National studies of kidney disease in childhood and adolescence

点击翻译按钮获取中文摘要

Kidney disease in children is rare, but highly demanding, both for the families and children, and for the medical services. The majority of the workload is managed in specialist children s hospitals, and requires facilities for dialysis and transplantation. If the diseases that lead to kidney failure could be studied more systematically, by collecting clinical information, blood and DNA samples from the whole UK population, then better strategies for preventing kidney failure could be devised. This study will collect information from 2 such diseases, in an ongoing basis, and has the robust support of all the leading UK kidney organisations. This will be the first time such comprehensive disease information has been collated, and will set up an infrastructure for many more kidney diseases to be studied in the same comprehensive way.