Centre for Administrative Data Research and Evaluation (CADRE) - an ESRC Administrative Data Research Centre

行政数据研究与评估中心 (CADRE) - ESRC 行政数据研究中心

• 批准号: ES/L007444/1
• 负责人: David Ford
• 金额: $ 1064.76万
• 依托单位: Swansea University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2013
• 资助国家: 英国
• 起止时间: 2013 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FL007444%2F1
• 关键词: Centre; Administrative; Data; Research; Evaluation

Administrative data is the term used to refer to the datasets collected by the Government and other public bodies which, amongst other things, is used to generate information to guide policy and the development of public services. Some examples are the Census and National Household Surveys, and datasets about education, health and social services, employment and benefits, crime, housing, the environment and the economy. These datasets hold great value for research, especially if they are linked together. However, as information about individuals is very sensitive, it must be very carefully managed so that it is anonymous, safe and secure, and used only in the public interest by approved researchers. Data linkage research is the term applied to the development of methods of bringing datasets together and linking them so that important public issues (such as education, crime and employment) can be studied in relation to each other. There are a range of techniques to make sure that the linked datasets used by researchers are kept anonymous throughout.The Centre for Administrative Data Research & Evaluation (CADRE) is a powerful new centre specialising in making UK-wide administrative data safely available for research. CADRE has a strong team, with a wealth of experience in data linkage and in economic and social research. CADRE will work closely with CIPHER (the Centre for the Improvement of Population Health through E-records Research), in a new, purpose-designed building, massively increasing the opportunities for research to benefit people and society. The main aim of CADRE is to create a world-class administrative data research centre, that is widely known for its ability to access, link and make safe use of data for high quality research. Our work will be underpinned by a robust Governance framework. This means that we will follow all the rules, laws and regulations that govern data usage, and set many new standards, so that our work is always ethical and respects the rights and privacy of individuals and organisations. CADRE has a set of objectives are these are to:1. Provide powerful, robust, state-of-the art data linkage and data access facilities. This will include highly secure 'safe rooms' where researchers will work on the data.2. Run a high quality, equitable and efficient 'customer focused' user support service, free at the point of access, ensuring that the analytical opportunities provided by CADRE are accessible to the widest possible community of researchers3. Create a rich linked administrative data resource for the UK research community, by enabling datasets from different organisations to be used together safely.4. Carry out original research using linked administrative data. This will include developing new methods for data linkage, working with government, law and ethics bodies on the Governance of data use, and working with the general public and organisations to understand their views on data linkage. We will work with other researchers to answer important social and economic research questions.5. Provide a range of high-quality training and development opportunities for researchers, public service professionals and policy makers.6. Involve members of the public in the work of CADRE, and engage with the public to raise awareness of data linkage research, to understand the concerns they may have, and to seek to provide reassurance. 7. Build good working relationships and collaborations within the Administrative Data Research Network (ADRN), with Welsh Government, other UK governments, and their National Statistical Agencies (NSAs), the economic and social science research community and health researchers.

行政数据是指政府和其他公共机构收集的数据集，除其他外，这些数据集用于生成信息，以指导政策和公共服务的发展。例如，人口普查和全国住户调查，以及关于教育、卫生和社会服务、就业和福利、犯罪、住房、环境和经济的数据集。这些数据集具有很大的研究价值，特别是如果它们连接在一起。然而，由于个人信息非常敏感，必须非常谨慎地管理，以确保匿名、安全和可靠，并仅由经批准的研究人员出于公共利益使用。数据连接研究是指开发将数据集汇集在一起并将其连接起来的方法，以便可以相互研究重要的公共问题（如教育，犯罪和就业）。有一系列技术可以确保研究人员使用的关联数据集始终保持匿名。行政数据研究与评估中心（CADRE）是一个强大的新中心，专门致力于使英国范围内的行政数据安全地用于研究。CADRE拥有强大的团队，在数据连接和经济社会研究方面具有丰富的经验。CADRE将与CIPHER（通过电子记录研究改善人口健康中心）密切合作，在一个新的，专门设计的建筑中，大大增加了研究的机会，使人们和社会受益。CADRE的主要目标是创建一个世界级的行政数据研究中心，该中心因其访问、链接和安全使用数据以进行高质量研究的能力而广为人知。我们的工作将以一个强有力的治理框架为基础。这意味着我们将遵守所有管理数据使用的规则、法律和法规，并制定许多新的标准，以便我们的工作始终符合道德规范，并尊重个人和组织的权利和隐私。CADRE有一套目标，这些是：1。提供强大、可靠、先进的数据链接和数据访问设施。这将包括高度安全的“安全室”，研究人员将在那里处理数据。运行一个高质量，公平和高效的“以客户为中心”的用户支持服务，在访问点免费，确保CADRE提供的分析机会是尽可能广泛的研究人员社区3。通过使来自不同组织的数据集能够安全地一起使用，为英国研究界创建一个丰富的关联管理数据资源。使用关联的行政数据进行原创性研究。这将包括开发数据链接的新方法，与政府，法律和道德机构合作管理数据使用，并与公众和组织合作，了解他们对数据链接的看法。我们将与其他研究人员合作，回答重要的社会和经济研究问题。为研究人员、公共服务专业人员和政策制定者提供一系列高质量的培训和发展机会。让公众参与CADRE的工作，并与公众接触，以提高对数据链接研究的认识，了解他们可能存在的问题，并寻求提供保证。7.在行政数据研究网络（ADRN）内与威尔士政府，其他英国政府及其国家统计机构（NSA），经济和社会科学研究界和卫生研究人员建立良好的工作关系和合作。

项目成果

Born into Care: characterising newborn babies and infants in care proceedings in England and Wales

出生在护理中：描述英格兰和威尔士护理程序中新生婴儿和婴儿的特征

• DOI: 10.23889/ijpds.v4i3.1285
• 发表时间: 2019
• 期刊: International Journal of Population Data Science
• 作者: Alrouh B

Development of an algorithm for determining smoking status and behaviour over the life course from UK electronic primary care records.

• DOI: 10.1186/s12911-016-0400-6
• 发表时间: 2017-01-05
• 期刊: BMC medical informatics and decision making
• 影响因子: 3.5
• 作者: Atkinson MD;Kennedy JI;John A;Lewis KE;Lyons RA;Brophy ST;DEMISTIFY Research Group
• 通讯作者: DEMISTIFY Research Group

Identifying patients with asthma-chronic obstructive pulmonary disease overlap syndrome using latent class analysis of electronic health record data: a study protocol.

• DOI: 10.1038/s41533-018-0088-4
• 发表时间: 2018-06-20
• 期刊: NPJ primary care respiratory medicine
• 影响因子: 3.1
• 作者: Al Sallakh MA;Rodgers SE;Lyons RA;Sheikh A;Davies GA
• 通讯作者: Davies GA

Prevalence of neurodevelopmental disorders and their impact on the health and social well-being among looked after children (LAC): a systematic review protocol.

• DOI: 10.1186/s13643-022-01923-6
• 发表时间: 2022-03-19
• 期刊: Systematic reviews
• 影响因子: 3.7
• 作者: Heady N;Watkins A;John A;Hutchings H
• 通讯作者: Hutchings H

Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.

• DOI: 10.23889/ijpds.v4i1.586
• 发表时间: 2019-02-12
• 期刊: International journal of population data science
• 作者: Aitken M;Tully MP;Porteous C;Denegri S;Cunningham-Burley S;Banner N;Black C;Burgess M;Cross L;van Delden JJ;Ford E;Fox S;Fitzpatrick NK;Gallacher K;Goddard C;Hassan L;Jamieson R;Jones KH;Kaarakainen M;Lugg-Widger F;McGrail K;McKenzie A;Moran R;Murtagh MJ;Oswald M;Paprica A;Perrin N;Richards EV;Rouse J;Webb J;Willison DJ
• 通讯作者: Willison DJ