CORE--GENESIS/ELSI

在道德、法律和社会问题上的研究和教育 人类基因技术的应用是国家的优先事项。犹他州 人类基因组研究中心开展了一项ELSI计划，名为 《社会中的遗传科学》(Genesis)自1991年以来。这项提议将 通过创建Genesis/ELSI核心继续并扩展本活动 犹他州人类基因组中心。中心将开展五项活动 这将与中心的其他主要活动结合起来。这些 活动如下：(1)《家庭遗传研究指南》 已准备好供IRB、调查人员和研究对象使用 遗传学研究中出现的伦理、法律和社会问题 家人。一个在ELSI问题和 人类基因研究将与以下方面协商制定指南 研究科学家和遗传性遗传病家庭中的普通人 条件。该指南将发表在同行评议的期刊上。 (2)将为每年两名研究员制定一个研究金方案。 研究员将从与以下方面相关的广泛学科中招聘 艾尔西的问题。研究员将承担各种责任和 研究和教学的机会。(3)大学系列研讨会 将继续我们的校内多学科研讨会计划， 专注于应用的国内和国际领先学者 当代遗传学研究。(4)道德论坛将继续 提供讨论当代ELSI问题的机会 参与基因研究的年轻科学家。(5)公众教育 在人类遗传学的伦理、法律和社会问题上 指挥。据提议，II教职员工将获得部分 通过创世纪核心项目提供资金。犹他州ELSI的核心将是一个强大的， 关于ELSI问题的长期研究和教育计划，将 为人力资源调查人员和研究对象提供有价值的支持 基因研究。

Research and education in the ethical, legal, and social issues in the application of human genetic technology is a national priority. The Utah Center for Human Genome Research has conducted an ELSI program, titled Genetic Science in Society (GENESIS) since 1991. This proposal will continue and expand this activity with the creation of a GENESIS/ELSI Core for the Utah Human Genome Center. The Core will conduct five activities that will be integrated with other key activities of the Center. These activities are: (1) Guidelines for Genetic Research in Families will be prepared for use by IRB's, investigators and research subjects on the ethical, legal, and social issues that arise in genetics research with families. A multidisciplinary faculty with experience in ELSI issues and human genetic research will develop the guidelines in consultation with research scientists and lay individuals in families with hereditary conditions. The guidelines will be published in a peer reviewed journal. (2) A Fellowship Program will be developed for two fellows per year. Fellows will be recruited from a broad range of disciplines relevant to ELSI issues. Fellows will have a variety of responsibilities and opportunities for research and teaching. (3) A University Seminar Series will continue our intramural program of multidisciplinary seminars with leading national and international scholars focusing on the applications of contemporary genetic research. (4) An Ethics Forum will continue to provide an opportunity for the discussion of contemporary ELSI issues by the young scientists involved in genetic research. (5) Public Education in the ethical, legal, and social issues in human genetics will be conducted. It is proposed that II faculty members will receive partial funding through the GENESIS Core. The Utah ELSI core will be a strong, long term program of research and education on ELSI issues that will provide valuable support for investigators and subjects involved in human genetic research.