PSYCHOSOCIAL EVALUATION OF CRANIOFACIAL PATIENTS

颅面患者的社会心理评估

• 批准号: 3220118
• 负责人: MICHAEL J PERTSCHUK
• 金额: $ 11.79万
• 依托单位: GRADUATE HOSPITAL (PHILADELPHIA)
• 依托单位国家: 美国
• 财政年份: 1982
• 资助国家: 美国
• 起止时间: 1982-07-01 至 1987-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3220118
• 关键词: child behavior; congenital oral /facial /cranial defect; emotional adjustment; family; human subject; longitudinal human study; mental health epidemiology; middle childhood (6-11); oral facial restoration; plastic surgery; psychometrics; psychophysiology; self concept; social adjustment

Current research is demonstrating modest limitations in the psychosocial functioning of patients with craniofacial disorders evaluated and undergoing surgery between the ages of 6 and 13. Follow-up of these patients 1 to 2 years postoperatively reveals only limited improvement in some psychosocial measures and possible deterioration in others. In recent years another craniofacial group has been formed, children who underwent surgery before the age of 4 and who are now old enough to be evaluated psychosocially (ages 6 to 13). These children merit study in their own right as they represent a major segment of the craniofacial population. They also provide an interesting complement to a similar aged craniofacial group who received surgery later. Comparison of these groups will provide information on the significance of timing of surgery on psychosocial adjustment in craniofacial patients. In addition, psychosocial measures of the early operated patients will be compared with data from two other groups to be studied, a normal comparison group and a group of patients with a history of congenital urologic malformations surgically corrected before the age of 4. Specific questions to be addressed are: 1) whether children having the congenital anomalies of the two post-surgical groups of this study will be at a disadvantage psychosocially relative to normal children; 2) whether children with a clearly visible congenital defect (craniofacial malformations) will be at a disadvantage psychosocially relative to children with a non-visible defect and normal children; 3) whether craniofacial children having surgery done at age 3 or before will demonstrate better psychosocial adjustment in comparison to children having corrective surgery later; 4) whether measures of psychosocial adjustment for these groups are correlated with rated appearance. Psychosocial status will be assessed by means of interview with subject and parent(s), and completion of psychometric instruments by subject, parent and teacher reflecting the child's self concept, mood, introversion-extroversion, social experiences, perceived appearance, behavior in the home and classroom.

目前的研究表明社会心理方面存在一定的局限性 对颅面疾病患者的功能进行评估和 在 6 至 13 岁之间接受手术。这些的后续行动 术后 1 至 2 年，患者的病情改善有限 一些心理社会措施以及其他可能恶化的情况。 近来 几年来，另一个颅面组已经形成，接受过治疗的儿童 4 岁之前接受过手术且现在已足够年龄进行评估的人 心理社会（6 至 13 岁）。 这些孩子值得学习自己的 因为他们代表了颅面部人口的主要部分。 它们还为类似的老化颅面提供了有趣的补充 后来接受手术的一组。 这些组的比较将提供 有关手术时机对心理社会重要性的信息 颅面患者的调整。 此外，心理社会措施 早期接受手术的患者将与另外两名患者的数据进行比较 待研究组、正常对照组和患者组 有先天性泌尿系统畸形病史并已通过手术矫正 4 岁之前。需要解决的具体问题是： 1) 是否 具有两组术后先天性异常的儿童 与正常人相比，这项研究在心理社会上将处于劣势 孩子们; 2）儿童是否有明显可见的先天缺陷 （颅面畸形）将在社会心理上处于不利地位 相对于有不可见缺陷的儿童和正常儿童； 3） 3岁或之前接受颅面手术的儿童是否会 与患有此病的孩子相比，表现出更好的心理社会适应能力 稍后进行矫正手术； 4）是否采取社会心理调整措施 这些群体与评级外观相关。 心理社会状态 将通过与受试者和家长面谈的方式进行评估，并且 受试者、家长和老师完成心理测量工具 反映孩子的自我概念、情绪、内外向、 社会经历、外貌感知、家庭行为以及 课堂。