Alternative Explanations for Disability: Inspiring patient-centered care among healthcare practitioners through the arts

对残疾的另类解释：通过艺术激发医疗保健从业者以患者为中心的护理

• 批准号: AH/Y000595/1
• 负责人: Charlotte Baker
• 金额: $ 7.5万
• 依托单位: Lancaster University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2024
• 资助国家: 英国
• 起止时间: 2024 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FY000595%2F1
• 关键词: Alternative; Explanations; Disability; Inspiring; patient

The proposed project builds on the finding of the Disability and Inclusion Africa (DIA) project that many health practitioners in sub-Saharan Africa have little understanding of the complexity of living with disability and that the alternative explanations for disability highlighted by the DIA project are not sufficiently understood. These 'alternative explanations' include assumptions and misconceptions, medical determinist, and religious or supernatural beliefs.Discourses of disability are often created by medical professionals, social scientists or development agencies, and most often in the global north, quite removed from the daily realities of disabled persons. These discourses are embedded into healthcare systems and practices in sub-Saharan African contexts, where the focus is primarily on treating the specific medical condition or disability, rather than taking a more holistic patient-centered approach which recognizes the wider impact of beliefs and attitudes on disabled persons.This follow-on project engages applied theatre and creative writing to stimulate dialogue and reflection to enhance healthcare practitioners' understandings of the experience of being disabled in sub-Saharan African contexts. A series of workshops facilitated by theatre and creative writing practitioners will be held in Nigeria, Cameroon and South Africa, bringing together disabled persons and healthcare practitioners to reflect on what it means to be disabled in contemporary sub-Saharan Africa. Drawing on the workshop discussions and outputs, the project team will work with Disabled Persons Organizations and trainers of healthcare practitioners to develop a Continuing Professional Development Resource for healthcare practitioners.By increasing awareness of the impact of these alternative explanations among health professionals, the project aims to inform their practice and inspire a more patient-centered approach.

拟议项目的基础是非洲残疾和包容项目的调查结果，即撒哈拉以南非洲的许多卫生从业人员对残疾人生活的复杂性了解甚少，而且非洲残疾和包容项目强调的残疾的其他解释也没有得到充分理解。这些“替代解释”包括假设和误解、医学决定论、宗教或超自然信仰。关于残疾的论述往往是由医疗专业人员、社会科学家或发展机构创造的，而且大多数发生在北半球，与残疾人的日常现实相去甚远。这些论述被嵌入到撒哈拉以南非洲环境中的医疗保健系统和实践中，重点主要是治疗特定的医疗状况或残疾，而不是采取更全面的以病人为中心的方法，认识到信念和态度对残疾人士有更广泛的影响。该项目采用应用戏剧和创意写作，以激发对话和反思，提高医疗从业员对亚残疾人经历的理解，撒哈拉非洲背景。将在尼日利亚、喀麦隆和南非举办一系列由戏剧和创意写作从业人员主持的讲习班，使残疾人和保健从业人员聚集一堂，反思当代撒哈拉以南非洲的残疾人意味着什么。根据研讨会的讨论和成果，项目团队将与残疾人组织和医疗从业人员的培训师合作，为医疗从业人员开发持续专业发展资源。通过提高医疗专业人员对这些替代解释的影响的认识，该项目旨在为他们的实践提供信息，并激发更多以患者为中心的方法。