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COVID-19: Supporting family carers in making decisions for older relatives with dementia

COVID-19：支持家庭护理人员为患有痴呆症的年长亲属做出决定

基本信息

批准号：
ES/V003720/1
负责人：
Nathan Davies
金额：
$ 9.05万
依托单位：
University College London
依托单位国家：
英国
项目类别：
Research Grant
财政年份：
2020
资助国家：
英国
起止时间：
2020 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=ES%2FV003720%2F1
关键词：
COVID 19 Supporting family carers

项目摘要

Background: If an older relative with dementia with suspected COVID-19 becomes unwell quickly, family carers and the person with dementia may have to make rapid decisions. Decisions may concern hospital admission or whether to receive care at home, social distancing, and which treatments the person may or may not wish to receive. This can include very difficult decisions such as whether the person wishes to be resuscitated or have other potentially traumatic treatments. These decisions will have an impact on the emotional wellbeing of both the family and person with dementia.Aim: We will produce an evidence-based decision tool to support family carers and people with dementia to make these difficult decisions during COVID-19.Methods: This project will consist of three phases: 1) We will identify key factors influencing the choice of place of death in older people, conducting a rapid review of the evidence; 2) We will review and analyse common challenges and decisions family carers of people with dementia are making in relation to COVID-19, from the Alzheimer's Society online community forum. We will also explore concerns of people living with dementia during COVID-19 reported on the forum and; 3) Together with people living with dementia, family carers and health care professionals, we will develop a decision tool for family carers and people with dementia to use when making difficult decisions.Dissemination and Impact: The tool will provide carers with a clear framework to help them to make decisions and ease feelings of guilt, burden, stress, strain and anxiety. We will work closely with Marie Curie Charity, Alzheimer's Society and British Geriatrics Society to disseminate the tool and our findings to the people who may benefit from using them.

背景：如果患有老年痴呆症并疑似COVID-19的老年亲属迅速不适，家庭护理人员和痴呆症患者可能不得不迅速做出决定。决定可能涉及住院或是否在家接受护理、保持社交距离，以及患者可能希望或不希望接受哪些治疗。这可能包括非常困难的决定，例如该人是否希望复苏或进行其他潜在的创伤性治疗。这些决定将对家庭和痴呆症患者的情感健康产生影响。目标：我们将制作一个基于证据的决策工具，以支持家庭护理人员和痴呆症患者在COVID-19期间做出这些艰难的决定。方法：本项目将分为三个阶段：1)我们将确定影响老年人死亡地点选择的关键因素，对证据进行快速审查；2)我们将审查和分析阿尔茨海默病协会在线社区论坛上痴呆症患者家庭照顾者在COVID-19方面面临的共同挑战和决定。我们还将探讨论坛上报道的2019冠状病毒病期间痴呆症患者的担忧；3)我们将与痴呆症患者、家庭护理人员和卫生保健专业人员一起，开发一种决策工具，供家庭护理人员和痴呆症患者在做出困难决定时使用。传播和影响：该工具将为护理人员提供一个明确的框架，帮助他们做出决定，减轻内疚、负担、压力、紧张和焦虑的感觉。我们将与居里夫人慈善机构、阿尔茨海默氏症协会和英国老年病学协会密切合作，向可能从中受益的人传播该工具和我们的发现。

项目成果

期刊论文数量（9）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Challenges faced during the COVID-19 pandemic by family carers of people living with dementia towards the end of life.

DOI：
10.1186/s12913-021-07019-6
发表时间：
2021-09-21
期刊：
BMC health services research
影响因子：
2.8
作者：
Aker N;West E;Davies N;Moore KJ;Sampson EL;Nair P;Kupeli N
通讯作者：
Kupeli N

Rapid development of a COVID-19 care planning decision-aid for family carers of people living with dementia.

DOI：
10.1111/hex.13552
发表时间：
2022-08
期刊：
Health expectations : an international journal of public participation in health care and health policy
影响因子：
0
作者：
West E;Nair P;Aker N;Sampson EL;Moore K;Manthorpe J;Rait G;Walters K;Kupeli N;Davies N
通讯作者：
Davies N

1 Carer perspectives of trust and authority during COVID-19

1 COVID-19 期间护理人员对信任和权威的看法

DOI：
10.1136/bmjopen-2021-qhrn.1
发表时间：
2021
期刊：
影响因子：
0
作者：
Aker N
通讯作者：
Aker N

Rapid review of decision-making for place of care and death in older people: Lessons for COVID-19

DOI：
10.1192/j.eurpsy.2021.732
发表时间：
2021-08-13
期刊：
EUROPEAN PSYCHIATRY
影响因子：
7.8
作者：
West, E.;Moore, K.;Kupeli, N.;Sampson, E.;Nair, P.;Aker, N.;Davies, N.
通讯作者：
Davies, N.

Rapid development of a decision-aid for people with dementia and their families during COVID-19

DOI：
10.1192/j.eurpsy.2021.277
发表时间：
2021-08-13
期刊：
EUROPEAN PSYCHIATRY
影响因子：
7.8
作者：
West, E.;Kupeli, N.;Moore, K.;Sampson, E.;Aker, N.;Nair, P.;Davies, N.
通讯作者：
Davies, N.

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Nathan Davies其他文献

P94: Co-design of a theory-based implementation plan for a digital holistic assessment and decision support framework for people with dementia in care homes

第 94 页：为养老院中痴呆症患者设计基于理论的数字整体评估和决策支持框架实施计划

DOI：
10.1017/s104161022300306x
发表时间：
2023-12-01
期刊：
INTERNATIONAL PSYCHOGERIATRICS
影响因子：
4.300
作者：
Juliet Gillam;Catherine Evans;Nathan Davies
通讯作者：
Nathan Davies

THU539 - Long-term albumin administration improves survival, reduces TLR4 mediated hepatic inflammation and reduces gut translocation in models of cirrhosis

THU539 - 长期白蛋白给药可改善肝硬化模型中的存活率、减少 TLR4 介导的肝脏炎症并减少肠道移位

DOI：
10.1016/s0168-8278(22)01085-6
发表时间：
2022-07-01
期刊：
JOURNAL OF HEPATOLOGY
影响因子：
33.000
作者：
Alexandra Phillips;Qianwen Zhao;Abeba Habtesion;Fausto Andreola;Nathan Davies;Lindsey A Edwards;Jane Macnaughtan;Rajiv Jalan
通讯作者：
Rajiv Jalan

FRI-408-YI MASLD-associated changes across the gut-liver-brain axis are not ameliorated by a low-fat diet intervention in an aged mouse model

在老年小鼠模型中，低脂饮食干预并不能改善肠道 - 肝脏 - 大脑轴上与代谢相关脂肪性肝病（MASLD）相关的变化。

DOI：
10.1016/s0168-8278(25)01633-2
发表时间：
2025-05-01
期刊：
JOURNAL OF HEPATOLOGY
影响因子：
33.000
作者：
Matthew Siddle;Deepika Goel;Christos Konstantinou;Rajiv Jalan;Nathan Davies;Lindsey Edwards;Debbie L. Shawcross;Anna Hadjihambi
通讯作者：
Anna Hadjihambi

Clinical effectiveness of pharmacological and non-pharmacological treatments for the management of anxiety in community dwelling people living with dementia: A systematic review and meta-analysis

药物和非药物治疗对社区痴呆症患者焦虑管理的临床效果：系统评价和荟萃分析

DOI：
10.1016/j.neubiorev.2023.105507
发表时间：
2023
期刊：
Neuroscience & Biobehavioral Reviews
影响因子：
8.2
作者：
Danielle Nimmons;N. Aker;Alice Burnand;Kelvin P Jordan;Claudia Cooper;Nathan Davies;Jill Manthorpe;Carolyn A Chew;Tom Kingstone;Irene Petersen;Kate Walters
通讯作者：
Kate Walters

OS-014-YI Long-term albumin infusion reduces the mortality of cirrhosis and ACLF animal models by modulating the gut-liver axis and hepatic TLR4 signalling

DOI：
10.1016/s0168-8278(24)00455-0
发表时间：
2024-06-01
期刊：
Conference abstract
影响因子：
作者：
Alexandra Phillips;Qianwen Zhao;Abeba Habtesion;Fausto Andreola;Nathan Davies;Lindsey Edwards;Jane Macnaughtan;Sabine Klein;Jonel Trebicka;Rajiv Jalan
通讯作者：
Rajiv Jalan