Assessing the well-being implications of the COVID-19 restrictions on individuals affected by Parkinson's

评估 COVID-19 限制对帕金森病患者的福祉影响

• 批准号: ES/W001209/1
• 负责人: Jane Simpson
• 金额: $ 24.07万
• 依托单位: Lancaster University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FW001209%2F1
• 关键词: Assessing; well; being; implications; COVID

Individuals affected by Parkinson's have been significantly disadvantaged by the COVID-19 pandemic. In particular, the consequent social restrictions have removed many existing supports which individuals have considered vital for their well-being. While we, with Parkinson's UK, a leading UK charity, have collected some provisional data on the social effects of the pandemic on well-being, these effects are not static and neither are their impacts on well-being. Consequently this proposed project will use these data already collected as a baseline for two of the three studies within this application: one is a quantitative survey of both individuals with Parkinson's and their carers and the second is a qualitative study on the in-depth experiences of individuals with Parkinson's. For these studies further data will be collected to get a longer-term picture of the same individuals' well-being in the context of the widespread social changes. The quantitative survey data (two administrations in total) will be subject to further statistical analysis and identification of the predictors of change in well-being. The qualitative data (four administrations in total) will be analysed using interpretative phenomenological analysis. A further third study, an in-depth qualitative study, is also planned; this will focus on the experiences of carers/partners and will also be repeated and analysed longitudinally (two administrations in total). The results will be used to help inform responses from Parkinson's UK to provide appropriate support for members, to inform other third sector organisations (e.g., professional organisations) and health and social care policy-makers and to provide theoretical insights.

受帕金森氏症影响的个人在COVID-19大流行中处于显著不利地位。特别是，随之而来的社会限制取消了许多个人认为对其福祉至关重要的现有支助。虽然我们与英国领先的慈善机构Parkinson's UK一起收集了一些关于大流行对福祉的社会影响的临时数据，但这些影响不是静态的，它们对福祉的影响也不是静态的。因此，该项目将使用这些已经收集的数据作为本申请中三项研究中两项的基线：一项是对帕金森氏症患者及其护理人员的定量调查，另一项是对帕金森氏症患者的深入体验进行定性研究。对于这些研究，将收集进一步的数据，以了解同一个人在广泛社会变革背景下的长期福祉状况。将对定量调查数据（共两次）进行进一步的统计分析，并确定福利变化的预测因素。将使用解释性现象学分析对定性数据（共四次给药）进行分析。还计划进行第三项研究，即深入的定性研究;这项研究将侧重于照顾者/伴侣的经验，也将重复进行并进行纵向分析（共进行两次）。调查结果将用于帮助英国帕金森氏病协会做出回应，为会员提供适当的支持，通知其他第三部门组织（例如，专业组织）和卫生和社会保健政策制定者，并提供理论见解。

项目成果

The Impact of COVID-19 Restrictions on People Affected by Parkinson's: Findings from the Second Survey by Parkinson's UK and Comparison between Survey 1 and 2.

COVID-19 限制对帕金森氏症患者的影响：英国帕金森氏症协会第二次调查的结果以及调查 1 和 2 之间的比较。

• 发表时间: 2022
• 作者: Simpson, J.

Living with Parkinson's in England during and beyond COVID-19 restrictions: a longitudinal qualitative study

• DOI: 10.1080/13607863.2023.2265319
• 发表时间: 2023-09-28
• 期刊: AGING & MENTAL HEALTH
• 影响因子: 3.4
• 作者: Murray，Craig D.;Eccles，Fiona J. R.;Simpson，Jane
• 通讯作者: Simpson，Jane