This is My face: Re-signifying HIV stigma through participatory visual methods

这是我的脸：通过参与性视觉方法重新表征艾滋病毒耻辱

• 批准号: ES/V012649/1
• 负责人: Angelica Maria Cabezas Pino
• 金额: $ 12.13万
• 依托单位: University of Sussex
• 依托单位国家: 英国
• 项目类别: Fellowship
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FV012649%2F1
• 关键词: My; face; Re; signifying; HIV

"This is My face: Re-signifying HIV stigma through participatory visual methods" explores how people create meaning of the "biographical disruption" caused by an HIV diagnosis, within a context that limits opportunities for sense-making. When confronted with "existential uncertainty", sharing narratives with others becomes a crucial strategy to understand and create meaning. Although in the UK there is strong advocacy to end HIV stigma, in other countries like Chile, stigma is reinforced; which prevents people from sharing experiences with others.My project explores the possibilities of pioneering visual methods as a way to facilitate the narratives of people living with HIV in contexts where their expression is limited. As part of this PDF, I will produce a series of outcomes around HIV narratives, looking at collaborating with a wide range of audiences, and consolidating my PhD work extensively.First, I will produce a visual monograph (based on my unpublished PhD photo-book) which will weave autobiographical photos and texts created by people living with HIV in Chile as part of my PhD. This monograph will highlight the need of narratives for sense-making and expand existing knowledge on the intersections of visual and medical anthropology. There is no academic text dealing with HIV stigma in Latin America through visual participatory methods. The monograph will be pioneering in this specific field, and will target a wide audience including academics, HIV organisations, and relevant stakeholders. It will be pitched to publishers such as Routledge who can reach with and beyond academia, and later to Verso and Pittsburg.By producing a multimedia website to disseminate research findings, I will create a platform for collaboration between people living with HIV, scholars, and relevant stakeholders. I will mobilise my existing networks to contribute to the website's visibility and content: Global Fund Partnership Forum, UNAIDS, academic research groups, HIV organisations in Chile and the UK, among others.I will co-organise two workshops: one in Chile with Association for the Wellbeing of People Living with HIV, and one in the UK with UNAIDS Fast-Track city in Brighton. The workshops will expand public engagement and promote knowledge exchange, while strengthening local approaches to promote HIV sense-making at national and international levels. I have collaborated extensively with these organisations, and they are keen to co-design the events and welcome a wide range of stakeholders to further influence policy.By producing two journal articles and presenting at world-leading conferences, I will disseminate findings related to my pioneering method, contributing to discussions around methodological approaches to HIV, and offering opportunities for further analysis on HIV narratives.Through the collaboration with the UN Fast-Track City Project for HIV prevention in Brighton, I will produce an important site for knowledge transfer and impact of my work. Additionally-considering the wide work on Medical and Visual Anthropology at Sussex and Goldsmiths-we will lay ground for a multi-sited research grant bid about experiences of illness through participatory methods, bringing together researchers from the Centre for Cultures of Reproduction, Technologies and Health (CORTH), Centre for Innovation and Research in Childhood and Youth (CIRCY) and the Institute for Development Studies (IDS).This project is timely and urgent (see Case for Support), and by connecting a wide range of audiences, I will extend the impact of my public engagement work, expand on knowledge transfer, and lay ground for academic continuity and further research collaborations. Sussex will be the perfect environment to enrich these outcomes, by collaborating with Dr. Paul Boyce and Prof. Day and with other colleagues at Sussex and Goldsmiths who are producing research in the same field, and/or with similar interdisciplinary and ethical considerations.

“这是我的脸：通过参与性视觉方法重新标志艾滋病毒的耻辱”探讨了人们如何在限制意义创造机会的背景下创造艾滋病毒诊断所造成的“传记中断”的意义。当面临“存在的不确定性”时，与他人分享叙事成为理解和创造意义的关键策略。虽然在英国有强烈的宣传，以结束艾滋病毒的耻辱，在其他国家，如智利，耻辱是加强;这阻止人们与他人分享经验。我的项目探讨了开拓性的视觉方法的可能性，以促进艾滋病毒感染者的叙述在他们的表达是有限的情况下。作为这份PDF的一部分，我将围绕艾滋病的叙述产生一系列的成果，着眼于与广泛的受众合作，并广泛地巩固我的博士工作。首先，我将产生一个视觉专题（基于我未发表的博士摄影集），这将编织自传照片和文字的艾滋病病毒感染者在智利创建作为我的博士的一部分。这本专著将突出需要的叙事意义的决策和扩大现有的知识交叉点的视觉和医学人类学。在拉丁美洲，没有通过视觉参与方法处理艾滋病毒污名化问题的学术文本。该专著将在这一特定领域开创先河，并将针对广泛的受众，包括学术界，艾滋病毒组织和相关利益相关者。它将面向能够接触到学术界和学术界以外的出版商，如Verledge，随后将面向Verso和Versburg。通过制作一个多媒体网站来传播研究结果，我将为艾滋病毒感染者、学者和相关利益攸关方之间的合作创建一个平台。我将动员我现有的网络，包括全球基金伙伴关系论坛、联合国艾滋病规划署、学术研究团体、智利和英国的艾滋病毒组织等，为网站的知名度和内容做出贡献。我将共同组织两个研讨会：一个在智利与艾滋病毒感染者福祉协会合作，另一个在英国与联合国艾滋病规划署布莱顿快速通道城市合作。这些讲习班将扩大公众参与，促进知识交流，同时加强地方办法，促进在国家和国际两级宣传艾滋病毒。我与这些组织进行了广泛的合作，他们热衷于共同设计活动，并欢迎广泛的利益相关者进一步影响政策。通过撰写两篇期刊文章并在世界领先的会议上发表演讲，我将传播与我的开创性方法有关的发现，促进围绕艾滋病毒方法的讨论，并提供进一步分析艾滋病毒叙述的机会。通过与布莱顿联合国艾滋病毒预防快速通道城市项目的合作，我将创建一个重要的网站，用于知识转移和我工作的影响。此外，考虑到苏塞克斯和戈德史密斯在医学和视觉人类学方面的广泛工作，我们将通过参与性方法为多地点研究资助竞标奠定基础，将生殖文化中心的研究人员聚集在一起，技术和健康（CORTH），儿童和青年创新与研究中心（CIRCY）和发展研究所（IDS）。（见案例支持），并通过连接广泛的受众，我将扩大我的公众参与工作的影响，扩大知识转移，并为学术连续性和进一步的研究合作奠定基础。苏塞克斯大学将是一个完美的环境，以丰富这些成果，通过与博士保罗博伊斯和教授天，并与其他同事在苏塞克斯大学和金史密斯谁是生产在同一领域的研究，和/或类似的跨学科和伦理考虑。