CVI and ART, (CVIART) SENSING THINGS DIFFERENTLY: DEVELOPING UNDERSTANDING OF CEREBRAL VISUAL IMPAIRMENT THROUGH MUSIC, DANCE AND ART COMPOSITION

CVI 和艺术，(CVIART) 以不同的方式感知事物：通过音乐、舞蹈和艺术创作发展对脑视力障碍的理解

• 批准号: AH/V010271/1
• 负责人: John Ravenscroft
• 金额: $ 7.71万
• 依托单位: University of Edinburgh
• 依托单位国家: 英国
• 项目类别: Fellowship
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FV010271%2F1
• 关键词: CVI; ART; CVIART; SENSING; THINGS

This proposal provides a bridge between the academic theoretical work concerning Cerebral Visual Impairment (CVI), the most common form of childhood visual impairment, and the understanding of CVI needed by parents, carers, and professionals in their supporting roles as well as the children themselves, through the interweaving of theory and the creative areas of art, music and dance. Estimates based on research suggest between 5-10% of the population of the UK may have one form of CVI or another, and on average one child in every class of thirty across all mainstream schools is likely to be affected. The main objective of the proposed fellowship is to provide for the very first time through music, dance and art, ways of explaining and understanding CVI, and more importantly understanding what a child with CVI may perceive. One cannot learn from what one does not see. This obvious statement underpins the necessity of ensuring access to all aspects of life that bring about learning, recognizing that learning during childhood is the most fundamental element of human development. Classical approaches to learning tend to be organized and structured, yet we all know that what we learned when we were happy, engaged and motivated stands out as being the most pivotal of moments of our childhood. So how can children with cerebral visual impairment be engaged in this way? The answer to this question rests upon two fundamental concepts: Access, and engagement.Access is brought about by ensuring that for each individual person with cerebral visual impairment every element of what is communicated and engaged with can actually be perceived, appreciated and understood.Engagement results from creating compelling visual aspects, combined with creativity and originalityThese concepts will help them to understand their world and how it looks different to ours, even when the detail of the picture we are both looking at, may be the same. Understanding CVI and the impact it has on a child will lead to greater support by parents and professionals, but explaining CVI is difficult, because it is a truly invisible disability, invisible even to the child, for visual information is processed in the non-conscious parts of the brain. Each child with CVI perceives their world differently, and CVI is typically dynamic, so their visual world can alter significantly, from moment to moment, from one of lucidity and happiness to one of being overwhelmed and terrified. The arts have been successfully used as a teaching approach where, for many reasons, traditional learning may be challenging for a child. This fellowship goes a step further, to explain through artistic interpretations the alternative ways the world is experienced for children with CVI. This has the potential to open up new ways in which artists can use their expertise, skills and passion to reach enormous numbers of children, but more importantly by taking forward these fundamental steps and showing others how this can be brought about by using materials carefully matched to be accessible to the profoundly and moderately affected children, the benefits that could accrue internationally could be revolutionary. In order to reach the community of children and adults with CVI, I will work closely with CVI Scotland, a charity that was created to support parents and carers, and children and adults with CVI. Since the website's launch in 2017, cviscotland.org has registered over 16,500 UK users, and is approaching 60,000 users world wide, from 160 countries (source Google Analytics). Scotland users (5,500) accounts for 33% of all UK users. The website has a resources section where salient information from other organisations is allowed to be disseminated, and the charity has agreed to support me with this project. I am an advisor to CVI Scotland and regularly review content and support their projects. I also have a wide network of personal contacts (formal and informal).

这项建议提供了一座桥梁，通过理论与艺术、音乐和舞蹈等创造性领域的交织，在有关儿童视力障碍的最常见形式--脑视觉障碍(CVI)的学术理论工作与父母、照顾者、专业人员在其辅助角色中所需的对CVI的理解以及儿童本身之间架起一座桥梁。基于研究的估计表明，英国5%-10%的人口可能患有某种形式的CVI，所有主流学校平均每30名学生中就有一名儿童受到影响。拟议的奖学金的主要目标是通过音乐、舞蹈和艺术首次提供解释和理解CVI的方法，更重要的是了解患有CVI的儿童可能感受到的东西。人不能从看不到的东西中学到东西。这一显而易见的声明强调了必须确保获得带来学习的生活的方方面面，认识到儿童时期的学习是人类发展的最基本要素。传统的学习方法往往是有组织和有结构的，但我们都知道，当我们快乐、投入和积极地学习时，我们所学到的东西是我们童年最关键的时刻。那么，脑性视障儿童如何才能如此投入呢？这个问题的答案取决于两个基本概念：访问和参与。访问是通过确保每个大脑视觉障碍患者实际上可以感知、欣赏和理解所沟通和参与的每个元素。参与的结果是创造引人注目的视觉方面，与创造力和原创性相结合这些概念将帮助他们理解他们的世界以及它看起来如何与我们不同，即使我们所看到的画面的细节可能是相同的。了解CVI及其对儿童的影响将导致父母和专业人士更多地支持CVI，但解释CVI是困难的，因为它是一种真正的无形残疾，甚至对儿童来说也是无形的，因为视觉信息是在大脑的无意识部分处理的。每个患有CVI的孩子对他们的世界的感知是不同的，而且CVI通常是动态的，所以他们的视觉世界可以从一个清醒和快乐的世界到一个不知所措和恐惧的世界，从一个时刻到另一个时刻。艺术已经被成功地用作一种教学方法，由于许多原因，传统的学习对孩子来说可能是一种挑战。这一团契更进一步，通过艺术解释解释患有CVI的儿童体验世界的另一种方式。这有可能开辟新的方式，让艺术家们能够利用他们的专业知识、技能和激情接触到大量的儿童，但更重要的是，通过推进这些基本步骤，并向其他人展示如何通过使用精心匹配的材料来实现这一点，使受严重和中度影响的儿童能够接触到这些材料，国际上可能获得的好处可能是革命性的。为了接触到患有CVI的儿童和成人社区，我将与CVI Scotland密切合作，CVI苏格兰是一个慈善机构，旨在支持父母和照顾者，以及患有CVI的儿童和成人。自2017年网站推出以来，cviscotland.org已经在英国注册了超过16,500名用户，并在全球范围内来自160个国家和地区的近60,000名用户(来源：谷歌分析)。苏格兰用户(5500人)占英国用户总数的33%。该网站有一个资源部分，允许传播来自其他组织的重要信息，该慈善机构已同意支持我的这个项目。我是CVI苏格兰的顾问，定期审查内容并支持他们的项目。我也有广泛的个人关系网(正式和非正式的)。

项目成果

Cerebral visual impairment and educational support in the United Kingdom: Understanding thresholds for providing support

• DOI: 10.1177/02646196221143315
• 发表时间: 2022-12-29
• 期刊: BRITISH JOURNAL OF VISUAL IMPAIRMENT
• 影响因子: 0.8
• 作者: Pilling，Rachel F.;Ravenscroft，John
• 通讯作者: Ravenscroft，John

Cerebral Visual Impairment on the Web: An Exploration of an Educational Web Resource as a Bridge to Public Understanding

网络上的脑视觉障碍：教育网络资源作为公众理解桥梁的探索

• 发表时间: 2021
• 期刊: Frontiers in Communication
• 影响因子: 2.4
• 作者: Ravenscroft, J

An evolving explanatory framework for understanding the complex profile of cerebral visual impairment

一个不断发展的解释框架，用于理解脑视觉障碍的复杂概况

• DOI: 10.1177/02646196231163652
• 发表时间: 2023
• 期刊: British Journal of Visual Impairment
• 影响因子: 0.8
• 作者: Merabet L

Clinical assessment, investigation, diagnosis and initial management of cerebral visual impairment: a consensus practice guide.

脑视力障碍的临床评估、调查、诊断和初步管理：共识实践指南。

• DOI: 10.1038/s41433-022-02261-6
• 发表时间: 2023-07
• 期刊: EYE
• 影响因子: 3.9
• 作者: Pilling, Rachel Fiona;Allen, Louise;Bowman, Richard;Ravenscroft, John;Saunders, Kathryn J.;Williams, Cathy
• 通讯作者: Williams, Cathy