VALIDATION OF SELF ADMINISTERED QUALITY OF WELL BEING SCALE IN ARTHRITIS

关节炎自我管理健康质量量表的验证

• 批准号: 6100506
• 负责人: Robert M Kaplan
• 金额: $ 11.42万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN DIEGO
• 依托单位国家: 美国
• 财政年份: 1999
• 资助国家: 美国
• 起止时间: 1999-03-01 至 2000-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6100506
• 关键词: arthritis; behavioral /social science research tag; clinical research; data collection methodology /evaluation; health care cost /financing; health care policy; health services research tag; health surveys; human subject; musculoskeletal disorder; outcomes research; pain; preference; quality of life; questionnaires

The Quality of Well-being Scale is an interviewer-administrated measure of health-related quality of life. The measure has been used in a wide variety of outcome and public policy studies. A major feature of the measure is that it can be used for cost-utility analysis. There have been at least three criticism of the QWB for outcome studies in arthritis. First, the QWB must be administered by an interviewer. Second, the QWB has not been validated specifically for patients with arthritis. Third, the preference weighting system is based on the general population rather than arthritis patients. The QWB has recently been redeveloped as a self-administered questionnaire (QWB-SA). The purpose of the study is to validate the QWB-SA for patients with arthritis and musculoskeletal disorders. This study has four Specific Aims. The first Aim is to demonstrate the feasibility of the QWB-SA for patients with arthritis and musculoskeletal disorders. The QWB-SA will be administered along with the AIMS-2 and the SF-36 to 1,500 patients. Analysis will consider rates of completed responses, difference in response, and missing information. The second Specific Aim is to develop an arthritis-specific QWB-SA. This will be accomplished by analyzing data collected in relation to Specific Aim 1. Comparisons between arthritis and non patients, using item analysis, will identify components of the measure that separate arthritis patients from patients with other illnesses. The third Aim is to compare preferences from arthritis patients and non patients. This will be accomplished by obtaining ratings for case descriptions and analyzing whether patients have different preference for outcome that non patients. The fourth Specific Aim will be to determine whether patients have different preference for outcome when in acute or non acute pain states. This study will use 100 Rheumatoid Arthritis patients. Half the patients will enter the study when in acute flare while the others will enter when they are not in an acute state. Both groups will be followed prospectively. The product of the research would be an improved outcome measure for public policy studies relevant to arthritis.

幸福感质量量表是一个访谈管理的 与健康相关的生活质量指标。 该措施已被用于 在各种成果和公共政策研究中。 一个主要 该措施的特点是，它可以用于成本效用分析。 至少有三个批评QWB的结果 关节炎的研究首先，QWB必须由一个 采访者。 第二，QWB没有经过专门验证 治疗关节炎的方法第三，优惠加权系统是 基于普通人群而不是关节炎患者。 的 QWB最近被重新开发为一个自我管理的 问卷调查（QWB-SA）。 研究的目的是验证 关节炎和肌肉骨骼疾病患者的QWB-SA。 这项研究有四个具体目标。第一个目的是证明 QWB-SA用于关节炎患者的可行性， 肌肉骨骼疾病QWB-SA将沿着 用AIMS-2和SF-36测试了1,500名患者。 分析将 考虑完成答复的比率、答复的差异，以及 缺失信息 第二个具体目标是发展一个 关节炎特异性QWB-SA。 这将通过分析 针对具体目标1收集的数据。 之间的比较 关节炎患者和非患者，使用项目分析，将识别 将关节炎患者与 患有其他疾病的患者。第三个目的是比较 关节炎患者和非患者的偏好。这将是 通过获得案例描述和分析的评级来完成 患者是否对结果有不同的偏好， 患者第四个具体目标是确定是否 急性或非急性时，患者对结局的偏好不同 急性疼痛状态。 本研究将使用100例风湿性关节炎 患者 半数患者将在急性发作时入组研究 而其他人则在他们不处于急性状态时进入。两 将前瞻性随访各组。 研究的结果 将是公共政策研究的一个改进的结果衡量标准 与关节炎有关。