Clinical, Genetic and Psychosocial Aspects of Sudden Cardiac Death

心源性猝死的临床、遗传和社会心理方面

• 批准号: nhmrc : 1059515
• 负责人: Dr Jodie Ingles
• 金额: $ 28.9万
• 依托单位: Australian National University
• 依托单位国家: 澳大利亚
• 项目类别: Project Grants
• 财政年份: 2014
• 资助国家: 澳大利亚
• 起止时间: 2014-01-01 至 2017-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/clinical-genetic-psychosocial-cardiac-death/454763
• 关键词: Clinical; Genetic; Psychosocial; Aspects; Sudden

Sudden cardiac death (SCD) in the young is a tragic complication of a number of genetic heart diseases. Families must deal with profound grief and act on the genetic risk to themselves and other relatives. Clinical management can include the implantable cardioverter defibrillator (ICD) and is the only therapy proven to prevent SCD. This proposal seeks to investigate the clinical, genetic and psychosocial aspects of managing families who present following a SCD, including psychological outcomes of life-saving ICD therapy.

年轻人的心脏性猝死（SCD）是许多遗传性心脏病的悲惨并发症。家庭必须处理深刻的悲痛，并对自己和其他亲属的遗传风险采取行动。临床管理可包括植入式心律转复除颤器（ICD），是唯一被证明可以预防SCD的治疗方法。该提案旨在调查管理SCD患者家庭的临床、遗传和心理社会方面，包括挽救生命的ICD治疗的心理结局。