CVI and ART, (CVIART) SENSING THINGS DIFFERENTLY: DEVELOPING UNDERSTANDING OF CEREBRAL VISUAL IMPAIRMENT THROUGH MUSIC, DANCE AND ART COMPOSITION

CVI 和艺术，(CVIART) 以不同的方式感知事物：通过音乐、舞蹈和艺术创作发展对脑视力障碍的理解

• 批准号: AH/V010271/1
• 负责人: John Ravenscroft
• 金额: $ 7.71万
• 依托单位: University of Edinburgh
• 依托单位国家: 英国
• 项目类别: Fellowship
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FV010271%2F1
• 关键词: CVI; ART; CVIART; SENSING; THINGS

This proposal provides a bridge between the academic theoretical work concerning Cerebral Visual Impairment (CVI), the most common form of childhood visual impairment, and the understanding of CVI needed by parents, carers, and professionals in their supporting roles as well as the children themselves, through the interweaving of theory and the creative areas of art, music and dance. Estimates based on research suggest between 5-10% of the population of the UK may have one form of CVI or another, and on average one child in every class of thirty across all mainstream schools is likely to be affected. The main objective of the proposed fellowship is to provide for the very first time through music, dance and art, ways of explaining and understanding CVI, and more importantly understanding what a child with CVI may perceive. One cannot learn from what one does not see. This obvious statement underpins the necessity of ensuring access to all aspects of life that bring about learning, recognizing that learning during childhood is the most fundamental element of human development. Classical approaches to learning tend to be organized and structured, yet we all know that what we learned when we were happy, engaged and motivated stands out as being the most pivotal of moments of our childhood. So how can children with cerebral visual impairment be engaged in this way? The answer to this question rests upon two fundamental concepts: Access, and engagement.Access is brought about by ensuring that for each individual person with cerebral visual impairment every element of what is communicated and engaged with can actually be perceived, appreciated and understood.Engagement results from creating compelling visual aspects, combined with creativity and originalityThese concepts will help them to understand their world and how it looks different to ours, even when the detail of the picture we are both looking at, may be the same. Understanding CVI and the impact it has on a child will lead to greater support by parents and professionals, but explaining CVI is difficult, because it is a truly invisible disability, invisible even to the child, for visual information is processed in the non-conscious parts of the brain. Each child with CVI perceives their world differently, and CVI is typically dynamic, so their visual world can alter significantly, from moment to moment, from one of lucidity and happiness to one of being overwhelmed and terrified. The arts have been successfully used as a teaching approach where, for many reasons, traditional learning may be challenging for a child. This fellowship goes a step further, to explain through artistic interpretations the alternative ways the world is experienced for children with CVI. This has the potential to open up new ways in which artists can use their expertise, skills and passion to reach enormous numbers of children, but more importantly by taking forward these fundamental steps and showing others how this can be brought about by using materials carefully matched to be accessible to the profoundly and moderately affected children, the benefits that could accrue internationally could be revolutionary. In order to reach the community of children and adults with CVI, I will work closely with CVI Scotland, a charity that was created to support parents and carers, and children and adults with CVI. Since the website's launch in 2017, cviscotland.org has registered over 16,500 UK users, and is approaching 60,000 users world wide, from 160 countries (source Google Analytics). Scotland users (5,500) accounts for 33% of all UK users. The website has a resources section where salient information from other organisations is allowed to be disseminated, and the charity has agreed to support me with this project. I am an advisor to CVI Scotland and regularly review content and support their projects. I also have a wide network of personal contacts (formal and informal).

这项建议提供了一个桥梁之间的学术理论工作有关脑视觉障碍（CVI），儿童视觉障碍的最常见的形式，并通过理论和艺术，音乐和舞蹈的创造性领域的交织，家长，照顾者和专业人士在他们的支持角色以及儿童本身所需要的CVI的理解。基于研究的估计表明，英国5-10%的人口可能患有一种或另一种形式的CVI，所有主流学校平均每30名班级中有一名儿童可能受到影响。拟议奖学金的主要目标是通过音乐，舞蹈和艺术首次提供解释和理解CVI的方法，更重要的是了解患有CVI的儿童可能会感知到什么。一个人不能从他没有看到的东西中学习。这一显而易见的说法强调，必须确保获得生活的各个方面，从而实现学习，承认儿童时期的学习是人类发展的最基本要素。经典的学习方法往往是有组织和有结构的，但我们都知道，我们在快乐、投入和有动力的时候学到的东西是我们童年最关键的时刻。那么，如何才能让患有脑性视力障碍的儿童从事这种方式呢？这个问题的答案取决于两个基本概念：访问和参与。访问是通过确保每个患有大脑视觉障碍的人能够实际感知，欣赏和理解所交流和参与的每一个元素来实现的。参与来自创造引人注目的视觉方面，这些概念将帮助他们理解他们的世界，以及它与我们的世界是如何不同的，即使我们都在看的图片的细节可能是相同的。了解CVI及其对儿童的影响将得到父母和专业人士的更多支持，但解释CVI是困难的，因为它是一种真正无形的残疾，甚至对儿童来说也是无形的，因为视觉信息是在大脑的无意识部分处理的。每个患有CVI的孩子对他们的世界的感知都不同，而CVI通常是动态的，所以他们的视觉世界可以随时发生显著变化，从清醒和快乐到不知所措和恐惧。艺术已成功地用作一种教学方法，由于许多原因，传统的学习可能对儿童具有挑战性。这个奖学金更进一步，通过艺术诠释解释了CVI儿童体验世界的替代方式。这有可能开辟新的途径，使艺术家能够利用他们的专业知识、技能和热情接触到大量儿童，但更重要的是，通过采取这些基本步骤，并向其他人展示如何通过使用精心匹配的材料来实现这一点，以便受到严重和中度影响的儿童能够接触到，国际上可能产生的好处可能是革命性的。为了接触到患有CVI的儿童和成人社区，我将与CVI苏格兰密切合作，这是一个旨在支持父母和照顾者以及患有CVI的儿童和成人的慈善机构。自2017年网站推出以来，cviscotland.org已注册超过16，500名英国用户，并在全球范围内接近60，000名用户，来自160个国家（来源Google Analytics）。苏格兰用户（5，500）占所有英国用户的33%。该网站有一个资源部分，允许传播来自其他组织的重要信息，慈善机构已同意支持我的这个项目。我是CVI苏格兰的顾问，定期审查内容并支持他们的项目。我也有广泛的个人联系网络（正式和非正式）。

项目成果

Cerebral visual impairment and educational support in the United Kingdom: Understanding thresholds for providing support

• DOI: 10.1177/02646196221143315
• 发表时间: 2022-12-29
• 期刊: BRITISH JOURNAL OF VISUAL IMPAIRMENT
• 影响因子: 0.8
• 作者: Pilling，Rachel F.;Ravenscroft，John
• 通讯作者: Ravenscroft，John

Cerebral Visual Impairment on the Web: An Exploration of an Educational Web Resource as a Bridge to Public Understanding

网络上的脑视觉障碍：教育网络资源作为公众理解桥梁的探索

• 发表时间: 2021
• 期刊: Frontiers in Communication
• 影响因子: 2.4
• 作者: Ravenscroft, J

An evolving explanatory framework for understanding the complex profile of cerebral visual impairment

一个不断发展的解释框架，用于理解脑视觉障碍的复杂概况

• DOI: 10.1177/02646196231163652
• 发表时间: 2023
• 期刊: British Journal of Visual Impairment
• 影响因子: 0.8
• 作者: Merabet L

Clinical assessment, investigation, diagnosis and initial management of cerebral visual impairment: a consensus practice guide.

脑视力障碍的临床评估、调查、诊断和初步管理：共识实践指南。

• DOI: 10.1038/s41433-022-02261-6
• 发表时间: 2023-07
• 期刊: EYE
• 影响因子: 3.9
• 作者: Pilling, Rachel Fiona;Allen, Louise;Bowman, Richard;Ravenscroft, John;Saunders, Kathryn J.;Williams, Cathy
• 通讯作者: Williams, Cathy