Infrastructure and Services - Trust and Transparency

基础设施和服务 - 信任和透明度

• 批准号: HDR-23003
• 负责人: Andy Boyd
• 金额: $ 737.92万
• 依托单位: Health Data Research UK
• 依托单位国家: 英国
• 项目类别: Intramural
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=HDR-23003
• 关键词: Infrastructure; Services; Trust; Transparency

HDR UK’s mission, to enable research that improves people’s lives, needs patients and the public to have confidence that their data is being used in safe and trustworthy ways. This programme enables the public to shape HDR UK’s work, demonstrating accountability, transparency and showing that research answers questions that are important to patients and the public.By working with the public to understand their perspective on and shape research programmes HDR UK can build confidence in the way patient data is being used for research, ensuring the new tools and infrastructure developed is founded on public trust. This can bring together the needs of research and patients, in a way that benefits everyone.

HDR UK的使命是使研究能够改善人们的生活，需要患者和公众相信他们的数据正在以安全可靠的方式使用。该计划使公众能够影响HDR UK的工作，展示责任感和透明度，并表明研究回答了对患者和公众重要的问题。通过与公众合作，了解他们对研究计划的看法并塑造研究计划，HDR UK可以建立对患者数据用于研究的方式的信心，确保开发的新工具和基础设施建立在公众信任的基础上。这可以将研究和患者的需求结合在一起，以一种对每个人都有利的方式。