CONTINUING CARE OF CANCER PATIENTS CONCRETE NEEDS

癌症患者持续护理的具体需求

• 批准号: 3548746
• 负责人: KAROLYNN SIEGEL
• 金额: $ 6.48万
• 依托单位: MEMORIAL HOSPITAL FOR CANCER & ALLIED DI
• 依托单位国家: 美国
• 财政年份: 1985
• 资助国家: 美国
• 起止时间: 1985-09-01 至 1990-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3548746
• 关键词: breast neoplasms; cancer rehabilitation /care; female reproductive system neoplasm; health behavior; health care quality; health care service evaluation; health care service utilization; health education; human subject; lung neoplasms; metastasis; neoplasm /cancer relapse /recurrence

The proposed study will investigate the barriers confronted by cancer patients and their families that impede obtaining concrete services that enable them to cope with the treatment and consequences of the disease. The study has two stages: (I) a descriptive study, and (II) an intervention program. In Stage I we will determine the prevalence of both resolved and unresolved concrete needs of cancer outpatients who are receiving treatment for recurrent, metastatic, high grade, or unresectable disease. A cross-sectional quota sample of 200 outpatients will be selected, 50 from each of four disease sites: breast, colon, lung and gynecological. These patients will be at different stages in the disease process and vary in their functional capacities, permitting us to relate the prevalence of resolved and unresolved concrete needs to site and stage of disease and to performance status. Data will be collected through hospital records, patient and family interviews. In determining met and unmet needs both professional assessments and the perceptions of the patient and family (subjective judgments) will be considered. The reasons why needs go unmet will be ascertained, so that existing mechanisms for the resolution of concrete problems can be evaluated. We expect that the Stage I research will demonstrate that patients' lack of knowledge about services available to them is a major obstacle to their obtaining the assistance they need. Therefore, in Stage II, we will develop and implement an educational intervention consisting of a videotape presentation and booklet followed by a discussion on kinds of services and how to access them. Another quota sample of 200 experimental and 200 control subjects will be selected (50 patients with breast, colon, lung and gynecological cancers in each group). Those in the experimental group will receive the intervention between the sixth and eighth week of treatment. A month later--their third month of treatment--experimental subjects and a family member will be interviewed. Control subjects will also be interviewed at the end of their third month of treatment. Again, met and unmet concrete needs will be assessed, using the instruments developed in Stage I. The two groups will be compared to see if the intervention enhanced the ability of patients and families to recognize and anticipate their needs and to resolve them effectively.

这项拟议中的研究将调查癌症面临的障碍 患者及其家属阻碍获得具体服务， 使他们能够科普疾病的治疗和后果。 本研究分为两个阶段：（一）描述性研究;（二） 干预方案。 在第一阶段，我们将确定已解决和未解决的 癌症门诊病人的具体需要， 复发性、转移性、高级别或不可切除的疾病。 一 将选取200名门诊病人作为横断面配额样本，其中50名来自 四个疾病部位：乳腺、结肠、肺和妇科。 这些 患者将处于疾病过程的不同阶段， 他们的功能能力，使我们能够联系的患病率， 已解决和未解决的具体需求，以确定疾病的部位和阶段， 性能状态。 将通过医院记录、患者和家属收集数据 采访 在确定已满足和未满足的需求时， 患者和家属的评估和看法（主观 将予以考虑。 需求得不到满足的原因将是 确保现有的解决具体问题的机制 问题可以评估。 我们预计第一阶段的研究将证明， 了解他们可以获得的服务是他们获得这些服务的主要障碍。 获得他们需要的帮助。 因此，在第二阶段，我们将 制定和实施教育干预措施，包括录像带 介绍和小册子，然后讨论各种服务， 如何访问它们。 另一个200名实验对象和200名对照对象的配额样本将在 选择（50例乳腺癌，结肠癌，肺癌和妇科癌症患者， 每组）。 实验组将接受干预 在治疗的第六和第八周之间。 一个月后--他们的第三次 一个月的治疗-实验对象和一个家庭成员将 受访 对照组受试者也将在他们结束时接受采访。 治疗的第三个月 再次，满足和未满足的具体需求将 使用第一阶段开发的工具进行评估。 两个小组将 进行比较，看看干预是否提高了患者的能力， 家庭认识和预测他们的需要并解决这些需要 有效地

项目成果

Computerized telephone assessment of the "concrete" needs of chemotherapy outpatients: a feasibility study.

对化疗门诊患者“具体”需求的计算机化电话评估：可行性研究。

• DOI: 10.1200/jco.1988.6.11.1760
• 发表时间: 1988
• 期刊: Journal of clinical oncology : official journal of the American Society of Clinical Oncology
• 作者: Siegel,K;Mesagno,FP;Chen,JY;Klein,L;Bowles,ME;McKenna,M;Peyser,S;Christ,G
• 通讯作者: Christ,G