Management of families with a genetic cause of sudden cardiac death

具有遗传性心源性猝死的家庭的管理

• 批准号: nhmrc : 1036756
• 负责人: Dr Jodie Ingles
• 金额: $ 20.53万
• 依托单位: The University of Sydney
• 依托单位国家: 澳大利亚
• 项目类别: Early Career Fellowships
• 财政年份: 2012
• 资助国家: 澳大利亚
• 起止时间: 2012-01-01 至 2015-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/management-families-genetic-cardiac-death/111030
• 关键词: Management; families; genetic; cause; sudden

Sudden cardiac death (SCD) is a tragic complication of a number of genetic heart diseases, where families have to cope with the grief of losing a family member and the risk to themselves. This research seeks to better understand the psychosocial impact to family members; to determine what access and services families are currently provided with; and to determine the cost-effectiveness of family management strategies. The ultimate goal is that every family will have access to high-quality and cost-effective management practices.

心源性猝死（SCD）是许多遗传性心脏病的悲惨并发症，家庭必须科普失去家人的悲痛和对自己的风险。这项研究旨在更好地了解对家庭成员的心理社会影响;确定目前向家庭提供了哪些机会和服务;并确定家庭管理战略的成本效益。最终目标是让每个家庭都能获得高质量且具有成本效益的管理实践。