Promoting Awareness of Cancer and Early Detection (PACED) Initiative in Malaysia

马来西亚提高癌症意识和早期检测 (PACED) 计划

• 批准号: MR/P013910/1
• 负责人: Michael Donnelly
• 金额: $ 24.52万
• 依托单位: Queen's University Belfast
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2017
• 资助国家: 英国
• 起止时间: 2017 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FP013910%2F1
• 关键词: Promoting; Awareness; Cancer; Early; Detection

The incidence of cancer in Malaysia and cancer-related deaths are increasing. The relatively high cancer mortality rate accounted for 10% of medically certified deaths. Age-standardized incidence rates for all cancers were 137 and 156 per 100,000 in males and females, respectively. Cancer-related may be avoided by early presentation, detection and appropriate treatment. However, cancers in Malaysia present at late stages. Research indicates clearly that there is a low level of cancer awareness in Malaysia and that low awareness delays help seeking, late presentation is high and detection rates are poor. More recently, our research group conducted a nationally representative survey of 1817 adults and found anticipated delay and several emotional barriers to seeking help. In addition, there were strong misbeliefs about cancer. For example, more than 30% did not belive that cancer could be cured and worryingly, 65% thought that most cancer treatments were worse than cancer itself. In order to support earlier presentation and diagnosis and improve survival rates, the "Be Clear on Cancer" (BCOC) programme was launched in England in 2011 and, more recently in 2014, the "Be Cancer Aware Programme" (BeCAP) was designed and implemented by Northern Ireland's Public Health Agency. Evaluation findings reported an increased awareness about the signs and symptoms of cancer as well as increased attendance at GP practices by patients who reported key campaign-related symptoms. In addition, more people were referred urgently by GPs for suspected cancer, there was an increase in diagnostic investigation activity and there was a shift towards earlier stage disease. There is a clear need for a co-ordinated, large scale population-based cancer awareness raising programme in Malaysia. Our population-based surveys indicate that particular attention should be paid to targeting common cancer disparities among various ethnic, socio-economic and geographical groups in Malaysia. The main aim of the proposed project is to address the need to design and develop a programme or intervention that is theoretically informed, evidence-based and culturally appropriate for Malaysia and then to evaluate robustly the programme by building upon the BCOC and BeCAP programmes.The project comprises four phases. Phase 1 - 'Development of a culturally sensitive cancer Awareness Raising Programme (CARP)' - the main aim of this phase is to develop the content of the CARP including the key messages and design and test mode(s) of delivery. The CARP will focus on the three most prevalent cancers in Malaysia - lung, breast and colorectal. Phase 2 - 'Design the evaluation framework', - a workshop will be held to discuss and finalise the evaluation framework and metrics particularly regarding the identification of the outcomes of the CARP and the assessment tools in the context of the Malaysian infrastructure and health system. The evaluation framework will be informed by the approach and methods used in the appraisal of the BeCAP and it will include a population awareness survey before-and-after the implementation of each BeCAP campaign in order to ascertain changes in awareness including recognition, attitudes, beliefs and knowledge about cancer and early diagnosis. Phase 3, 'Undertaking formative research' - qualitative and quantitative methods will be used to test the appropriateness, acceptability and feasibility of the CARP and assessment tools. Phase 4, 'Evaluate the impact of the CARP' - a large scale pilot evaluation study will be conducted in the Federal Territory of Kuala Lumpur and Selangor state. Pre-and post-campaign surveys will be carried out to evaluate the performance of campaign in term of awareness of signs and symptoms, beliefs and attitudes towards cancer and early diagnosis and attendance at primary care physicians with the symptoms highlighted in the campaign. Finally, we will develop a protocol for the roll-out of a national level CARP.

马来西亚的癌症发病率和与癌症有关的死亡人数正在增加。相对较高的癌症死亡率占医学证明死亡的10%。所有癌症的标准化发病率在男性和女性中分别为每10万人137人和156人。癌症相关的可以通过早期表现，检测和适当的治疗来避免。然而，马来西亚的癌症处于晚期阶段。研究清楚地表明，马来西亚对癌症的认识水平很低，认识水平低有助于寻求帮助，迟发性高，发现率低。最近，我们的研究小组对1817名成年人进行了一项具有全国代表性的调查，发现了寻求帮助的预期延迟和几个情感障碍。此外，人们对癌症有强烈的误解。例如，超过30%的人不相信癌症可以治愈，令人担忧的是，65%的人认为大多数癌症治疗方法比癌症本身更糟糕。为了支持早期表现和诊断并提高存活率，2011年在英格兰启动了“明确癌症”方案，最近在2014年，北方爱尔兰公共卫生署设计并实施了“了解癌症方案”。评估结果报告说，对癌症体征和症状的认识有所提高，报告主要癌症相关症状的患者参加GP实践的人数也有所增加。此外，全科医生紧急转诊更多的人怀疑患有癌症，诊断调查活动增加，并转向早期疾病。马来西亚显然需要一个协调的、大规模的以人口为基础的癌症意识提高计划。我们基于人口的调查表明，应特别注意针对马来西亚各种族、社会经济和地理群体之间的常见癌症差异。拟议项目的主要目的是满足设计和制定一项理论上知情、以证据为基础和文化上适合马来西亚的方案或干预措施的需要，然后通过建立BCOC和BeCAP方案对方案进行有力的评估。第一阶段----“制定对文化敏感的癌症提高认识方案”----这一阶段的主要目标是制定癌症提高认识方案的内容，包括关键信息以及交付的设计和测试模式。CARP将重点关注马来西亚最流行的三种癌症-肺癌，乳腺癌和结肠直肠癌。第二阶段-“设计评估框架”-将举行一个研讨会，讨论和确定评估框架和指标，特别是在马来西亚基础设施和卫生系统的背景下，确定CARP的成果和评估工具。评估框架将参考BeCAP评估中使用的方法和途径，并将包括在每次BeCAP活动实施前后进行的人群意识调查，以确定意识方面的变化，包括对癌症和早期诊断的认识、态度、信念和知识。第三阶段，“进行形成性研究”-定性和定量方法将用于测试CARP和评估工具的适当性，可接受性和可行性。第四阶段，“评估CARP的影响”-将在吉隆坡和雪兰莪州的联邦领土进行大规模的试点评估研究。将开展运动前后的调查，以评估运动在以下方面的绩效：对体征和症状的认识、对癌症的信念和态度以及对运动中强调的症状的早期诊断和初级保健医生的护理。最后，我们将制定一项协议，推出国家一级的CARP。

项目成果

Changing Health Beliefs about Breast Cancer Screening among Women in Multi-Ethnic Malaysia.

• DOI: 10.3390/ijerph19031618
• 发表时间: 2022-01-30
• 期刊: International journal of environmental research and public health
• 作者: Htay MNN;Dahlui M;Schliemann D;Cardwell CR;Loh SY;Ibrahim Tamin NSB;Somasundaram S;Donnelly M;Su TT
• 通讯作者: Su TT

Effectiveness of clinical breast examination as a 'stand-alone' screening modality: an overview of systematic reviews.

• DOI: 10.1186/s12885-020-07521-w
• 发表时间: 2020-11-09
• 期刊: BMC cancer
• 影响因子: 3.8
• 作者: Ngan TT;Nguyen NTQ;Van Minh H;Donnelly M;O'Neill C
• 通讯作者: O'Neill C

Integration - reflections from Northern Ireland.

一体化——来自北爱尔兰的反思。

• DOI: 10.1177/1355819617741514
• 发表时间: 2018
• 期刊: Journal of health services research & policy
• 影响因子: 2.4
• 作者: Donnelly M

Factors influencing physical activity participation among people living with or beyond cancer: a systematic scoping review.

• DOI: 10.1186/s12966-021-01116-9
• 发表时间: 2021-04-06
• 期刊: The international journal of behavioral nutrition and physical activity
• 作者: Elshahat S;Treanor C;Donnelly M
• 通讯作者: Donnelly M

Validation of the Champion Health Belief Model Scale for an Investigation of Breast Cancer Screening Behaviour in Malaysia.

• DOI: 10.3390/ijerph18179311
• 发表时间: 2021-09-03
• 期刊: International journal of environmental research and public health
• 作者: Htay MNN;Schliemann D;Dahlui M;Cardwell CR;Loh SY;Tamin NSBI;Somasundaram S;Champion V;Donnelly M;Su TT
• 通讯作者: Su TT