From "Small Stories" to "Communities of Care" With/In Narratives of Illness and Death

SMALLCOMM探讨了疾病、死亡和丧亲之痛的叙述如何位于社区网络的交叉点，并由社区叙述。社区如何叙述疾病和死亡的经历？在这种情况下，社区意味着什么——谁和什么东西参与其中，以及如何参与？出现了什么样的叙事形式、结构和实践？这些叙事是如何与更大的文化剧本联系在一起的？将疾病和死亡叙事作为一种社区实践的更广泛的文化和理论含义是什么？关注“关怀社区”的概念——基于关系、互惠和解放情感实践的复杂的人类和非人类网络——SMALLCOMM不仅试图理解这些社区是如何建立的，疾病、死亡和死亡是如何通过叙事被误解的，而且还试图理解叙事是如何塑造和动员对痛苦、失去和悲伤经历的实际反应的。小型通讯中心促进了越来越多的关于疾病叙述的学术研究，这些学术研究试图解释（经验以及叙述形式和背景的）更大的复杂性：(i)将死亡研究纳入与关键的医学人文学科的对话；（ii）关注社区的叙事产品和实践；（三）为集体叙述制定新的分析框架。它采用混合方法：(a)解释学-现象学研究探讨了社会和情感的相互作用，以及经验和解释之间的紧张关系，在疾病和死亡的文学和视觉叙事的选择中（2014-2022）；(b)利用阅读/写作讲习班（以叙事医学和参与式设计方法为基础）进行定性研究，探讨人们集体表达疾病和死亡的艰难经历的方式。将在达勒姆和巴黎的不同社区招募两个小组，为研究带来比较和跨文化的维度。

SMALLCOMM explores how narratives of illness, death and bereavement are located at the intersection of community networks and narrativized by communities. How do communities narrate experiences of illness and death? What does community mean in this context-who and what is involved, and how? What narrative forms, structures and practices emerge? How do these narratives engage with and depart from larger cultural scripts? What are the wider cultural and theoretical implications of approaching illness and death narratives as a community practice? Focusing on the notion of 'communities of care' -complex human and non-human networks based on relational, reciprocal and emancipative affective practices- SMALLCOMM seeks to understand not only how these communities are built and how illness, dying and death may be mis/understood through narrative, but also how narrative shapes and mobilises practical responses to experiences of pain, loss and grief. SMALLCOMM contributes to a growing body of scholarship on illness narrative that seeks to account for greater complexity (of experience as well as of narrative form and context): (i) bringing death studies in to dialogue with critical medical humanities; (ii) focusing on the narrative products and practices of communities; (iii) developing a new analytical framework for collective narratives. It employs a mixed-method approach: (a) A hermeneutical-phenomenological study explores social and affective interactions, and the tension between experientiality and interpretation, in a selection of literary and visual narratives of illness and death (2014-2022); (b) A qualitative study using reading/writing workshops (built on narrative medicine and participatory design methods) addresses the ways in which people have come collectively to articulate difficult experiences of illness and death. Two groups will be recruited across different communities in Durham and Paris to bring a comparative and cross-cultural dimension to the research.