Exploring the Inequalities and Diversities in Disabled Young Adult Transitions

探索残疾年轻人转型中的不平等和多样性

• 批准号: ES/W011883/1
• 负责人: Janice McLaughlin
• 金额: $ 102.84万
• 依托单位: Newcastle University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FW011883%2F1
• 关键词: Exploring; Inequalities; Diversities; Disabled; Young

Disabled young people face many challenges as they move through adolescence into adulthood, while some disability studies work has explored the issues around transitions between paediatric and adult health and social care, the wider landscape of transitions has been given much less consideration. Youth studies has a more expansive approach to researching transitions, but has done little to consider the significance of disability as a key source of inequality and diversity in transitional dynamics. Research focused on influencing policy has tended to approach transitions as a step-by-step linear process with a clear endpoint, based on normative assumptions about adulthood. These are unhelpful for youth in general and disabled young people in particular. Too much of the focus in this work is on the individual and how they can be encouraged and supported to make the right choices and undertake the right activities to reach the right adulthood goal. If we are to properly consider disabled youth transitions (and other youth transitions) we need to move beyond individual and uncritical understandings of the values of independence, choice and responsibility to engage with the social, cultural and economic constraints that shape transition experiences. This is vital to do because youth transitions in general have been altered by social and political change in areas such as employment, education, technology, and welfare systems. Much of these changes have made transitions more precarious and reliant on family resources. However, research across disability studies, youth studies and policy and practice has not kept up with these changes meaning that our understandings of what shapes disabled youth transitions is lacking. It is important to understand in more depth what happens for disabled young people as they move towards adulthood, both to understand the challenges and possibilities they face, but also for what that tells us about the nature of transitions in a contemporary British society marked by welfare austerity, neoliberalism and now Covid-19. This research, co-developed and co-produced with disability organisations and disabled young people, located in Glasgow and Newcastle and their rural outskirts, will work with disabled young adults aged 16-29, the family members of other disabled young people and organisations who support them and advocate with them. Glasgow and Newcastle are areas of above average levels of disability, significant economic deprivation and are both areas that have been particularly affected by Covid-19. A range of qualitative methods will be applied to examine change over time, sources of inequality, barriers and enablers to positive transitions, and diversities in the presents and futures being worked towards. 2 qualitative narrative interviews over 16 months will be undertaken with 60 disabled young people. One qualitative narrative interview will be undertaken with 30 family members of other disabled young people and 30 with key informants from disability organisations. A range of individual and collective workshop based creative activities will be developed with the disabled young participants that will occur in between the 2 interviews, providing an additional data point between them. Discursive policy analysis will be undertaken of key policies that influence disabled young people's lives at the local, devolved and national level. As well as producing academic outputs the project will produce - throughout its lifetime - policy and practice materials aimed at practitioners and policy makers and third sector and disabled people's organisations. They will be accessible and aim to promote changes in services so they are rights based and are genuinely person centred. The project will be overseen by a Project Advisory Group made up of disability organisations and disabled young people.

残疾青年在从青春期进入成年期的过程中面临许多挑战，虽然一些残疾研究工作探讨了儿科和成人健康和社会护理之间的过渡问题，但对更广泛的过渡情况的考虑要少得多。青年研究有一个更广泛的方法来研究过渡，但很少考虑残疾的重要性，作为一个关键的不平等和多样性的过渡动态来源。侧重于影响政策的研究往往将过渡视为一个逐步的线性过程，有一个明确的终点，基于对成年的规范性假设。这对一般青年，特别是残疾青年没有帮助。在这项工作中，太多的重点是个人，以及如何鼓励和支持他们做出正确的选择，并采取正确的活动，以达到正确的成年目标。如果我们要适当考虑残疾青年的过渡（和其他青年的过渡），我们就需要超越对独立、选择和责任等价值观的个人和不加批判的理解，参与塑造过渡经历的社会、文化和经济制约因素。这一点至关重要，因为青年的过渡一般都被就业、教育、技术和福利制度等领域的社会和政治变革所改变。这些变化使过渡更加不稳定，更加依赖家庭资源。然而，跨残疾研究，青年研究和政策与实践的研究并没有跟上这些变化，这意味着我们缺乏对残疾青年转型的理解。重要的是要更深入地了解残疾年轻人在走向成年时会发生什么，不仅要了解他们面临的挑战和可能性，而且要了解这告诉我们当代英国社会的过渡性质，其特点是福利紧缩，新自由主义和现在的新冠肺炎。这项研究与残疾组织和残疾青年共同开发和共同制作，位于格拉斯哥和纽卡斯尔及其郊区，将与16-29岁的残疾青年，其他残疾青年的家庭成员以及支持他们并与他们一起倡导的组织合作。格拉斯哥和纽卡斯尔是残疾水平高于平均水平、经济严重贫困的地区，这两个地区都受到新冠肺炎的特别影响。将采用一系列定性方法来审查随着时间的推移而发生的变化、不平等的根源、积极过渡的障碍和推动因素以及目前和未来的挑战。将在16个月内对60名残疾青年进行2次定性叙述访谈。一个定性的叙述式访谈将进行其他残疾青年的30名家庭成员和30名来自残疾组织的关键线人。在两次访谈之间，将与残疾青年参与者开展一系列基于个人和集体讲习班的创造性活动，为他们提供额外的数据点。将对地方、地方和国家各级影响残疾青年生活的关键政策进行讨论性政策分析。除了产生学术成果外，该项目还将在其整个生命周期内产生针对从业人员和决策者以及第三部门和残疾人组织的政策和实践材料。它们将是可获得的，旨在促进服务的变化，使它们以权利为基础，真正以人为本。该项目将由一个由残疾人组织和残疾青年组成的项目咨询小组监督。