PRENATAL DIAGNOSIS AND THE SELECTION OF CHILDREN

描述（改编自研究者摘要）：该项目名为 “产前诊断和选择儿童”将开展一项 全面分析与下列方面有关的道德、法律的和社会问题： 产前诊断服务的专业标准和公共政策。 基因检测、先进的成像技术和获取 胎儿和胚胎组织将使产前诊断成为可能， 扩展条件列表。产前诊断“轻度”健康状况， 迟发性疾病和行为和身体疾病， 在可预见的将来，在正常范围内是可能的。鉴于 目前和预期的能力进行产前诊断，医疗 行业和更广泛的社会必须决定这些技术应该如何 被利用具体来说，专业人员应该做哪些产前诊断检查？ 提供给未来的父母还是应要求提供？是否应该限制 提供给未来父母的测试，或者选择是无限的， 只受知情夫妇的个人价值观的限制？该项目将 对与发展有关的文献进行分析 专业标准的应用这项技术。特别 将注意残疾人社区的文献，以及 广泛的医学和生物伦理学文献。主要产品 这个为期两年的项目将是一本书，题为“透明子宫：产前 诊断和儿童的生物选择。“这本书将为 受过教育的非专业群体以及医学专业和生物伦理学 社区.目前迫切需要形成社会共识， 正确使用产前诊断。该项目将制定一个明确的 这方面的建议，并促进对这些重要问题的广泛辩论。

DESCRIPTION (Adapted from the Investigator's Abstract): This project titled "Prenatal Diagnosis and the Selection of Children" will undertake a comprehensive analysis of the ethical, legal and social issues relevant to professional standards and public policy for prenatal diagnostic services. Genetic tests, sophisticated imaging technologies and new methods to access fetal and embryonic tissues will make prenatal diagnosis possible for an expanding list of conditions. Prenatal diagnosis for "mild" health conditions, late-onset conditions and for behavioral and physical conditions that fall within the normal range may be possible in the foreseeable future. Given the current and anticipated capabilities to perform prenatal diagnosis, the medical profession, and society more broadly, must decide how these technologies should be used. Specifically, what prenatal diagnostic tests should professionals offer prospective parents or provide upon request? Should there be limits on the tests made available to prospective parents or should choices be unlimited, restricted only by the individual values of informed couples? This project will undertake an analysis of the literature relevant to the development of professional standards for the application of this technology. Particular attention will be paid to literature from the disability community, as well as to the broad range of medical and bioethics literature. The principal product of this two year project will be a book titled "The Transparent Womb: Prenatal Diagnosis and the Biologic Selection of Children." The book will be written for the educated lay community, as well as for the medical profession and bioethics communities. There is an urgent need to develop a social consensus on the appropriate uses of prenatal diagnosis. This project will develop a clear proposal in this regard and foster a broad debate on these important issues.