LABOR CONFERENCE ON THE WORKPLACE AND THE HUMAN GENOME

关于工作场所和人类基因组的劳工会议

• 批准号: 3435495
• 负责人: SHELDON W SAMUELS
• 金额: $ 6.93万
• 依托单位: WORKPLACE HEALTH FUND
• 依托单位国家: 美国
• 财政年份: 1991
• 资助国家: 美国
• 起止时间: 1991-09-23 至 1993-09-22
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3435495
• 关键词: ethics; genome; health behavior; health insurance; health science research; human genetic material tag; human rights; labor unions; meeting /conference /symposium; morale; morals; occupational health /safety; public health; social cooperation; social perception; travel

Human genes contain each individual's most intimate inheritance. In the long run, deciphering the human genome holds great promise for improving human health and the quality of life. And, learning how to read a person's genes brings ethical problems about the question: Who has a right to know? Modern genetics, as usually presented, holds the attention of few people. Yet, there is an urgent need for wider understanding in order that those who are affected can participate in setting national priorities for research and in developing appropriate safeguards. A conference is proposed to bring together those who are expert in science, ethics and law, with those who are expert in knowing and representing the needs of American workers. The conference will build a base of knowledge among labor representatives about the human genome initiative. It will contribute to the further development of Workplace Health Fund Initiatives to stimulate an ethically conducted and socially accepted search for effective medical interventions among workers who are at high risk of disease due to occupational exposures. And, it will meet at least two stated objectives of the National Center for Human Genome Research: 1) to increase public understanding among workers and their representatives, and 2) to develop options and recommendations on policy issues that are raised by the Human Genome Initiative. In addition to informing and involving conference participants, published proceedings and a video with a discussion guide will inform thousands of additional labor leaders and workers about the Human Genome initiative and workplace implications of modern genetics.

人类基因包含了每个人最亲密的遗传。 在 从长远来看，破译人类基因组对改善人类的健康有很大的希望。 人类健康和生活质量。 学习如何读懂一个人的 基因带来了伦理问题：谁有知情权？ 现代遗传学，正如通常所介绍的那样，很少有人注意。 然而，迫切需要更广泛的理解， 受影响的人可以参与制定国家优先事项， 研究和制定适当的保障措施。 有人提议召开一次会议，把那些科学专家聚集在一起， 道德和法律，与那些谁是专家在了解和代表 美国工人的需要。 会议将建立一个知识基础， 劳工代表之间关于人类基因组计划的讨论。 它将 促进工作场所健康基金倡议的进一步发展 激发一种道德上进行的和社会上接受的搜索， 对高风险工人进行有效的医疗干预 职业暴露引起的疾病。 而且，它将满足至少两个 国家人类基因组研究中心的目标：1） 提高工人及其代表的公众认识， 2)就所提出的政策问题拟订备选办法和建议， 由人类基因组计划发起。 除了向与会者提供信息和让他们参与之外， 会议记录和带有讨论指南的视频将告知数千名 更多的劳工领袖和工人对人类基因组计划， 现代遗传学对工作场所的影响