a commercially available participatory system. By bringing together the UCL team with product designers and user experience experts from OLM, we will be able to test the concept of a system that aligns with our recommendations, and that can embed our framework for participatory, equitable and just social care recording into the digital tools used in children's social care settings. Subsequently, we will present and disseminate the resulting specification, alongside the findings of our original research, in two high profile launch events for children's service providers in England, Wales and Scotland, reaching up to 150 organisations. In this way the project will make an important contribution to the debates about social care recordkeeping in the UK, leveraging long term change.