CORE--INSTRUMENT DEVELOPMENT, DATA COLLECTION AND DATA MANAGEMENT

核心的具体功能包括：1)开发和 确认调查工具和问卷；2)制定 新的面谈或问卷项目；3)招收以下人员 风湿病及其提供者；4)数据培训和监测 采集和管理人员；5)数据采集；6)数据管理； 7)统计和风湿学咨询。 小组研究是核心内的主要数据收集活动。 单位。RA专家小组的研究始于1982-83年，当时随机抽取了 40名北加州风湿科医生招募了822名RA患者。 1989年登记了203名RA患者，1995年登记了131名RA患者。 自成立以来，RA小组的研究已经积累了9,547人年 跟进的问题。在拟议供资周期的第一年，另一个 150名类风湿关节炎患者将被纳入小组研究。RA小组 研究年度访谈收集有关心力衰竭的信号和症状的信息 类风湿性关节炎、合并症和所有卫生保健使用的完整清单 出于RA和非RA原因。此外，RA专家小组的面试将是 扩大收集有关生育和育儿决定的信息 对于EEHSR项目3。核心单位还将负责 收集病史、体检、血清学和影像数据 关于系统性红斑狼疮儿童骨密度的D&F研究。

The specific functions of the core include: 1) the development and validation of survey instruments and questionnaires; 2) the development of new interview or questionnaire items; 3) enrollment of persons with rheumatic diseases and their providers; 4) training and monitoring of data collection and management staff; 5) data collection; 6) data management; and, 7) statistical and rheumatologic consulting. The Panel Study is the principal data collection activity within the Core Unit. The RA Panel Study was begun in 1982-83 when a random sample of forty Northern California rheumatologists enrolled 822 persons with RA. 203 persons with RA were enrolled in 1989 and 131 were enrolled in 1995. Since its inception, the RA Panel Study has accumulated 9,547 person-years of follow-up. In the first year of the proposed cycle of funding, another 150 persons with RA will be enrolled in the Panel Study. The RA Panel Study annual interview collects information on the signals and symptoms of the RA, co-morbidity, and a complete inventory of all health care utilized for RA and non-RA reasons. In addition, the RA Panel interview will be expanded to collect concerning decisions about childbearing and parenting for EEHSR Project 3. The Core Unit will also be responsible for the collection of history and physical exams and serologic and imaging data for the D&F study concerning bone mineral density among children with SLE.