Our Stories, Our Medicine Archives: A Culture Centered Diabetes and Cardiovascular Disease Health Information Interface for Urban American Indian and Alaska Native and Indigenous Communities

我们的故事，我们的医学档案：针对城市美洲印第安人和阿拉斯加原住民和土著社区的以文化为中心的糖尿病和心血管疾病健康信息界面

• 批准号: 10684035
• 负责人: RAMONA E BELTRAN
• 金额: $ 13.83万
• 依托单位: UNIVERSITY OF DENVER (COLORADO SEMINARY)
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-09 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10684035
• 关键词: Acute; Address; Adult; Alaska Native; American Indians; Archives; Area; Behavior; Budgets; COVID-19; Cardiovascular Diseases; Cause of Death; Characteristics; Charge; Chronic; Chronic Disease; Clinic; Collaborations; Communities; Community Healthcare; Diabetes Mellitus; Diabetes prevention; Diagnosis; Diastolic blood pressure; Diet; Discrimination; Disparity; Ensure; Health; Health Food; Health Personnel; Health Sciences; Healthcare; Hypertension; Indigenous; Individual; Infrastructure; Interview; Journals; Librarians; Libraries; Link; Medical; Medicine; Mission; Native-Born; Neighborhood Health Center; Not Hispanic or Latino; Online Systems; Oral; Outcome; Ownership; Participant; Perception; Physical activity; Physicians; Policies; Population; Prevention strategy; Process; Recommendation; Recording of previous events; Research; Reservations; Resources; Risk; Role; Rural; Self Care; Services; Spirituality; Stress; Structure; Technology; Time; Trauma; United States Indian Health Service; Universities; cardiovascular disorder prevention; care seeking; community engagement; comorbidity; cultural health; design; digital; evidence base; experience; food consumption; food preparation; healing; health disparity; health knowledge; health organization; improved; indigenous community; member; novel strategies; patient engagement; peer support; poor health outcome; preservation; racial discrimination; recruit; social; stressor; tool; traumatic event; urban Native American; usability; web site

PROJECT SUMMARY/ABSTRACT American Indians and Alaska Natives (AIAN) and Indigenous populations experience disproportionately high rates of diabetes and cardiovascular disease (CVD) and lack access to reliable health care and health information. Traumatic stressors such as racial discrimination and disruptions to social and cultural health traditions are likely to be connected to poor health outcomes including chronic preventable health issues such as diabetes and CVD. For AIAN populations, this link is especially relevant. Centuries of traumatic events have contributed to devastating health outcomes in AIAN communities. Over the last several decades, the role of cultural healing practices has been recognized as an important approach to treating acute as well as chronic health conditions. However, urban AIANs, approximately 70% of the national AIAN population, often lack either cultural or medical resources. Access to online health information, however, can positively impact consumer healthcare both directly and indirectly and offers an opportunity for urban AIANs. The Our Stories, Our Medicine Archive (OSOMA) seeks to leverage web-based access to health information by providing traditional indigenous health knowledge information along with widely available evidence-based and emergent practices for diabetes and CVD specific to AIAN communities. The OSOMA project presents a novel approach to addressing health disparities in urban AIAN communities through locating diabetes and cardiovascular disease information within an interactive community-based participatory digital archive that is created by and for urban AIANs. We propose 4 specific aims: Aim 1: Form and convene a CAB of health sciences librarians, physicians, AIAN health experts, and community members to ensure a culturally responsive approach to the archive and interface design and research process. Aim 2: Conduct content analyses across and within 50 oral history interviews and corresponding archival materials to create culturally relevant health information modules related to diabetes and CVD prevention. Aim 3: Design, develop and launch a community-based participatory digital archive and health information interface centering on traditional indigenous health knowledge about diabetes and CVD with and for urban AIAN individuals. Aim 4: Evaluate the accessibility of health information content, usability of the health information modules and interface, and narrative engagement with the archival and health information materials. Once the interface is launched we will assess the accessibility of content, interface usability, and the extent to which 100 urban AIAN participants engage with narrative content (e.g. stories excerpted from oral histories).

项目总结/摘要 美洲印第安人和阿拉斯加原住民（AIAN）和土著居民的经历不成比例地高， 糖尿病和心血管疾病（CVD）的发病率，缺乏可靠的医疗保健和健康 信息.创伤性压力因素，如种族歧视和对社会和文化健康的破坏 传统可能与不良的健康结果有关，包括慢性可预防的健康问题， 糖尿病和心血管疾病对于AIAN人群来说，这种联系尤其相关。几个世纪以来的创伤事件 在AIAN社区造成了毁灭性的健康后果。在过去的几十年里， 文化治疗实践被认为是治疗急性和慢性疾病的重要方法 健康状况。然而，约占全国AIAN人口70%的城市AIAN往往缺乏 文化或医疗资源。然而，获得在线健康信息可以对消费者产生积极影响。 直接和间接的医疗保健为城市AIAN提供了机会。 我们的故事，我们的医学档案（OSOMA）旨在利用基于网络的健康信息访问 通过提供传统的土著健康知识信息，沿着广泛提供的基于证据的 以及针对AIAN社区的糖尿病和心血管疾病的紧急实践。OSOMA项目提出了一个 一种新的方法，通过定位糖尿病和 心血管疾病信息在一个互动的社区为基础的参与性数字档案， 由城市人工智能网络创建并为之服务。 我们提出了4个具体目标：目标1：形成并召集一个由健康科学图书馆员、医生、AIAN 卫生专家和社区成员，以确保对档案采取文化上敏感的方法， 界面设计和研究过程。目标2：对50个口述历史进行内容分析 访谈和相应的档案材料，以创建与文化相关的健康信息模块， 糖尿病和心血管疾病的预防。目标3：设计、开发和启动一个基于社区的参与性数字 以传统土著糖尿病健康知识为中心的档案和健康信息界面 和心血管疾病与城市AIAN个人。目标4：评估卫生信息内容的可获得性， 卫生信息模块和界面的可用性，以及与档案和 健康信息材料。一旦界面启动，我们将评估内容的可访问性， 界面可用性，以及100名城市AIAN参与者参与叙事内容的程度（例如， 故事摘自口述历史）。